phosphatydl choline

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TraciZ
Regular Member


Date Joined Aug 2007
Total Posts : 255
   Posted 5/28/2008 4:13 PM (GMT -6)   
didn't work for me... and I was so optimistic! Granted, I missed 2-3 days worth (not in a row), but I'm sorry to say: no luck.
Tressa 34 (F)
Not sure of my dx- currently UC, but with skip lesions. Bloodwork is inconclusive for UC & Crohn's. Colonoscopy shows ulceration in terminal ileum and descending colon
Colazal 3X3/day
Lialda upped to 4/day,
Colazal 3X3/day
Phosphatidylcholine 4 (420 mg capsules) once/day


quincy
Elite Member


Date Joined May 2003
Total Posts : 30511
   Posted 5/29/2008 9:56 AM (GMT -6)   
who put you on it? or was this an experiment?

If it's derived from soy, it could be that you might be estrogen sensitive...

quincy
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


Bigphule
Regular Member


Date Joined Dec 2007
Total Posts : 137
   Posted 5/29/2008 10:41 AM (GMT -6)   
Can you give us some more info on phosphatydl choline?
Diagnosed UC 12/2007
 
 
Prednisone 15mg x 1/day ~ On going recent change 4/3/2008
 


TraciZ
Regular Member


Date Joined Aug 2007
Total Posts : 255
   Posted 5/29/2008 12:10 PM (GMT -6)   
Hi. I just read some of the research and thought it was worth a try. Old Mike warned me that it wouldn't help, because it would dissolve before the colon (it's not enteric coated). It's not a matter of the soy (if it is), because I eat soy products all the time.

This was all an attempt to avoid another course of prednisone.

Anyway, Bigphule, here's the info I posted in another post: (http://www.healingwell.com/community/default.aspx?f=38&m=1129539)

Do any of you remember a post about research on phosphatidylcholine? Someone posted research about it: Stremmel W. Merle U. Zahn A. Autschbach F. Hinz U. Ehehalt R. Retarded release phosphatidylcholine benefits patients with chronic active ulcerative colitis. Gut. 54(7):966-71, 2005 Jul.

I can't find that posting now, but just did a "medline" search and found more research (8) articles indicating that phosphatidylcholine can help reduce inflamation related to IBD.

I'm not a doctor, so I can't understand all of it, but from what I read from the abstracts of these articles, the amounts and types of phosphatidylcholine differ among the studies, but the general consensus is that taking phosphatidylcholine helped at least 50% of the participants, whereas only 10% of the placebo group had a reduction in symptoms. If anyone wants the citations/abstract, please let me know. I have them in a word document and can e-mail them to you. Most of it should be pretty understandable and you can even print it out for your docs, if you want!

Anyway, I began taking 4 (420 mg) capsules of phosphatidylcholine last Friday. It cost $15.99 from the "Vitamin Shoppe" for 100 capsules. (I was having a VERY BAD flare with blood, mucus, D and cramps since at least 4/25.) The cramps and D are gone. I'm having regular solid bowel movements, the bood is trace and I still have some mucus, but am optimistic that'll go away, too. Yesterday, I ate spicy "Popeyes" mashed potatoes & fried chicken, buffalo wings, pizza! I had a little gas, but not much of anything else (just the mucus and trace amounts of blood).

I never began the Rowasa or Canasa my GI rx'd, but switched to the Colazal (from Lialda) on 5/9. I attribute my "remission" to the phosphatidylcholine, although the Colazal may have kicked in after being on it for a week.

From my personal experience and what I've read in medline, I'm a believer in phosphatidylcholine. The only side effect I read was "mild bloating". I thought it was worth a try for me.

I just wanted to put this out there as an FYI. Do with this info what you will...

Best regards!
Tressa 34 (F)
Not sure of my dx- currently UC, maybe Crohn's.
Colazal 3X3/day
Lialda upped to 4/day,
Phosphatidylcholine 4 (420 mg capsules) once/day
Colazal 3X3/day (not generic)
Rowasa at night X 14 days
Canasa BID


Dr-A
Veteran Member


Date Joined Jul 2006
Total Posts : 2105
   Posted 5/29/2008 3:26 PM (GMT -6)   
If it's a matter of it reaching the infected area why not just use it as a retention enema in some distilled water? I don't know anything about it but may be worth a try.
Proctitis DX 1998
Lialda 1x day
Hydrocort Enema As Needed


princess bandit
New Member


Date Joined Jun 2008
Total Posts : 8
   Posted 6/11/2008 2:51 PM (GMT -6)   
TraciZ, thank you for your post! It gives me a lot of hope. I researched phosphatidyl choline 2 days ago. It sounded so promising I went to the health food store that afternoon and bought the same dosage capsules you take. I've been taking 3/day and I think I'm already seeing improvement.

This UC flare isn't as bad as some I've had, but it is persistent. I've had symptoms now for about 3 months. Went to the GI doc in early Apr. Had to go to a different one in the practice since the one I liked and had for years had retired. Thought at first I was going to like this one, but I don't think so now. He upped my Asacol to 9/day, put me on mesalamine enemas, then cortisone enemas, and, now, predisone. After reading all the scary side effects, I'm trying to get off of it as quickly as I can that is safe. I'm down to 7.5mg/day now.

I've always been more alternative method oriented anyway. I went into remission about 10 yrs. ago taking colostrum. Guess I started taking it for granted and cut down to about 2/day. But now I'm taking 9/day. I really feel that the colostrum and the phosphatidyl choline (PS) are what's getting me over this. I sure hope so.
Diagnosed with UC 1992

In remission with no drugs 1998-2001
Remission taking Asacol, 4/day, 2001-2008

Current flare started 3/08
Taking:
Asacol 9/day
prednisone 7.5mg/day (desperately trying to get off!)

colostrum, 480mg, 9/day
Natren probiotics
phosphatidyl choline, 420mg, 3/day


TraciZ
Regular Member


Date Joined Aug 2007
Total Posts : 255
   Posted 6/11/2008 3:33 PM (GMT -6)   
I'm glad that it seemsto be working for you! I gave up on it after 3 weeks. I had seen some improvement, but then got worse again. Just about a week ago, I stopped taking Rowasa at night after taking it about 7 days, even though my doc wanted me to take it for 14 days. I thought I was in remission (I've been bleeding for much of the last 3 years), but just started bleeding again last night:(
Anyway, I'm on a mission to stop the flare. Next week, I have an appt. with a new GI who actually has crohn's and had surgery. Hopefully, she can give me some pointers.
I've also heard bee propolis helps with bleeding, but I haven't tried that, yet. That may be my next hope!

Good luck and I hope that you find an answer!
Tressa 34 (F)
Not sure of my dx- currently UC, maybe Crohn's.
Colazal 3X3/day
Lialda upped to 4/day,
Phosphatidylcholine 4 (420 mg capsules) once/day
Colazal 3X3/day (not generic)
Rowasa at night X 14 days
Canasa BID

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