I think I'm flaring again or maybe it's a blip

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Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 5/28/2008 10:56 AM (GMT -6)   
You ever get to the point that you are absolutely sick and tired of calling your doctor??? I am at the point right now.  I am so sick of calling my doctors - well I'm tired of seeing doctors in general.  I think I'm headed for a flare but not quite sure because my body has done this to me in the past.  But it started last weekend when I was on vacation.  I went to the bathroom (once) and had a quite a bit of blood and rectal stinging.  I'm thinking hmm well ok, maybe it's my hemmie.  Which I suppose it could be because the blood was bright red and it dripped in the toilet.  So then the next day comes and no more dripping blood (it was the racing stripe variety this time) but still rectal pain and spasms when I had a bm (3 times that day).  Then the next day, less blood but more bms becoming looser in nature (still about 3-4 times).  Fast forward to today.  I have already been to the bathroom 5 times with pure D, yellow/green bile liquid stuff again and minor bleeding.  But I also had the white knucklers and the chills when I went.  Like I said, I have had this in the past and it seemed to resolve itself within a few days and I would go back into remission.  So I'm thinking that maybe I am near my menstrual cycle which could account for some of my Uc symptoms and the fact that my hips are starting to hurt as well.  My hips would always be so sore around that time of the month so that is sort of an indication that maybe it would be my TOM.  So I have a question for the ladies that have hormone related flares.  At what point do you call your doctor?  Do you just wait it out for about a week to see if it resolves itself? I've been fairly lucky and haven't had these flare type symptoms in quite a while so that is why I'm thrown for a loop because I don't know what to do.  Now mind you, if I do call the doc - I know that he is going to have me start the steroid enemas because I can not tolerate any other rectal med.  And I am not quite sure I am the stage in which I would need a steroid. 
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis~Sacroiliitis-epidural injections
To help Healingwell - click here: DONATE
 
 
 
 

 
 


TraciZ
Regular Member


Date Joined Aug 2007
Total Posts : 255
   Posted 5/28/2008 11:15 AM (GMT -6)   
I'm right there with you, Red! I'm so sick of doctors!!!
What would tell you you're in the steriod enema stage?

I don't think I have TOM flares, because I've been flaring almost constantly for 3 years!

Personally, I call the doctor when I've tried everything I can and it's not working. Then, like today, I go in with my own agenda about what I'd like to use to try to induce remission. (Today, I'm asking about Cipro/antibiotics, cortifoam and food allergy tests- all in an attempt to find something other than pred that works!)

Good luck!
Tressa 34 (F)
Not sure of my dx- currently UC, but with skip lesions. Bloodwork is inconclusive for UC & Crohn's. Colonoscopy shows ulceration in terminal ileum and descending colon
Colazal 3X3/day
Lialda upped to 4/day,
Colazal 3X3/day
Phosphatidylcholine 4 (420 mg capsules) once/day


Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 5/28/2008 11:55 AM (GMT -6)   
I am sick of going to the Dr's. too!

I got my period and flare start on the same day on vaca 5/13, never had that happen before.......never had pan-colitis before. Same as you, small amt. then more and more, etc.

I started the hydrocortisone e's and that has been helping though I skipped two nights (beating myself up over that now) and got a little worse, now back to it again as of last night.

I'd check out getting some e's to help.
Beth, 32 ~ small flare - hoping caused by aspirin - hydrocortisone e's
Major Flare Sept/Oct 07
UC dx'd 03/00 (Proctosigmoiditis); Pancolitis since 09/07
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics, Aloe Vera juice.
Minimal Change Disease (Kidney Disorder) dx'd 09/07 - partial remission since 03/08
Prednisone 5mg 1xday (tapered from 60 = ), Simvastatin 20mg 1xday, Diovan 160mg 2xday. Enalapril 20mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.  Do you have edema? If so, check your blood protien level!
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30840
   Posted 5/28/2008 12:01 PM (GMT -6)   
Hi Red...definitely a flare, regardless of it's near your period or not. You should start the steroid enemas.

Yeah I agree about the doctors...it's also part of the feeling "oh crap...now what....I would just like a break already!! ".

You could start a fibre supplement if you're not taking one to help bulk things up a bit.
Could you have a fissure as well?

