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Regular Member

Date Joined Jan 2008
Total Posts : 154
   Posted 5/23/2008 2:36 PM (GMT -6)   
I just finished taper off Pred 2-3 days ago and I am exhausted,  I slept 12 hours yesterday and I have a headache.  Anyone else expereince this?
Diagnosed in spring 2005 at age 28
Currently on 12 asacol pills a day + Entocort
40 MG Pred cycle stating 3/26

Regular Member

Date Joined Mar 2008
Total Posts : 274
   Posted 5/23/2008 4:13 PM (GMT -6)   
Well, I slept from 11pm lastnight until 7 am today.. then I went back to bed at 7:30am until 11am... then fell asleep again until 3:00pm. I am really really exhausted. But it's not like mental tired it's more like a "body" tired. I have been in a flare since March and some days I have my energy back and others <like today> I couldn't even do the dishes if someone paid me !! I don't think it's medication related.. although since you were tapering maybe it is.. when I was on pred a few weeks agi I didn't seem to have nay great deal of energy either. This disease alone can cause severe fatigue so I guess we just gotta live with it. :OP
Jenn 26/female
Ulcerative Colitis Diagnosed May 2004
Sulfasalazine 500MG as needed <usually one pill a day> until I see my GI
Daily Vitamin for Women and Folic Acid
Currently in a flare since March 6 !!!!!!!!!!!!!!!!!!!!!!!

Regular Member

Date Joined Jul 2007
Total Posts : 84
   Posted 5/23/2008 6:16 PM (GMT -6)   
I have days where I'm incredibly tired, too.  I took a nap today, in fact.  It's one of those "head-tired" feelings for me.  I just can't keep my eyes open and have to lay down.  Then at what should be a normal bedtime (before midnight) I'm wide awake and sometimes don't feel tired until 3-4 am!  If I'm out and around during the day (currently not working), I'm fine, but when I get home and relax, that's when it hits.  Or if I go to a movie, I've sometimes fallen asleep for a bit.  I want OFF Prednisone!  I've been on it for about a year-and-a-half as everytime I taper to the lowest amounts (usually 5mg or 2.5mg), I flare again.  I'm currently flaring (2-1/2 weeks now) and will be calling my GI's office next week if it doesn't get better in the next few days.  I talked to them this week and he wants me to alternate between 5mg and 2.5mg for the next 3-4 weeks, but I've had it and don't want to wait that long.  I did have a bone scan last year and he said it looked better than the one about 4 years ago.  I guess that's something positive, though, in all of this!

Ulcerative Pancolitis (dx'd 6/2002)
Pentasa (4gm/day)
Prednisone (currently alternating daily 5mg & 2.5mg)
Aranesp injection every week for anemia
6-MP (discontinued as it lowers my white count)
Immodium-AD (occasionally)
various meds for other conditions

Veteran Member

Date Joined May 2006
Total Posts : 619
   Posted 5/24/2008 4:38 PM (GMT -6)   
I can't seem to get through the day without a nap since I've had this cursed disease. Some days are worse than others, but I always need some extra sleep. It's our bodies constantly fighting all the inflammation I've been told. Luckily I work for myself and can make sure I have nap time. I keep trying to get myself back to the gym (which I've been paying for even though I have not been in over a year!) because I think that would give me some more energy, but by the time I finish my nap it's too late in the day! Catch 22.

But you're not alone. Go to bed early, take a nap and the fatigue should be manageable.

Diagnosed UC April 27, 2006
7 Remicade infusions: 7/21/07; 8/18/07; 10/13/07; 12/15/97; 1/26/08; 3/8/08; 4/19/08
Lialda, 4 tabs in the morning; Protonix; Lexipro 10 mg; Xanax as needed. Daily supplements: multivitamin w/folate; Culturelle; Fish oil capsules, calcium chews and/or Tums; 12/1 - 12/29/07 weekly Venofer (iron) injections; Off of the following: Prednisone 4/06-4/08; Entocourt EC; Rowesa; Asacol; Colazal; Imuran (extremely bad reaction 2/07)

Regular Member

Date Joined Jun 2008
Total Posts : 46
   Posted 6/13/2008 12:56 PM (GMT -6)   
It's possible that the Asacol is doing this...I could barely wake up in the am to go to work..I was dragging my feet and as I would walk to work, I could have literally fallen asleep...I was EXHAUSTED all the time...I found out that 1. my iron count dropped to almost "undetectable" and had to take iron supps for 1 month 2. it's also a side effect from Asacol...if you go the the Asacol website and click on the prescribing info in the upper right hand corner look at the side effects...I'm highly allergic to 5-ASA drugs and had to stop right away. I hope this helps!
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