Vent about my employeer... or possibly ex-employeer

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Pooie1981
Regular Member


Date Joined Mar 2008
Total Posts : 274
   Posted 5/23/2008 4:28 PM (GMT -6)   
Hey everyone.

Well. Here I am still flaring since March and still not back to work. Please keep in mind that I work at a restaurant so that requires me being on my feet for the whole 8 hour shift. My employer called me yesterday and gave me an ultimatum. He said he is going to cut off my benefits at the end of the month if I don't go back to work at least part-time. Yes.. he can cut off my benefits because I am not covered under long-term illness because I was already diagnosed with UC at the time I was signed up. I pay half of the monthly amount and they pay the other half. They have been paying the lump sum since I have been off work so I appreciate that of them but now... to call and pretty much threaten me like that made me sad.. and then mad.

I am still in the same condition as I was the day they sent me home sick. And now to pretty much demand that I return to work just makes my stomach turn. It's like they think I am well enough by now to go back. I explained I was still the same and he was just like yeah well even if you come back for part time. ?? I don't think they understand that there are some days <like today> when I just cannot get out of bed. Some days I can't even lift my arms... I can see me now passing someone their plate of food and oops.. all over them because I had a weak moment. Grrr.

So.. in light of all this. I have been seriously thinking about going to a call center when I can sit on my butt and talk on the phone all day and get 100% benefits that i don't even have to pay half!! I just don't think I can so the stand on my feet thing anymore. I used to LOVE my job.. I did LOADS of extra work for them and was always on time and almost never called of sick in the 8 years I was there. I just feel like now that I am down they are kicking me.

Anyways... just had to vent I guess. I don't know what else to do. I am probably just going to go in and talk to him next week and tell him how I feel. Bascially I feel like they think this is a joke. Grrrrr..

Anyways... I am going to try to do something constructive with this anger energy. :O)

Thanks for reading.. sorry so long.. never had a vent on here before ;o)
Jenn 26/female
Ulcerative Colitis Diagnosed May 2004
Sulfasalazine 500MG as needed <usually one pill a day> until I see my GI
Daily Vitamin for Women and Folic Acid
Currently in a flare since March 6 !!!!!!!!!!!!!!!!!!!!!!!


hana24
Regular Member


Date Joined Dec 2007
Total Posts : 354
   Posted 5/23/2008 4:35 PM (GMT -6)   
have you called your doctor to switch your meds around. Have you considered taking pred? I worked in a call center before I went back to school for a bank doing tech support. I liked it because I could dress causal. I didn't mind sitting all day and I had always worked on my feet jobs before that. The only problem I had is that I gained wait because I wasn't running around all day. At this point there is no way I would get a job that didn't give me full access to a bathroom all the time.
Jessica 26/F 40mg pred taper
dicyclomine 10Mg before bed
Citalopram 20 MG
Colazal 3X3/day
Culturelle once daily
omeprazole(for acid reflex)
Tried (Entorcort EC 9ml/day and Prednisone, Asacol)


hana24
Regular Member


Date Joined Dec 2007
Total Posts : 354
   Posted 5/23/2008 4:36 PM (GMT -6)   
never mind I remember you just got off the pred....did it work? maybe if you went back on like 20 mg and switched maint. drugs.
Jessica 26/F 40mg pred taper
dicyclomine 10Mg before bed
Citalopram 20 MG
Colazal 3X3/day
Culturelle once daily
omeprazole(for acid reflex)
Tried (Entorcort EC 9ml/day and Prednisone, Asacol)


ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 5/23/2008 4:39 PM (GMT -6)   

Wow, for being an 8 year employee of theirs, that's really low of them. It's really tough when your employers don't (or refuse to) understand your illness.

I did waitressing for 7 months. I hit the worst flare of my life a few months after starting and it was almost impossible. I would be running to the bathroom constantly and then come out and have 4 new tables and a bunch of pissed off customers and I was always falling behind and "in the weeds". After a while I ended up quitting because I couldn't handle it; there was no way I could waitress and be in a flare. The stress of the job alone was making me worse.

