fairly new to uc

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New Member

Date Joined May 2008
Total Posts : 3
   Posted 5/29/2008 8:37 PM (GMT -6)   
Hi, Just recently my 16 year old daughter was diagnosed with severe uc per colonostomy. She had severe symptoms for 8 or 9 months. No insurance, but finally took her out of town. We got a good Gi specialist. He started her on Remicade immediately, but didn't work very well, stopped the bleeding pretty much, but did nothing for the dd or the stomach pain. I really enjoy reading this forum, some great advice, and so many different cases. Kind of blows my mind, but very helpful and informative for me. We started methotrexate shots at home on the 23. 2nd shot her numbers were up this past Tuesday for inflamation. This is very scary for me so can't even imagine how she feels. Basically, just wanted to say that since we was diagnosed I have read this forum almost everyday. It is great. Has anyone else tried methotrexate, and if so has it work.

Veteran Member

Date Joined Apr 2006
Total Posts : 733
   Posted 5/29/2008 10:02 PM (GMT -6)   
Sorry about your daughter. I was 15 when I was diagnosed with left-sided UC. I started out with all the weaker drugs. I have never tried Methotrexate, my GI said he wouldn't give it to me because it is dangerous to the liver. I have taken Remicade, it took me almost a year for my diarrhea to settle down. How long did your daughter try Remicade? Right now I am on Humira which is working fairly well. When I was first diagnosed, the Rowasa enemas worked pretty well for me.
Diagnosed with Left-sided UC in 1995 at age 15, Prednisone, Rowasa & Hydrocort. Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Aloe Juice, Canasa, Enotcort, Colazol, Anamantle, Remicade, etc... had 1 inch deep rectal ulcer 2004, put on Remicade, August 2007:Increased Remicade dosage-700mg every 6 weeks,diagnosed w/ Psoriatic Arthritis & Fibromyalgia Current meds: Clorazepate, Lomotil,  Tylenol pm, Lyrica started 1/17/08,  Humira started 4/4/08

Elite Member

Date Joined Apr 2004
Total Posts : 23551
   Posted 5/30/2008 6:03 AM (GMT -6)   
Hi! Welcome to Healingwell :) I'm sorry your daughter has an especially difficult case of this. But I'm glad you are here and reading up on all the info this wonderful forum has to offer. If you should have any questions or concerns, please don't hesitate to ask ok?
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis~Sacroiliitis-epidural injections
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New Member

Date Joined May 2008
Total Posts : 3
   Posted 5/30/2008 3:13 PM (GMT -6)   
Thank you for your replies. She took 3 sessions of Remicade, but didn't work even with the 1st one according to the GI. Red_34, thank you I will gladly ask away. Most of the medication lists are overwhelming. Again thanks to everyone for your response.

Regular Member

Date Joined Jun 2005
Total Posts : 213
   Posted 5/30/2008 3:43 PM (GMT -6)   
I am so very sorry that your daughter is dealing with this and I hope she gets to feeling better soon. Have they tried steroids? I take Remicade but I still flare so I have to get a course of Prednisone pretty regularly to keep mine under control. Good luck and please keep us posted on her progress!
34 year old female
Dx'd 5 years ago
Current Meds: Remicade/6 weeks, Prednisone, Prevacid, Sustenex, Lialda, Lexapro, Synthroid, Iron, vitamin, Fish Oil
Expecting first child 12/08 via gestational surrogate

New Member

Date Joined May 2008
Total Posts : 3
   Posted 5/30/2008 4:35 PM (GMT -6)   
Yes she takes prednisone..currently taking 15 mg thanks for asking
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