Proctitis - Confirmed on 5/23/08 :(

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Prairie Kat
New Member


Date Joined Jun 2008
Total Posts : 4
   Posted 6/1/2008 11:23 AM (GMT -6)   
I was diagnosed w/Colitis on May 10, 2008 - and after my Colonoscopy on May 23, 2008 was told that it was Proctitis - From my understanding - abdominal pain was not one of the symptoms of Proctitis, however, ever since my Colonoscopy - I have had horrible pains & cramping along with diarrhea (it has been green 90% of this time, is this common). I have been put on Asacol 400mg - 3 pills twice daily. Are the pains & cramps common with this disease? I have felt horrible!! ANY Help would be appreciated!!

Thanks,

Kathy

Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 6/1/2008 11:50 AM (GMT -6)   
Hi, welcome to Healingwell PrairieKat :) Yes, pain and cramps are common even for UP. I was initially diagnosed with UP and one of the main symptoms I had was D, bleeding and abdominal pain. But what suprises me is that you are not any rectal meds? Usually with proctitis, rectal meds are used first because Asacol doesn't always make it down to the rectum which is where the inflammation is. Did the cramping and D start after you started Asacol? If so, you can be intolerant of Asacol or it may take your body a while to get used to the med. Are you on any fiber supplements or probiotics? If not, please look into them. We have many posts here on HW about these.
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~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
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pb4
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Date Joined Feb 2004
Total Posts : 20577
   Posted 6/1/2008 11:55 AM (GMT -6)   
You definitely need rectal meds for the proctitis and also as Red mentioned, probiotics daily and indefinitely is also a good idea since research is further discovering that they can benefit us with symptoms as we do tend to have bacterial over-growth issues because of IBD...I'm sure the sooner you get on rectal meds though, the sooner you'll start to feel better.

What is with docs that don't perscribe rectal meds when it's confirmed a patient is dealing with proctitis???

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


Prairie Kat
New Member


Date Joined Jun 2008
Total Posts : 4
   Posted 6/1/2008 12:03 PM (GMT -6)   
Thank You for the quick responses!!
I was on Asacol from 5/10/08 - 5/20/08 - then I had my GI appointment on 5/20 then my Colonoscopy on 5/23 when i was re prescribed the Asacol - I seemed to be somewhat "normal" b4 my Colonoscopy, but I have been miserable ever since!!

I have my follow-up visit 6/04 to go over all of his findings from my Colonoscopy - I will ask him about the Rowasa (this requires a prescription doesn't it?)


Kathy

Dr-A
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Date Joined Jul 2006
Total Posts : 2105
   Posted 6/1/2008 2:04 PM (GMT -6)   
My doc did the same thing when I was diagnosed. Stuck me right on asacol for months and months with the same crap happening everyday. At the time I didn't know any better, but that doesn't happen now, lol. Yeah, the cramping is usual
Proctitis DX 1998
Lialda 1x day
Hydrocort Enema As Needed


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 6/1/2008 6:00 PM (GMT -6)   
Rowasa would require an RX...I like cortifoam myself, it's a steroid based foam enema and is the only rectal meds that aid me when needed...BTW, I've noticed that since I started taking probiotics daily about 4 yrs ago now, I havn't had to use rectal meds and that may be coincidence but I've never gone that long in my 17 yrs of having crohns-colitis without having to use rectal meds when my proc*** acts up, so it seems it hasn't acted up since I started the probiotics...hope it stays that way!

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


love4cats
Regular Member


Date Joined May 2007
Total Posts : 458
   Posted 6/2/2008 10:45 AM (GMT -6)   
Definitely get on rectal meds, my GI told me that orals will not reach the area of inflammation with proctitis. I have used Salofalk suppositories and they worked almost immediately. Personally I would try the suppositories first, they are easy to insert and you can be on your way immediately.

I did not have any pain with my first flare, lots with my second and a little with my third.
 
 
Dx:  UC Proctitis 2006 
Meds:  None so far. Garlic works to ease flares. My GI laughed when I told him and said it was just coincidence. 
Started Meds:  Apr 9 08 500mg 5ASA (salofalk) to ease flare, tapering, stopped. 
Diet:  Regular fresh garlic, Biobest yogurt daily, Omega 3 supplements, very limited junk food, carbs and processed food, low fat diet.  Lots of fresh fruit and veggies (limited potatoes). 
 Added: tumeric and probiotics.
 
 


Prairie Kat
New Member


Date Joined Jun 2008
Total Posts : 4
   Posted 6/10/2008 5:39 PM (GMT -6)   
*UPDATE*
Went to my follow-up appointment on 6/04/08 to discuss the results of my Colonoscopy & Ultrasound - he took another stool sample to check for C-Diff and I received a call on 6/06/08 to tell me that the sample was positive for C-Diff - so now I am on Flagyl for 2 weeks!! ACK!!

Prior to all this - from 5/27 - 6/05 every other day - I was suffering from extremely BAD cramps, low grade fevers and bloody diarrhea - My GI Dr. acted very confused and didn't understand why I was in so much pain, "You only have a mild case of proctitis". (This really aggravated me - he tried to blame it on a Cyst he discovered on my right ovary after my ultrasound on 5/23). I had informed him that on 4/05 - 4/11 I had been on a very strong antibiotic for pneumonia and that he might need to know this information. He seemed that it wasn't very relevant information at the time - but decided that he would take another stool sample for C-Diff!!
GUESS WHAT!?! - It was positive!!!

