I am so sorry you are going through this. I am doing the steriod e's and some days I think I am getting better and some I think I am getting worse, I just don't know. If I am not significantly better, I have to call my GI this Wed (will have been on the e's for two weeks) and I don't want to go back to a high dose of pred. I am on 10mg right now.
I'm on azathioprine and my next step is remicade, I already passed those tests but I am afraid to try it, b/c if it doesn't work then I have to go the surgery route, which I am not ready to face yet.
Before doing that I do want to get a second opinion.
Beth, 32 ~ small flare - hoping caused by aspirin - hydrocortisone e's
Major Flare Sept/Oct 07
UC dx'd 03/00 (Proctosigmoiditis); Pancolitis since 09/07
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd 09/07 - partial remission since 03/08
Prednisone 5mg 1xday (tapered from 60 = ), Simvastatin 20mg 1xday, Diovan 160mg 2xday. Enalapril 20mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs. Do you have edema? If so, check your blood protien level!