Call the doc considering the weekend is nigh ;-)

Keep us posted as to how you're feeling..

quincy xx
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


lemonhead
Veteran Member


Date Joined Dec 2007
Total Posts : 1028
   Posted 5/28/2008 12:13 PM (GMT -6)   
Hi, sorry to hear you are feeling crummy.  I have major issues right around my period.  It starts with the biley, really thin poop (my GI thinks that is because your uterus gets bigger and pushes on your colon, therefore the smaller poop), then I get really naseaus and sick to my tummy, and then I get the D.  Oh yeah and the cramping....the god awful cramping!!  I actually just started today and am feeling a bit better.  I think my UC is completely dependant on my hormones.  The only flares I have had were either when I was pregnant or when I tried to go on birth control.  I went on the pill for 5 days last July and I am just now starting to get back to "normal".  However normal you can be with UC.  Those hormones are wicked.  My GI will always tell me to wait a couple of days and call him if it doesn't get better.  I sure hope you feel better soon.   It sucks enough to either have UC or have to put up with the once a month hormone roller coaster, but to have both is the double whammy!

diagnosed with left-sided UC in 1997. (45cm)
Currently on 10mg Prednisone
12 caps of colazal    9 caps Colazal
2 rowasa enemas nightly
35, female


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 5/28/2008 12:19 PM (GMT -6)   
Ha! Maybe I'm queen of denial - I just don't WANT this to be a flare if you know what I mean. I am extremely tired, my back is really hurting today (I finally have an appt to see a neurologist on 6-10), my hips are burning, my butt is burning lol - I feel like I'm a wreck. I think for me, the indication to start the steroid enemas is that all consuming abdominal cramping/pain with blood and D. I know I know, sounds like I'm there already but like I said, I'm in denial! I still have 3 boxes of steroid enemas here already so I might just go ahead and start them again tonight and call my doc tomorrow. He might want me to come in and have my blood checked again to see how I'm metabolizing the 6mp. I may still be on the low end - don't know. Haven't had it checked in a while.

But yeah, doctor visits seem to be my life lately! I am sooooo very tired. I have been to 3 specialists already in the past 6 months for my back, 1 for GYN issues, 1 for accupuncture treatments, my GI for my routine visit and bloodwork and now I'm seeing a neuroligist in June. I'm starting to feel like a bug under glass as well as a pin cushion!

Q, I've tried various fiber supplements in the past and I don't think my body likes them much. When I start them I end up having massive amounts of D. I have yet to find one that my body likes. Some of the ones you mentioned to me earlier, I couldn't find them here in the states. I can't remember what they were. Or maybe it was Pb that had mentioned them? Could be a fissure - don't know. I've never had one so I don't know what they feel like.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis~Sacroiliitis-epidural injections
To help Healingwell - click here: DONATE
 
 
 
 

 
 


mb143
New Member


Date Joined May 2008
Total Posts : 12
   Posted 5/28/2008 12:47 PM (GMT -6)   
Hi Red,

So sorry...I know what you mean about being a pin cushion and being REALLY sick of doctors. My UC is just one of the things that have allowed me to fill the pockets of the doctors in my life, and sometimes you just want to ignore it. I think that we have to allow ourselves the luxury of denial for a little while. But...you know your body better than anyone, and you know in your gut (pardon the pun) what you should do.

I had a hysterectomy 2 years ago, but still have my ovaries. My ovulation has always been a source of all kinds of random symptoms including many that fit into the category of UC. (even long before I was diagnosed with it) So I do think that our lovely female monthly stuff can heighten symptoms of a flare.

There have been some posts lately endorsing spinach and turmeric...those might be worth a try. (I personally have had good luck with turmeric, although I am drinking a drink that contains it. If I were just going to use the spice, I'd probably use quite a bit per day.)

Hang in there and thanks for being honest.
mb143
Diagnosed in 2005
Ascacol - 9 per day, Entocort when needed - 3 in the morning, Azathioprine, 3 in the morning and 1 other med I can't remember the name of...16 pills total (this is only my meds for UC)
I also take a Lisno/HCTZ for High Blood Pressure, Prevacid for Acid Reflux, a couple Percoset per day for arthritis, and Ambien whenever I'm on Entocort.

That's waaaaay too many meds!

