I'm sorry you're going through this, and I really understand too. My parents also seemed to think I was exaggerating or using it as an excuse and that is so hard to deal with. Especially when they try to push you into things you feel too sick to do.
I'm almost 23 and I've been seriously considering surgery for a little while now. I'm not in a severe state of health at the moment as you are, but I was previously and know I probably will be again. But I feel that the surgery would go better if I have it done while I am healthier so I can recover quicker. When I think back on all the things I missed out on I sometimes wish I had done it back then... My senior prom was cut to only half an hour because dinner made me sick.. I currently have very few friends because I constantly blow everyone off when I'm not feeling well.. I stopped going to college because when I was there I was always falling asleep or missing class or not being able to concentrate, when I wasn't interrupting to run to the bathroom several times, which can be very embarrassing.
Because we don't always LOOK sick on the outside, it's really hard for people to understand, and I don't know if you're like me, but I think I do a great job of hiding my pain and sickness, so people look at me and see someone who looks healthy but a little skinny, and they don't believe when I tell them it constantly feels like my intestines are being fed through a meat grinder.
Anyway, I'm just kind of babbeling here... I just wanted to let you know that you're not alone in your thoughts and I hope you can get something worked out for you that is best.
Female, 22, Ulcerative colitis (pancolitis) since 1999; GERD; gastritis; oste
openia in hip & lumbar region of the spine from long term prednisone use. Current Meds:
10mg Lexapro (for depression/social anxiety)
Digestive Advantage: Crohn's and Colitis formula (2 pills per day, started 5/14/08)
4800mg Asacol (Four 400mg tablets, three times a day)