I was taken off the Asacol caps (400mg) and was Rx'd Rowasa enemas nightly. - and was RX'd an Anti-Spasomtic med for the cramping.

I decided that I wasn't going to take either the Rowasa, the Asacol or the Anti-Spamotics - and ALL of my cramping, fevers, & diarrhea have completely stopped.

I have decided to seek a new GI closer to my home, current the one I attend is in Denton, TX and I live in Grand Prairie!!

Any recommendations for Physician in the Arlington, Texas or Grand Prairie, Texas areas - would be GREATLY Appreciated!!

Thanks,

Kathy

Post Edited (Prairie Kat) : 6/11/2008 8:27:37 AM (GMT-6)


jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 6/10/2008 5:44 PM (GMT -6)   
Kathy, it's possible that you're sensitive to Mesalamine, which is the ingredient in both Asacol and Rowasa. If this is the case, Cortifoam may work better paired with Colazal, which is a different 5-ASA. Mesalamine gives me even worse diarrhea and cramps, but I can take Colazal.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from steroid therapy.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


quincy
Elite Member


Date Joined May 2003
Total Posts : 30993
   Posted 6/11/2008 1:56 AM (GMT -6)   
It's good the doc did another test. Hope you feel better soon!!!
q
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


mzladyt
New Member


Date Joined Feb 2009
Total Posts : 18
   Posted 2/27/2009 2:17 PM (GMT -6)   
Hi everyone,
I have just been diagnosed with proctitis and will start my rectal meds tonight. I would dearly love some info as I am new to all of this.

Tennie

Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 2/27/2009 3:05 PM (GMT -6)   
     Hi Tennie!  I've had proctitis for ten years.  What are your questions?  I'm in remission now...so chin up!  I also was told that it is easier to treat UP than UC that has traveled further into the colon. smilewinkgrin
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.


mzladyt
New Member


Date Joined Feb 2009
Total Posts : 18
   Posted 3/13/2009 2:15 PM (GMT -6)   
Hi and thank you for answering my post. So far I am taking the suppositories but next thursday i will go to the doc to see what he does next. What can I expect? Meds for the rest of my life for this? Will it get worse? My hubby seems to think that I brought this on myself from taking diet pills. eyes   He loves to blame. I look forward to talking to you more.
 
Tennie

madabs
Regular Member


Date Joined May 2008
Total Posts : 388
   Posted 3/13/2009 2:39 PM (GMT -6)   
How did you respond to the suppositories? Whether you are you better or worse will likely dictate what your doc recommends for a next step. Yes, it likely you will be on some sort of meds to maintain remission if you have reached it. However, not all people require or choose to reamain on medications indefinitely. You get a say in your treatment too!
UC diagnosed 10/05, first symptoms 1983
Starting remicade 3/24/09
* asacol 12/daily * rowasa pm * cortifoam  
 Culturelle Probiotic - prilosec - metamucil capsules
past rx: colozal, lialda, canasa, 6mp
i can't complain, but sometimes i still do.  lifes been good to me so far.  -joe walsh


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 3/13/2009 4:14 PM (GMT -6)   
     I blamed my condition on the Atkins Diet but the GI doctor said it was just a coincidence.
     Yep, you most likely will have to take meds the rest of your life.  Although I do have a friend who was diagnosed with UC over ten years ago and now is off all meds and doing great..so, you never know.
     I go to my GI doctor next Wednesday.  Hope my white count didn't drop down any further.  It was 2.4 and I lowered my dosage of 6MP to 50 mgm one day and 25 the next.  I've had ulcerative proctitis for over ten years.
     I live in NJ, don't know any docs in your neck of the woods.  Perhaps you could find one online.  I found a great GI surgeon who I went to for a second opinion.  He said he wouldn't recommend surgery for me...this was last year after I was discharged from the hospital and still in an awful flare....he told me to hang in there and I did.  It took seven months but I feel good now.  Keeping my fingers crossed because this is the time of year I usually get sick..gulp.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.


mzladyt
New Member


Date Joined Feb 2009
Total Posts : 18
   Posted 3/13/2009 4:16 PM (GMT -6)   

The suppositories have really helped me. It's hard for me to remember them though. I already take some meds everyday so that would not be a problem to take a pill. I guess I will know more when I see him next week. Right now I just have so many questions. Thanks for replying for me.

Tennie


You can have this world, Give me Jesus.


mzladyt
New Member


Date Joined Feb 2009
Total Posts : 18
   Posted 3/23/2009 2:54 PM (GMT -6)   
I was told by my doctor that since the canasa was helping that I am on a need to see basis. I can stop taking the canasa until I start having a flair up. No other meds at all to take. Does that sound right?
 
Tennie
You can have this world, Give me Jesus.


quincy
Elite Member


Date Joined May 2003
Total Posts : 30993
   Posted 3/23/2009 3:11 PM (GMT -6)   
You should taper them to every second night for a few weeks..if all is fine, go to every third night..etc. You should stay at a maintenance dosage of at least once a week or stop taking them when at once a week.

Eventually, you'll realise what your needs are regarding meds...takes a while.
Just don't wait too long before you start remedicating once symptoms start.

The 6 Asacol daily should be continued.
quincy


*Heather* Status..Asacol  (3 x2 daily); Salofalk enemas nightly for flares, tapered to maintenance  mild flare nightly enemas
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate). @ bedtime
~various digestive enzymes as needed; started Omega 3 
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 

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