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Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3442
   Posted 5/28/2008 6:40 AM (GMT -6)   
Hey Meesh! you & I seem to be in the same boat with Remicade- it's a heckuva lot better on it than not, but still going too frequently, still having urgency issues, fatigue, becoming symptomatic at around 5 weeks, etc. And I think we're both on the high dose 6 week schedule, which is about as much Remicade as often as you can get! I noticed you posted that you were waiting for Humira to be approved for UC- are you waiting for insurance purposes? My GI told me that insurance will cover it for UC now as long as they can prove that Remicade has failed you. But what i wanted to ask you is what you're plans are- are you going to switch to Humira as soon as possible, or do you plan to stay with the Remicade 'til it really loses all it's effectiveness for you? I plan to do that- stick with Remicade for now, until I find myself becoming symptomatic 4 weeks or less after an infusion. then it's time to call my GI to plan the Humira switch. Just curious as to how you feel about it- what's your plans? It stinks though, that Remicade does not seem to be our "miracle drug" like it is for so many others! I've been told it can take up to 6-8 infusions to really see the benefit, but I've been on it for almost 2 years now!
diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade infusions
Imuran- 100mgs/day
Culturelle
 
 
 
 


Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3442
   Posted 5/28/2008 3:32 PM (GMT -6)   
bump- and also, this is really for anyone who is in the same situation. Remicade working ok, but not great, not near as well as it should. What to do, what to do....
diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade infusions
Imuran- 100mgs/day
Culturelle
 
 
 
 

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