I hope you are able to get something figured out, that's a crappy situation to be in (no pun in tended). Maybe a doctor's note or showing some literature on UC to your employer would help?
Female, 22, Ulcerative colitis (pancolitis) since 1999; GERD; gastritis; osteopenia in hip & lumbar region of the spine from long term prednisone use.

Current Meds:
10mg Lexapro (for depression/social anxiety)
Digestive Advantage: Crohn's and Colitis formula (2 pills per day, started 5/14/08)
125mg Azathioprine
4800mg Asacol (Four 400mg tablets, three times a day)
 
 
 


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 5/23/2008 8:02 PM (GMT -6)   
Hey waitresses - I feel your pain. I waitressed all through high school and college when I had IBS but later found out it was crohns. I had my trips to the bathrooms for the runs down to a science. I could get in and out fairly quickly but because I wasn't spending enough time in there per sitting I was running back pretty frequently, and urgently! It wasn't fair to the other staff always having to run my food or cash out a bill etc b/c I was on the toilet, again. Also, where I worked the bathrooms could be seen by the customers. Who wants to see their waitress running to the toilet 3 or more times during their meal??? I felt so gross pooping and then serving food no matter how many times I washed my hands. Interestingly, my states health code that stated you couldn't work if you had D had an exception for people with CD and UC and IBS. I made it through those years but I am not sure if I could do it again. I hope you find something that works better for you!

jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 5/23/2008 9:44 PM (GMT -6)   
Jenn, you might look into your state's vocational rehabilitation agency. If you're disabled from the job you've been doing, they can provide training for a new career is some cases. Might be an opportunity for you, if you're interested.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Avascular necrosis in both shoulders is my "forever" gift from steroid therapy.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


doors12
Veteran Member


Date Joined Jul 2006
Total Posts : 677
   Posted 5/23/2008 10:02 PM (GMT -6)   
Good advice about voc rehab.

I wonder if you're in the US, and I wonder if you're covered by FMLA. Don't quote me, but I believe FMLA only binds employers with a certain number of employees. (double check me on this)

Otherwise, would it be possible for you to pay the premiums for health insurance while you're out? Are you covered by short term disability insurance?
Diagnosed with Ulcerative Colitis 6/2006 at age 26 after sudden E.R. visit
~Pancolitis (Mild to Moderate)
 ~I had Mono in 2000
On Colazal 3x3/day; Folic Acid 1mg; Calcium/Magnesium/Zinc combo
In remission about 2-3 months after E.R. but not back to normal!
 
~Interested in finding a cure/making sense out of U.C. and philosophical and psychological aspects of UC and "Stress" and Personal Development issues with Chronic Illnesses. 


Pooie1981
Regular Member


Date Joined Mar 2008
Total Posts : 274
   Posted 5/24/2008 9:09 AM (GMT -6)   
Thank you all for your stories and suggestions. :O) First of all.. I was on pred before but only for a few weeks. My family Dr has taken me off most of the meds until I see my GI on June 9th. I guess he is just hoping I "last" that long. Once I see her, I will probably know more about what is going on inside me and get on some meds.

Next, I am in Canada. I don't even have short term insurance with my employer.. now I have kinda realized what a crappy plan this is !! LOL. I offered to pay the benefits back in the end of March but they just kind of brushed me off. I guess they just aren't so nice at the moment. I am going to go in next week and offer to pay again and see what they say. If worse comes to worse I am just going to let them cut me off and when I am back on my feet.. going to apply at the call centers. I have family at the call centers and I can get on the health plan there almost immediately and it includes short/long term benefits, sick days, etc. Lots of perks. I guess the true reason why I was venting was because.. well I just feel betrayed. I loved my job and the people I worked with but it just seems when I am sick they have no use for me.. period.

