So most of you know the story of my recent flare - but for those who don't here's a quick recap:
Flare started out of the blue in March - FIVE days after meeting my new GI and feeling GREAT! Steroids (40mg pred) weren't working, so doc had me admitted to the hospital for IV steroids and IV flagyl. Three miserable days later, I'm feeling better and get to go home with a pred taper.
Well, now I've completed my pred taper. about three or four days before I'm due to be done with at 40-30-20-10 taper, I miss my dose of pred!!! Things haven't been good since then :( I've been having urgency, loose bms, pink/red-ish mucous, increased bms, night bms (which never went away even while on pred), and cramping.
I know I need to call the doc on Monday. I REALLY don't want to deal with steroids anymore. I've still got moon-face. I don't want to deal with the insomnia. So, what's next? Do I ask for Remi? Do I wait for him to recommend it?
To add to all of this, my in-laws are coming for a 10 day visit and will arrive on Friday. We've recently purchased a boat, and as my sunburned self will show, we've spent a lot of time on the water. I don't want my wakeboard season ruined because of a crappy flare!!! Grrrr...