Post Edited (mb143) : 5/28/2008 3:36:33 PM (GMT-6)


expecting226
Regular Member


Date Joined Jul 2007
Total Posts : 402
   Posted 5/28/2008 12:48 PM (GMT -6)   
I usually have some loose bowels around my periods - start the week before and continue through the period. Because it is relatively consistent every month, I wait until my period is over to see if it continues. If it goes on and gets steadily worse after the period ends, I know I am headed into a flare.

My TOM symptoms are always just loose bowels, though - never any blood, chills, pain, etc. I am with Quincy on this one... I think you could be flaring. I would call the doc.
Proud new mom of a beautiful baby boy!
Current Medications:
- Asacol (4 pills, 3x per day)
- Rowasa (1 enema daily, as needed)
- Folic Acid (1 mg, 1x per day)
- Calcium (600 mg, 2x per day)
- Prenatal Vitamin (1x per day)


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 5/28/2008 1:54 PM (GMT -6)   
You've been under a lot of stress lately with your issues and with Gma's issues. I'm sure you're body is beginning to rebel! The steroid enemas should nip things in the butt. Maybe if you start them now, you won't need them as long???

Thinking of you and hoping you're back to feeling well soon!
Pan-colitis and GERD diagnosed May 2003
Osteopenia diagnosed Feb 2006
Status:  Getting close to remission!?!?!
 
Asacol 12 per day,  Azathioprine 100mg, Aciphex, Forvia, and Pro-Bio
Last dose of pred: May 25
 
Co-Mod for the UC forum:  Keep HealingWell running smoothly:  www.healingwell.com/donate


jano437
Veteran Member


Date Joined Jul 2005
Total Posts : 1614
   Posted 5/28/2008 3:41 PM (GMT -6)   
Hang in there Sherry, maybe it is just a blip. Keep and eye on it and if it don't get better in a few days, maybe then call your doctor. Take care and feel better
Diagnosed July 2005 with Pancolitis
Asacol 4 tabs 3 times daily
Pro-Bio
Forvia
calcium
Diosmin(for leg and vein support)


jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 5/28/2008 4:07 PM (GMT -6)   
Oh, heck no! With all the other stuff you've got going on, a flare right now is so not fair! I'm sorry your colon decided to join in on the fun, Sherry. Hopefully it will be just a short blip and it'll get back in order.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Avascular necrosis in both shoulders is my "forever" gift from steroid therapy.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3442
   Posted 5/28/2008 4:28 PM (GMT -6)   
I do get TOM flares, regularly, & I just wait them out- they never get worse, it's a couple of days of horrendously painful, very soft bm's with blood on them. Not the "dripping into the bowl" variety, just streaks on the tp. And the mucous, gas, etc. But then I get my period & magically go back into my version of remissin. I hate to say it, but it does sound like a flare- I hope things get better! Get those enemas!

diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade infusions
Imuran- 100mgs/day
Culturelle
 
 
 
 


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 5/28/2008 4:48 PM (GMT -6)   
Thanks everyone......y'all are so sweet! :) Me and spinach don't get along - blech! Just the thought of that vile stuff makes me want to throw up! lol No, I don't like spinach at all!

Okie dokie then, the enemas it shall be. Lordy do I HATE those things though :(
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis~Sacroiliitis-epidural injections
To help Healingwell - click here: DONATE
 
 
 
 

 
 


Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6448
   Posted 5/28/2008 4:54 PM (GMT -6)   
Aw Sherry; I'm sorry you aren't feeling well. I hope the enemas help out and that you are feeling better soon.

Carol

Remicade - will have my 22nd infusion on May 5.
Vitamin B-12/Biotin, Probiotics
 
Co-Moderator for the UC Forum
 
 


munchkindd
Regular Member


Date Joined Oct 2007
Total Posts : 348
   Posted 5/28/2008 5:23 PM (GMT -6)   
So sorry that you aren't feeling well. Sounds like more than a blip to me, but then again I'm not a doctor. I usually get D or loose bms around my TOM and it can last 2 - 3 days, but there is never any blood. It sounds like you need to do something now rather than later, you don't want to be in a full blown flare. I hope the enemas work quickly for you. Good Luck Sherry
*******Donna*******
 
diagnosed with uc 27 years ago.  Enojoyed 20 year remission with just minor blips here and there (approximately 16 of those years without any meds)
 
In a flare for 2 very long years which Asacol didn't help at all.  Finally in remission again since Jan 2008, can't believe it..............
 
currently on Sulfasalazine 2 tabs 3x day. Folic acid, mesalamine enema 2 x a week. Omega 3, Probiotics, multi vitamin, cacium supplement, Biotin....
 


