I can't stand this effing disease, seems the more drugs I take the more illnesses I get. I really just can't live my life like this anymore, flaring and getting sick and dealing with all this crap. Plus my kidney disease is not going so well either, not so bad but not good.
I figure, I have to pee 4-6 times a day, what's a little poo to go along w/it?
I'm not planning on doing this tomorrow but, I just want to weigh out my options. I think I am a candidate for jpouch. I will of course try remicade first and maybe even Humira if I can somehow get on that.
Plus I have crapped my pants twice in the past week and not too happy about that. luckily at home and both times I was right next to the toilet fighting my pants off.
I guess a switch just flipped in me and I just don't want to deal with this anymore......I may end up needing a kidney transplant in the future (uknown if my MCD is FSGS, if MCD I should have been in remission by now and am not) and this just tops it. I just want to deal w/it and move on.
Beth, 32 ~ small flare - hoping caused by aspirin - hydrocortisone e's
Major Flare Sept/Oct 07
UC dx'd 03/00 (Proctosigmoiditis); Pancolitis since 09/07
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd 09/07 - partial remission since 03/08
Prednisone 5mg 1xday (tapered from 60 = ), Simvastatin 20mg 1xday, Diovan 160mg 2xday. Enalapril 20mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs. Do you have edema? If so, check your blood protien level!