I am new to healingwell and have spent some time looking around in the forums and noticed quite a few people are using Remicade. I am currently on Colozal, 6-MP, and Canasa, but have been struggling still for the past 8 months since I added the 6-MP to my daily meds, which I was skeptical about
, but no side effects as of now. This has helped to a point where I don't have diarrea anymore, just soft but formed stools, but am still going 4-6 times a day with urgency. The urgency is what makes this disease the worst. My last conversation with my doctor included that the next step would be remicade. I have read horror story's about
complications due to remicade (increased chance of lymphoma, liver problems not detected, death), especially when used along with drugs such as 6-MP. From reading other posts and seeing so many people on remicade, I am somewhat less worried about
taking this next step, but has anyone had more of the serious type complications that are possible due to remicade? Are the things I'm finding on remicade simply b/c those are the ones written and posted about
the most, not the benefits?
I'm hoping that healingwell will help in my struggles and that I will be able to help others. From some things I've read so far I'm excited to try different things in hopes of bringing myself into remission. It's been a couple years since I've felt good.
23yr old male, diagnosed October 2003
9 Colozal/Day, 1.5 tabs 6-MP, 1000mg Canasa
1200mg fish oil/omega3 capsules/3x daily, 2 probiotics capsules/daily, 1mg folic acid