the roses or the meds? you decide!!

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Veteran Member

Date Joined Jul 2007
Total Posts : 714
   Posted 5/30/2008 5:01 PM (GMT -6)   
I've been in remission now for 9 months. A lot of blood work done in that time but inflammation markers have remained normal.
I've suffered a lot with IBS and GERD during that time. I just discovered it is due to being intolerant to Asacol.
So I've elimianted Asacol and I've tripled my probiotic dosage. I have 1BM a day - completely normal. It seems I can eat and drink anything I want and my bowel handles it.
I'm wondering now should I go tell my doctor I'm off Asacol and request some other mainteance med? I know this is probably the right thing to do but for the first time in 4 years I have no IBS nor IBD symptoms. Should I risk upseting my digestive system again with another daily dosage of 5ASA meds or sit back, smell the roses and trust in my probiotic treatment.
All thoughts gladly considered
Med free for a bit as I needed a break from Asacol
"Whatever you do in life don't berate yourself too much nor contragulate yourself too much. Your choices are half chance. So are everybody elses'"

Regular Member

Date Joined Dec 2007
Total Posts : 137
   Posted 5/30/2008 6:24 PM (GMT -6)   
I would tell your GI whats going on but honestly if it aint broke, don't fix it.
Diagnosed UC 12/2007
Prednisone 15mg x 1/day ~ On going recent change 4/3/2008

Regular Member

Date Joined Jul 2006
Total Posts : 320
   Posted 5/30/2008 6:51 PM (GMT -6)   
It seems to be such a delicate balance....that if things were going well, I'd just rock those probiotics and enjoy it!

Dx'D in 1990. Remission 1991 - 1/2005
Both flares were in extremely stressful times in my life
Colonoscopy 10/2005 80% of Colon diseased, or as I like to say "Intestinely challenged"
*****9/2007 dumped my GI who I refer to as "Satan" New GI, new med TOTAL remission with in 2 weeks.
Colazal 9 capsules a day*****

Regular Member

Date Joined Oct 2007
Total Posts : 320
   Posted 6/2/2008 10:55 PM (GMT -6)   
Would you please let us know what probiotic you are using? Thankyou.
"We are dreamers, shapers, singers and makers..." - Elric, Technomage
  • 28yo male. Brisbane, Australia. Diagnosed at 16yo. Currently enjoying severe pan-colitis.
    - Participating in the Golimumab trial as of 1st May, 2008;
    - 2x Colazide, twice a day; 25mg of 6-MP a day; 1xAllopurnol;
    - 1x teaspoon of Metamucil 3 times a day;
    - 1x BIOCeuticals UltraBiotic 45 + 1x SB FlorActiv twice a day.

Veteran Member

Date Joined Jul 2007
Total Posts : 2148
   Posted 6/3/2008 8:33 AM (GMT -6)   
Hi Damo,

That is great that you have found remission and what was bugging your stomach.

From my personal experience this is my opinion.

Some of us can have remission w/out any meds, could be days, weeks, months or years.

Enjoy it but definintely contact your GI, in case you do need meds in the future, that way it will have been discussed if/when you need to go back.

Wishing you a very long remission!!!
Beth, 32 ~ small flare - hoping caused by aspirin - hydrocortisone e's
Major Flare Sept/Oct 07
UC dx'd 03/00 (Proctosigmoiditis); Pancolitis since 09/07
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd 09/07 - partial remission since 03/08
Prednisone 5mg 1xday (tapered from 60 = ), Simvastatin 20mg 1xday, Diovan 160mg 2xday. Enalapril 20mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.  Do you have edema? If so, check your blood protien level!

Regular Member

Date Joined May 2007
Total Posts : 458
   Posted 6/3/2008 9:37 AM (GMT -6)   
I don't take meds between my flares.
Dx:  UC Proctitis 2006 
Meds:  None so far. Garlic works to ease flares. My GI laughed when I told him and said it was just coincidence. 
Started Meds:  Apr 9 08 500mg 5ASA (salofalk) to ease flare, tapering, stopped. 
Diet:  Regular fresh garlic, Biobest yogurt daily, Omega 3 supplements, very limited junk food, carbs and processed food, low fat diet.  Lots of fresh fruit and veggies (limited potatoes). 
 Added: tumeric and probiotics.

Regular Member

Date Joined Jul 2007
Total Posts : 402
   Posted 6/3/2008 10:44 AM (GMT -6)   
There are many, many reasons for continuing to take maintenance medications between flares. I'll mention just a few... First and foremost, they stave off future flares... they may not eliminate flares forever, but they do reduce the number and can reduce the severity. Second, they can help deter the development of dysplasia - precancerous cells. For me, those two reasons, alone, are enough to continue with my maintenance meds.

Bottom line... you may be fine now, but you will flare again and you will need meds again. Best to try and find something that works for you while you are feeling better, instead of when you are in distress.

There are other meds, besides Asacol, that you can try. Colazal or Lialda, for example, or 6-mp. It may not have been the mesalamine that was bothering you... could have been the pill coating. You should be working with your GI to find a good fit for you.
Wearing many hats: Mother, Wife, Daughter, Professional, Sister, Friend
Current Medications:
- Asacol (4 pills, 3x per day)
- Rowasa (1 enema daily, as needed)
- Folic Acid (1 mg, 1x per day)
- Calcium (600 mg, 2x per day)
- Multi-Vitamin (1x per day)

Veteran Member

Date Joined Aug 2007
Total Posts : 2204
   Posted 6/3/2008 1:44 PM (GMT -6)   
I had problems with Asacol, too, but have done well on the older drug, azulfadine (sulfasalazine). I stay on a maintenance dose that's half the therapeutic dose as a measure of insurance. As I understand it, ASAs are similar to aspirin. Of all the drugs one might have to "stay on," they are relatively safe and free from long-term deleterious effects.
Diagnosed with ulcerative colitis spring 1999.
Maintenance dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal.

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