does everyone bleed when they flare?

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Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 5/30/2008 1:23 PM (GMT -7)   
Just curious.  I always do and that is part of what scares me.
Beth, 32 ~ small flare - hoping caused by aspirin - hydrocortisone e's
Major Flare Sept/Oct 07
UC dx'd 03/00 (Proctosigmoiditis); Pancolitis since 09/07
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd 09/07 - partial remission since 03/08
Prednisone 5mg 1xday (tapered from 60 = ), Simvastatin 20mg 1xday, Diovan 160mg 2xday. Enalapril 20mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.  Do you have edema? If so, check your blood protien level!
 


AngelTT
Regular Member


Date Joined Jun 2005
Total Posts : 213
   Posted 5/30/2008 1:38 PM (GMT -7)   
Most times I have, but right now I am in the middle of a flare and have not had much bleeding. My colon doesn't want to give me any kind of hint or create patterns so I actually know what to expect! The bleeding is scary and one of the things the docs try to control b/c of how it affects your health. I used to bleed a lot and my doc told me not to focus so much on the blood, quit looking in the toilet. That man is lucky to still have his head attached to his shoulders. yeah
34 year old female
Dx'd 5 years ago
Current Meds: Remicade/6 weeks, Prednisone, Prevacid, Sustenex, Lialda, Lexapro, Synthroid, Iron, vitamin, Fish Oil
Expecting first child 12/08 via gestational surrogate


expecting226
Regular Member


Date Joined Jul 2007
Total Posts : 402
   Posted 5/30/2008 1:43 PM (GMT -7)   
I only bleed if I let the flare progress far enough. Thankfully, I usually slide into a flare - it doesn't just come on overnight. I have trained myself to watch my symptoms very carefully. If I start sliding downhill, I start taking steps to rectify the situation before the blood comes.

Stomach discomfort is usually my first symptom with more frequent stools from there. Because my UC always starts in the rectum, I don't have much D at first. But, I can tell from the way my stomach feels and from the fact that I have more bowel movements per day. That's when I increase my daily Asacol and go back to the Rowasa and try to deal with it that way.

My first two flares had bleeding. I think both of those were because I didn't know enough to catch things before they worsened. My third and fourth flares didn't respond to the increase in my Asacol and Rowasa, so the blood eventually came. I think I have been able to avoid other major flares/bleeding by increasing the meds at the first signs.
Wearing many hats: Mother, Wife, Daughter, Professional, Sister, Friend
 
Current Medications:
- Asacol (4 pills, 3x per day)
- Rowasa (1 enema daily, as needed)
- Folic Acid (1 mg, 1x per day)
- Calcium (600 mg, 2x per day)
- Multi-Vitamin (1x per day)


stephanie
Regular Member


Date Joined Jan 2004
Total Posts : 40
   Posted 5/30/2008 1:46 PM (GMT -7)   
Every time, scares me too and completely saps my energy.


AngelTT
Regular Member


Date Joined Jun 2005
Total Posts : 213
   Posted 5/30/2008 1:50 PM (GMT -7)   
I must admit that has been the toughest thing since about Jan for me. I have fallen asleep at my desk at work several times, sitting up. And I didn't have a lot of warning, just going more frequently. I had weird symptoms this time around like nausea, weight loss and back pain. Still doesn't make sense but my doc is taking it one step at a time. I think the key is just looking for "unusual" things (in our lives that is sort of funny, right?)
34 year old female
Dx'd 5 years ago
Current Meds: Remicade/6 weeks, Prednisone, Prevacid, Sustenex, Lialda, Lexapro, Synthroid, Iron, vitamin, Fish Oil
Expecting first child 12/08 via gestational surrogate


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 5/30/2008 1:53 PM (GMT -7)   
Yeppers - usually blood is the first indication that a flare is pending for me even if I don't have any other symptoms.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis~Sacroiliitis-epidural injections
To help Healingwell - click here: DONATE
 
 
 
 

 
 


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 5/30/2008 2:22 PM (GMT -7)   
Not my first symptom, but yes, it's the one that sends me over the top.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Avascular necrosis in both shoulders is my "forever" gift from steroid therapy.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 5/30/2008 2:33 PM (GMT -7)   
Red_34 said...
Yeppers - usually blood is the first indication that a flare is pending for me even if I don't have any other symptoms.

