UC but no pain

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Got2Believe
Regular Member


Date Joined Feb 2007
Total Posts : 436
   Posted 5/29/2008 6:45 AM (GMT -7)   
If anyone has any idea or suggestions about why I have had severe pancolitis for over 3 years and the only time I experienced pain in my bowl movements was during an antibiotic caused flare. I only had pain then for about 2 months.
Could it be that my inflamation is not "severe?" During flares I have lots of bloody D, but it is just amazing to me that I never feel any discomfort. I am just thinking if I am doing something right that I need to keep doing or is this just the norm for a type of UC.
 
 
                                                                                         
28/M/TX single parent of gorgeous 2.5yo girl (revised 5/8/08)
Severe Colitis (pancolitis) since January 9, 2005
currently:  6th week flaring;improving; 2bm/day; very little blood
RX/day:  Currently 10mg of prednisone per day. Lost job and insurance 10/2007 and stopped taking asacol and Imuran cold turkey
OTC: seldom use VSL#3, vitamins & other natural treatments
Diet: SCD helps tremendously, but am not strictly on it.
Other: food combos, enzymes, good posture, chewing more, etc.


love4cats
Regular Member


Date Joined May 2007
Total Posts : 458
   Posted 5/29/2008 7:13 AM (GMT -7)   
In my first flare and by far the worse, I had no pain what so ever. My second flare, which was the shortest, I had the most pain.
 
 
Dx:  UC Proctitis 2006 
Meds:  None so far. Garlic works to ease flares. My GI laughed when I told him and said it was just coincidence. 
Started Meds:  Apr 9 08 500mg 5ASA (salofalk) to ease flare, tapering, stopped. 
Diet:  Regular fresh garlic, Biobest yogurt daily, Omega 3 supplements, very limited junk food, carbs and processed food, low fat diet.  Lots of fresh fruit and veggies (limited potatoes). 
 Added: tumeric and probiotics.
 
 


Meesh
Veteran Member


Date Joined May 2006
Total Posts : 619
   Posted 6/1/2008 10:31 AM (GMT -7)   
I've had pretty severe flares but no stomache pain. Last fall I was getting severe headaches, I have arthrithis in my back from UC ... so lots of other pains but nothing due to my colon. Weird, no? So I guess it's not too unusual. Let's just be grateful!!
Meesh
Diagnosed UC April 27, 2006; mild arthritis in lower back, dx'd May 2008
8 Remicade infusions: 7/21/07; 8/18/07; 10/13/07; 12/15/97; 1/26/08; 3/8/08; 4/19/08; 5/24/08
Current meds & supplements: Lialda, 4 tabs in the morning; Protonix; Lexipro 10 mg; Xanax as needed; Tramadol as needed for arthritis pain; multivitamin w/folate; Culturelle; Fish oil capsules, calcium chews and/or Tums; Past meds: Prednisone 4/06-4/08; Entocourt EC; Rowesa; Asacol; Colazal; Venofer (iron) injections Dec '07; Imuran (extremely bad reaction 2/07)


**NiCoLe**
Regular Member


Date Joined Jan 2008
Total Posts : 39
   Posted 6/1/2008 11:12 AM (GMT -7)   
What do you guys mean by "no pain." Do you not have cramping? Is it just that you go a lot during the day (with blood)? Do you have cramping and urgency to go when you have to? I'm just trying to see where you guys are coming from when you say that you have no pain.
Diagnosed in Jan 2007, but had bowel issues for years
I've been on Asacol (no help) and Prednisone (60mg was the most)
Currently taking Sulfasalazine - 4 pills 2x a day
Hospitalized for 9 days in Feb 2008 (IV steroid)
Was using VSL #3, but it made me throw up (I'm pregnant and nauseous)
Hydrocortisone and Rowasa enemas when needed (which is usually ALWAYS!)
20 weeks pregnant and counting . . . . . .
Prenatal Vitamin and 5 mg Folic Acid
150mg Zantac twice a day (for acid reflux and nausea)


fitmom00
Regular Member


Date Joined Mar 2008
Total Posts : 113
   Posted 6/1/2008 2:29 PM (GMT -7)   
It seems that each flare has it's own personality. My first flare was just bloody D, several times a day. With the 2nd flare came the urgency and tenesemus (sp?) and the crazy need to be near a bathroom at all times. With the 3rd flare came pain (horrible cramps), fever and nausea. They got worse each time for me. I started steroid enemas about 8-9 days ago and am JUST starting to feel halfway normal again - Yeah! Hoping this does the trick to get me back into full remission. But to answer your question, YEP, I've had flares w/ no pain.
Renee
Diagnosed w/ UC in August 2007
Current status: Flare

4 Lialda/day, steroid enema at night, Wellbutrin XL


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5698
   Posted 6/1/2008 3:21 PM (GMT -7)   

I had UC for 12 years and never had the typical pain associated with it.  Subsequently I lost my colon due to the disease, yet still I never had pain.  You can be severely ill and not have pain.  I have since learned that nothing about UC is consistent, predictable, or even the same from person to person.

Sue


dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free

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