Hi. I just read some of the research and thought it was worth a try. Old Mike warned me that it wouldn't help, because it would dissolve before the colon (it's not enteric coated). It's not a matter of the soy (if it is), because I eat soy products all the time.
This was all an attempt to avoid another course of prednisone.
Anyway, Bigphule, here's the info I posted in another post: (http://www.healingwell.com/community/default.aspx?f=38&m=1129539)
Do any of you remember a post about research on phosphatidylcholine? Someone posted research about it: Stremmel W. Merle U. Zahn A. Autschbach F. Hinz U. Ehehalt R. Retarded release phosphatidylcholine benefits patients with chronic active ulcerative colitis. Gut. 54(7):966-71, 2005 Jul.
I can't find that posting now, but just did a "medline" search and found more research (8) articles indicating that phosphatidylcholine can help reduce inflamation related to IBD.
I'm not a doctor, so I can't understand all of it, but from what I read from the abstracts of these articles, the amounts and types of phosphatidylcholine differ among the studies, but the general consensus is that taking phosphatidylcholine helped at least 50% of the participants, whereas only 10% of the placebo group had a reduction in symptoms. If anyone wants the citations/abstract, please let me know. I have them in a word document and can e-mail them to you. Most of it should be pretty understandable and you can even print it out for your docs, if you want!
Anyway, I began taking 4 (420 mg) capsules of phosphatidylcholine last Friday. It cost $15.99 from the "Vitamin Shoppe" for 100 capsules. (I was having a VERY BAD flare with blood, mucus, D and cramps since at least 4/25.) The cramps and D are gone. I'm having regular solid bowel movements, the bood is trace and I still have some mucus, but am optimistic that'll go away, too. Yesterday, I ate spicy "Popeyes" mashed potatoes & fried chicken, buffalo wings, pizza! I had a little gas, but not much of anything else (just the mucus and trace amounts of blood).
I never began the Rowasa or Canasa my GI rx'd, but switched to the Colazal (from Lialda) on 5/9. I attribute my "remission" to the phosphatidylcholine, although the Colazal may have kicked in after being on it for a week.
From my personal experience and what I've read in medline, I'm a believer in phosphatidylcholine. The only side effect I read was "mild bloating". I thought it was worth a try for me.
I just wanted to put this out there as an FYI. Do with this info what you will...
Tressa 34 (F)
Not sure of my dx- currently UC, maybe Crohn's.
Lialda upped to 4/day,
Phosphatidylcholine 4 (420 mg capsules) once/day
Colazal 3X3/day (not generic)
Rowasa at night X 14 days