Same here. If the flare gets bad, then I get the dripping/gushing blood, but even if I'm in the mildest of flares, I always have some red colored bits of stool, mucous mixed with blood, or some streaks on the toilet paper.

jano437
Veteran Member


Date Joined Jul 2005
Total Posts : 1613
   Posted 5/30/2008 3:25 PM (GMT -7)   
Yep, I am a bleeder.
Diagnosed July 2005 with Pancolitis
Asacol 4 tabs 3 times daily
Pro-Bio
Forvia
calcium
Diosmin(for leg and vein support)


quincy
Elite Member


Date Joined May 2003
Total Posts : 30090
   Posted 5/30/2008 10:40 PM (GMT -7)   
no....I hadn't bled with a flare for over 14 years until last summer when I went off the estrogen patch and hormones went completely wonky...I was shocked even though it was just a teensy bit.
None since then.

q
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 5/30/2008 10:59 PM (GMT -7)   
Stomach pain increases, then extra gas, then smelly gas (yucky I know) then blood stripping on the stool. If I catch it I also increase my meds and use rowasa everynight for about a week or so then slowly cut down. Before I was given rowasas to treat it from both ends the blood would drip or spray with loose stool/D and lots of mucous...funny I always get to feeling great and my stool becomes so perfect about a month or two before I have a flair. Hopefully one day God will spare us all from the awful thing called IBD...

Post Edited (bbc) : 5/31/2008 12:12:18 AM (GMT-6)


TraciZ
Regular Member


Date Joined Aug 2007
Total Posts : 255
   Posted 5/31/2008 6:19 AM (GMT -7)   
The blood is the worst part for me. It's been pretty much constant for the past 3 years. When it's really bad, it's like it's my TOM. That's what took me back to the GI for a second colonoscopy last August. The blood is the scary part for me, too, because my doc says the longer I bleed, the the higher the risk for cancer.
Tressa 34 (F)
Not sure of my dx- currently UC, maybe Crohn's.
Colazal 3X3/day
Lialda upped to 4/day,
Phosphatidylcholine 4 (420 mg capsules) once/day
Colazal 3X3/day (not generic)
Rowasa at night X 14 days
Canasa BID


madabs
Regular Member


Date Joined May 2008
Total Posts : 387
   Posted 5/31/2008 1:55 PM (GMT -7)   
Bleeding is one of my biggest symptoms and I'm often amazed at the different hues and consistancies it takes on.
UC since 10/05, first symptoms felt as early 1983
canasa and lialda daily
 


BigLucy
Regular Member


Date Joined Mar 2007
Total Posts : 413
   Posted 5/31/2008 3:15 PM (GMT -7)   
I've had UC over ten years and blood is a constant for me, not lots but always there. It increases if I skip too many days not using the Rowasa enema--it probably would be best to use Rowasa every night, but I just get sick of sticking it up there--I'm talking over ten years of enemas folks!

bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 5/31/2008 3:25 PM (GMT -7)   
BigLucy said...
I've had UC over ten years and blood is a constant for me, not lots but always there. It increases if I skip too many days not using the Rowasa enema--it probably would be best to use Rowasa every night, but I just get sick of sticking it up there--I'm talking over ten years of enemas folks!
I know what you mean Lucy...that area is for things to go OUT not in!  LOL....

quincy
Elite Member


Date Joined May 2003
Total Posts : 30090
   Posted 5/31/2008 8:41 PM (GMT -7)   
Tapering properly helps you find a maintenance dosage...nightly isn't the best..maybe for very few.

q
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

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