Ah well. See what next week brings I guess. :O|

Thanks again everyone... I love this forum !!! :)
Jenn 26/female
Ulcerative Colitis Diagnosed May 2004
Sulfasalazine 500MG as needed <usually one pill a day> until I see my GI
Daily Vitamin for Women and Folic Acid
Currently in a flare since March 6 !!!!!!!!!!!!!!!!!!!!!!!


Pitz
Regular Member


Date Joined Jul 2007
Total Posts : 84
   Posted 5/26/2008 12:34 AM (GMT -6)   
xpsunny - D means diarrhea.

Ulcerative Pancolitis (dx'd 6/2002)
Pentasa (4gm/day)
Prednisone (currently alternating daily 5mg & 2.5mg)
Aranesp injection every week for anemia
6-MP (discontinued as it lowers my white count)
Immodium-AD (occasionally)
various meds for other conditions
 


julee70
Regular Member


Date Joined Oct 2007
Total Posts : 486
   Posted 5/26/2008 8:19 AM (GMT -6)   
Hey Jenn,
Very sorry to hear about all this aggravation. When you are trying to feel better, arguing with your employer is the last thing you need. Do you really have to wait until June 9th to see a GI? That seems like a bit of a wait if you are off meds. I don't know how the Canadian health system works but I thought you could go to a hospital for free. If that's the case, and there's a good hospital near you, perhaps you could go in and try to see a GI sooner.

Have you had your blood checked recently? If you are exhausted all the time it could be anemia. (Of course, it can also just be dealing with running to the bathroom all day, etc.)
-------
UC for the last ten years
Current Meds: 6MP since 2006, Cortifoam
Past Meds: You name it; I've tried it. (Asacol, Colazol, Pentasa, DiPentum, Rowasa, Canasa, Cortenema, sulfasalazine)
5ASA drugs don't work for me. Canasa seems to make me worse.
Alternative treatments I have had success with: Acupuncture, Hypnotherapy


Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 5/27/2008 7:02 AM (GMT -6)   
sorry to hear about that!  In my experience the restaurant business treats it's employee's the worst, you can't call in sick otherwise you know they are screwed and they make you feel horrible about it.  Please note - this is my experience.  I'm sure there are some out there that treat their people well (IMO - just don't think it is the majority).  Also if it is not a corporate restaurant, then the owners usually take everything personally, because the bottom line affects them and that can make them turn nasty.
 
The co. I have been at for 8 years when I went into a major flare, could not have been more supportive (but I did still come into work except for a couple days, so who really knows until it happens to you).  But they have been great. 
Beth, 32 ~ small flare - hoping caused by aspirin
Major Flare Sept/Oct 07
UC dx'd 03/00 (Proctosigmoiditis); Pancolitis since 09/07
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd 09/07 - partial remission since 03/08
Prednisone 5mg 1xday (tapered from 60 = ), Simvastatin 20mg 1xday, Diovan 160mg 2xday. Enalapril 20mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.  Do you have edema? If so, check your blood protien level!
 


Pooie1981
Regular Member


Date Joined Mar 2008
Total Posts : 274
   Posted 5/27/2008 10:16 AM (GMT -6)   
Thanks for more replies. :O) Always nice to log on and have lots of things/opinions to read. Juliee70.. I had gone to the ER back in March when my flare was at its worst. They told me I was full of poo and gas and to go for a brisk walk to "walk it off." Imagine! Obviously no matter how many times I told them I had Colitis it didn't matter to them. I couldn't even walk at the time let alone go for a brisk one!! Since then I have been to my family doctor 5 times. He referred me to the GI and has put me on and tapered me off Endorcort and Pred.. etc etc trying to help with the flare. So now that he is out of suggestions I have to wait until the 9th and see what the GI says. I am taking a Sulfa pill once a day until then just to cope with some of the symptoms. I think he just wants me back to Square One when I go to the GI so he/she can start from there.

