thanks everyone for your responses. I really appreciate it!! Surgery for me is a last resort but I am now viewing it as not an end but a possible beginning. There is just so much I want to do and accomplish and I am putting off additional school again.
I went to the jpouch.org site and from some of the posts there, it does seem that it may still not be over after the sugery, there are still complications and I need to play the odds as if all the negatives will happen so I can be mentally prepared if so, if I choose to do the sugery.
mbx5, I am so sorry you went through that!!! I can empathize, in the seventh grade I got my period all over my pants and the whole school knew, you can only imagine how cruel 6,7 and 8th graders can be at that time. I am still scarred from that. Luckily my best friends stuck with me and are still my best friends to this day!
I am terrified of crapping myself in public now, but I think I just need to realize that when I have to go, I have to go and not to try to hold it, like I did the other night, but the bathroom was next to the kitchen where we were all hanging out and it was going to be symphony of destruction. Which is less embarrasing than crapping yourself, so I guess I am going to get used to that real fast.
Beth, 32 ~ small flare - hoping caused by aspirin - hydrocortisone e's
Major Flare Sept/Oct 07
UC dx'd 03/00 (Proctosigmoiditis); Pancolitis since 09/07
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd 09/07 - partial remission since 03/08
Prednisone 5mg 1xday (tapered from 60 = ), Simvastatin 20mg 1xday, Diovan 160mg 2xday. Enalapril 20mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs. Do you have edema? If so, check your blood protien level!