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 5/29/2008 7:21 AM (GMT -6)   
Wow what a difference a day makes! I did the enema last night and boy was I tender in there. But I woke up this morning and didn't have any bleeding nor pain. I made sure to spread some of the med inside the rectal area. 'Cause I figured if my hemmie is bothering me that the steroid could help that in addition. I still have that "heavy" feeling in my gut but it's not roiling around on me anymore.

Yes, I do believe that stress was catching up on me. I've been under a lot of pressure lately but I just didn't realize it. I've always had that problem of internalizing my problems so I guess it caught up to me. I'm still going to call my GI today to see what he wants me to do.

Thanks for all your input ladies (and gents?).
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis~Sacroiliitis-epidural injections
To help Healingwell - click here: DONATE
 
 
 
 

 
 


lemonhead
Veteran Member


Date Joined Dec 2007
Total Posts : 1028
   Posted 5/29/2008 7:33 AM (GMT -6)   
Glad you are feeling better!!
diagnosed with left-sided UC in 1997. (45cm)
Currently on 10mg Prednisone
12 caps of colazal    9 caps Colazal
2 rowasa enemas nightly
35, female


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 5/29/2008 9:08 AM (GMT -6)   
Glad to hear you found some relief!!!
Pan-colitis and GERD diagnosed May 2003
Osteopenia diagnosed Feb 2006
Status:  Getting close to remission!?!?!
 
Asacol 12 per day,  Azathioprine 100mg, Aciphex, Forvia, and Pro-Bio
Last dose of pred: May 25
 
Co-Mod for the UC forum:  Keep HealingWell running smoothly:  www.healingwell.com/donate


bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 5/29/2008 9:38 AM (GMT -6)   
Wow, glad to hear that the enema worked so fast for you! That's awesome!
Female, Age 19, Dx w/ UC August 2007
Seasonal allergies
9 Asacol/day, 1000 mg Canasa (caused side effects), Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis) 3 pills/day
2 DanActive/day


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 5/29/2008 10:20 AM (GMT -6)   
Thanks :) I've always responded fairly fast to steroid enemas - unless I am flaring badly. I still had the D today but only twice and I still get the occasional cramp. But not like it was yesterday. So maybe I got it early before it got out of control.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis~Sacroiliitis-epidural injections
To help Healingwell - click here: DONATE
 
 
 
 

 
 


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 5/29/2008 1:48 PM (GMT -6)   
Update - oh joy, I get to be on these lovely steroid enemas for 3 weeks per my GI's instructions. And I have to see him in 2 weeks. Well at least I will (or hope to be) feeling good for my vacation. We are leaving to Missouri on June 13th and coming back on June 21st. We went there 2 years ago and I was flaring then too hmm I'm starting to see a pattern - maybe I should just stop going to Missouri huh? :)
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis~Sacroiliitis-epidural injections
To help Healingwell - click here: DONATE
 
 
 
 

 
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30840
   Posted 5/29/2008 2:35 PM (GMT -6)   
Hi Sherry...hope the enemas have you feeling better daily. Maybe you won't have any flaring issues during your trip since you're dealing with it now.

quincy
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5187
   Posted 5/29/2008 8:43 PM (GMT -6)   
3 weeks on the steroid enemas will hopefully put you back in remission. It sounds like your gastro is being properly attentive to your situation. Good luck & take care. / Old Hat (nearly 30 yrs with left-sided UC ... [etc.])

lemonhead
Veteran Member


Date Joined Dec 2007
Total Posts : 1028
   Posted 5/30/2008 7:41 AM (GMT -6)   
Glad you are feeling better, and have a great vacation.

diagnosed with left-sided UC in 1997. (45cm)
Currently on 10mg Prednisone
12 caps of colazal    9 caps Colazal
2 rowasa enemas nightly
35, female

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