Beth75, ya hit the nail right on the head there! They are nice ppl to work for until you get sick and yes.. if ya call off they are "screwed" for the day. Especially when most of their staff are in school and that leaves them with only a few day time staff. Its hard. I have learned a lesson from all this tho.. and even if I do go back to work there I am certainly going to be looking for something else to do in the near future !!!

THanks again for the support and comfort.

:O)
Jenn 26/female
Ulcerative Colitis Diagnosed May 2004
Sulfasalazine 500MG as needed <usually one pill a day> until I see my GI
Daily Vitamin for Women and Folic Acid
Currently in a flare since March 6 !!!!!!!!!!!!!!!!!!!!!!!


Pooie1981
Regular Member


Date Joined Mar 2008
Total Posts : 274
   Posted 5/29/2008 9:49 AM (GMT -6)   
Hey. Thank you all for your stories and support.. as always.

I decided this morning to meet with the "owner" of the restaurant I work at and talk to him rather than my manager <who was giving me a hard time.> Yip, I cut out the middle-man and it was worth it !! I explained what my case was and that I was waiting to see the GI on the 9th and that I am simply too weak to come back to work. He gave me a little grief but was happy with me when I offered to repay him for the amount of the benefits he had to pay on my behalf. He was so impressed, he actually gave me a new position!!!!!! When I go back to work he is going to train me to do the book work so when he goes on vacations, etc he will not fall behind!! I will still work the floor at the restaurant when they need me but mostly I will be doing the book keeping. Sigh..... what a great out come to what i thought was going to be a terrible day!! Now I can focus on getting well rather than worrying about work !!

:O)
Jenn 26/female
Ulcerative Colitis Diagnosed May 2004
Sulfasalazine 500MG as needed <usually one pill a day> until I see my GI
Daily Vitamin for Women and Folic Acid
Currently in a flare since March 6 !!!!!!!!!!!!!!!!!!!!!!!


MitzMN
Veteran Member


Date Joined Feb 2007
Total Posts : 623
   Posted 5/29/2008 11:26 AM (GMT -6)   
Great news!

Let this be a lesson to us all, that the Universe is not full of awful people. Most of the time, if you
explain your situation to someone, they will understand. And if you come up with ideas to help THEM
allow you to continue to work, albeit in perhaps a different way, they will embrace your initiative and
find a way to make it all come together.

Now, yes, work on getting well!

Mitz
Sporadic proctitis since about 1985. Mother had J-pouch surgery 1983.
DX'd with clostridium difficile in 2000. Pred, two courses of Flagyl, then Vancomycin finally got rid of it. 2001 colonoscopy dx'd left-sided UC. . Treated with prednisone, Rowasa, Asacol. Asacol not working, switched to Imuran. Three small flares since in 2002, 2005, and 2007, brought under control with steroid and Rowasa enemas. Lap Chole performed October 26, 2007, after gall bladder attack in June, '07.
Daily meds: 100 mg Azathioprine and 225 mg Effexor XR (for chronic, longstanding depression), many vitamins and Primadophilus Reuteri


love4cats
Regular Member


Date Joined May 2007
Total Posts : 458
   Posted 5/29/2008 11:29 AM (GMT -6)   
What great news!

My daughter works as a waitress and has digestive issues (yet to be diagnosed, appt in July at GI) and she gets the same grief when she can't make it into work or is late because she can't leave her apt until her tummy settles down.

As for the ER treatment you got, yup, sounds Canadian all right. Might be "free" but it is not the best.
 
 
Dx:  UC Proctitis 2006 
Meds:  None so far. Garlic works to ease flares. My GI laughed when I told him and said it was just coincidence. 
Started Meds:  Apr 9 08 500mg 5ASA (salofalk) to ease flare, tapering, stopped. 
Diet:  Regular fresh garlic, Biobest yogurt daily, Omega 3 supplements, very limited junk food, carbs and processed food, low fat diet.  Lots of fresh fruit and veggies (limited potatoes). 
 Added: tumeric and probiotics.
 
 


munchkindd
Regular Member


Date Joined Oct 2007
Total Posts : 348
   Posted 5/30/2008 8:21 PM (GMT -6)   
Pooie1981, I notice that you are taking 1 500mg sulfasalazine per day. What about increasing that? I have never heard of anybody being on just 1 500mg sulfa pill a day. When people are diagnosed, they are usually started at 4 or more per day. I'm in remission and currently taking 6 per day, hopefully I will decrease that to 4 per day soon, I'm just nervous to make the change because things have been going so well for me. Hope you see an improvement soon.  Are you taking any rectal meds at all, that could also be a big help, obviously you need to make a change because what you are doing now is not working for you.   Good Luck!!


*******Donna*******
 
diagnosed with uc 27 years ago.  Enojoyed 20 year remission with just minor blips here and there (approximately 16 of those years without any meds)
 
In a flare for 2 very long years which Asacol didn't help at all.  Finally in remission again since Jan 2008, can't believe it..............
 
currently on Sulfasalazine 2 tabs 3x day. Folic acid, mesalamine enema 2 x a week. Omega 3, Probiotics, multi vitamin, calcium supplement, Biotin....
 


Pooie1981
Regular Member


Date Joined Mar 2008
Total Posts : 274
   Posted 5/30/2008 8:59 PM (GMT -6)   
Thank you for the concern Donna. :O) I am only taking one a day because they give me very. VERY.. bad headaches. I was on 4 a day to start with and I couldn't tolerate the head pain. My family DR has tried many diff meds over the last few months and has exhausted his experiments on me lol... I am just waiting to see the GI now and see what she thinks is best for me.

:O)
Jenn 26/female
Ulcerative Colitis Diagnosed May 2004
Sulfasalazine 500MG as needed <usually one pill a day> until I see my GI
Daily Vitamin for Women and Folic Acid
Currently in a flare since March 6 !!!!!!!!!!!!!!!!!!!!!!!


julee70
Regular Member


Date Joined Oct 2007
Total Posts : 486
   Posted 5/30/2008 11:15 PM (GMT -6)   
Jenn,
Congrats on working out such a great solution to your work issues! It's really great that your boss has other non-floor work for you. Plus, he's trusting you with keeping track of the money, which is a HUGE compliment. Most business owners are pretty reluctant to give up any control of their books, so it's such a nice sign that your boss is entrusting you with that.

(By the way, I know someone who went from waiting tables to bookkeeping and now she does bookkeeping for a few different restaurants. She makes her own hours too, which is great.)

I hope that you are hanging in until your GI appointment. I suppose this could be a good time to experiment with diet changes just to see whether you can see any effects. When I'm taking a lot of meds or changing from one to the other, I can never tell what foods are making any difference. At least with your meds/vitamins constant for the next week, you can see whether diet makes a difference for you. Sometimes for ideas about what to try, I check out the website drweil.com. There are also a ton of suggestions here on the board.

Congrats again on the good news about your job.
-------
UC for the last ten years
Current Meds: 6MP since 2006, Cortifoam
Past Meds: You name it; I've tried it. (Asacol, Colazol, Pentasa, DiPentum, Rowasa, Canasa, Cortenema, sulfasalazine)
5ASA drugs don't work for me. Canasa seems to make me worse.
Alternative treatments I have had success with: Acupuncture, Hypnotherapy


TraciZ
Regular Member


Date Joined Aug 2007
Total Posts : 255
   Posted 5/31/2008 7:16 AM (GMT -6)   
Jenn,
I'm so glad to read the happy ending at the end of this post. What a lot of worry and headache to get there, though! You were brave to talk to the boss about this! That shows what an incredible person you are, and he saw it, too! Now, I just hope that the GI can provide some relief for you on 6/9!
Tressa 34 (F)
Not sure of my dx- currently UC, maybe Crohn's.
Colazal 3X3/day
Lialda upped to 4/day,
Phosphatidylcholine 4 (420 mg capsules) once/day
Colazal 3X3/day (not generic)
Rowasa at night X 14 days
Canasa BID

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