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Bennie
Veteran Member


Date Joined Nov 2006
Total Posts : 552
   Posted 6/2/2008 12:05 AM (GMT -6)   
Does anyone know which meds are ones you need to be more careful about being in the sun?
Bratcat is on asacol, 6-mp, remicade, and 25 mg prednisone.  Which of these are the most problematic with the sun. We know she has to be careful. She always wears a high SPF sunscreen. She isn't purposely going into the sun to get some color (although she really could use it) but just being outside helping in the yard or walking around. She got more pink than she normally does.
--Mom of bratcat (17 years old)--
Daughter bratcat was diagnosed with pancolitis October 2006
Current meds:
Asacol - 4 pills/3Xday, 2 tabs 6-mp/1.5 tabs 6-mp every other day, 25 mg prednisone, Remicade
 
11/14/06 - started prednisone; 1/28/07 - finished prednisone!
3/3/07 - began to taper off hydrocortisone sloowwly! Summer 2007 - slowly began tapering Rowasa. 9/07 -- flaring? Nightly Rowasa. 9/21/07 -- added hydrocortisone enemas. 9/30/07--added prednisone. 10/31--started 6-mp, stopped the enemas. Started lowering prednisone. 3/08-another flare!


quincy
Elite Member


Date Joined May 2003
Total Posts : 30842
   Posted 6/2/2008 12:34 AM (GMT -6)   
3 out of 4 for sure.....all cause photosensitivity...maybe the Asacol as well, but haven't checked it out.

I'm not a sun person, but would do a high sunscreen if I were forced to be out in the sun .

Some sunscreens are better than others....a combined physical as well as chemical barrier work well.

You could do the research on which would work better.

quincy
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 6/2/2008 5:53 AM (GMT -6)   
Since being on 6mp, I found that I burn much easier if I forget the sunscreen. A week or so ago, I burnt while on the boat (I know, bad me - I forgot the sunscreen!) and my thighs got sunburned. I ended up with water blisters for a burn that I didn't even consider that bad. So please have her be careful. And have her put on the sunscreen 30 minutes before she heads out and reapply often.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis~Sacroiliitis-epidural injections
To help Healingwell - click here: DONATE
 
 
 
 

 
 


tjf
Veteran Member


Date Joined Dec 2005
Total Posts : 3238
   Posted 6/2/2008 6:50 AM (GMT -6)   
Personally I haven't noticed any difference in the sun BUT I put on a super generous amount of at least 30 spf before I go into the sun (say the pool). On a regular day I use body lotion that has a built in spf of 15.
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-9 a day, Acidopholis Pearls, Nexium

http://www.healingwell.com/donate
Co-Moderator UC Forum


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 6/2/2008 8:38 AM (GMT -6)   
The Imuran/6MP for sure! I totally forgot about the add'l sun sensitivity until Q reminded me. I'm using at least a 45 SPF and still getting burned. Sigh...
Pan-colitis and GERD diagnosed May 2003
Osteopenia diagnosed Feb 2006
Status:  Getting close to remission!?!?!
 
Asacol 12 per day,  Azathioprine 100mg, Aciphex, Forvia, and Pro-Bio
Last dose of pred: May 25
 
Co-Mod for the UC forum:  Keep HealingWell running smoothly:  www.healingwell.com/donate


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 6/2/2008 10:17 AM (GMT -6)   
Just talked with the doc - Asacol has skin sensitivity as well. What fun...
Pan-colitis and GERD diagnosed May 2003
Osteopenia diagnosed Feb 2006
Status:  Getting close to remission!?!?!
 
Asacol 12 per day,  Azathioprine 100mg, Aciphex, Forvia, and Pro-Bio
Last dose of pred: May 25
 
Co-Mod for the UC forum:  Keep HealingWell running smoothly:  www.healingwell.com/donate


quincy
Elite Member


Date Joined May 2003
Total Posts : 30842
   Posted 6/2/2008 3:20 PM (GMT -6)   
Barrier sun screens....they'd be titanium oxide, zinc oxide. Do the research. The burns you get today will/can haunt you when you're older.

Seriously folks...

q
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 6/2/2008 7:01 PM (GMT -6)   
i never had any trouble on any of those, but what did happen while i was on the pred was i got these odd spots on my neck and chest. it was the pred reacting with the sun, and my silver necklace. Mainly it was the pred, i had them other places, but they were darker and there were more of htem where my necklace was.
so be careful about that.

julee70
Regular Member


Date Joined Oct 2007
Total Posts : 486
   Posted 6/2/2008 9:40 PM (GMT -6)   
I've been on 6MP for a while and never had any sun sensitivity. I've actually been burning way less than when I was younger, too! I was out in the sun a lot last summer and never had any problems. I know that everyone is different; but this is just my experience with it. I was never warned about sun sensitivity by my doctor, though I know they often leave out that kind of stuff.
-------
UC for the last ten years
Current Meds: 6MP since 2006, Cortifoam
Past Meds: You name it; I've tried it. (Asacol, Colazol, Pentasa, DiPentum, Rowasa, Canasa, Cortenema, sulfasalazine)
5ASA drugs don't work for me. Canasa seems to make me worse.
Alternative treatments I have had success with: Acupuncture, Hypnotherapy


Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4509
   Posted 6/2/2008 10:26 PM (GMT -6)   
Thank you for the info. about Asacol causing sun sensitivity, dakota -- another thing none of my doctors told me. IFor the past year or so, my eyes seem to have a really hard time adjusting to going outside and coming back in, even if it's not all that sunny outside. It seems to take me a much longer time to adjust...I have no idea if this is the same thing as sun sensitivity or not. Sorry if this is off topic.
24 years old
Diagnosed with UC March 2007; yet to go into complete remission
Asacol 4 tablets 3x/day
Rowasa (generic) - nightly; Canasa (1,000 mg) in the morning
Nature's Way Primadophilus Reuteri 2/day; Chewable multivitamin; Metamucil; Viactiv


kmach33
Regular Member


Date Joined May 2008
Total Posts : 21
   Posted 6/3/2008 7:22 AM (GMT -6)   
Since I have started taking 6-mp in the last year, my eyes have been much more sensitive to light. I have had to have the lighting decreased around my desk at work or else I get a pretty bad headache.
23yr old male, diagnosed October 2003
Medication:
9 Colozal/Day, 1.5 tabs 6-MP, 1000mg Canasa
Supplements:
1200mg fish oil/omega3 capsules/3x daily, 2 probiotics capsules/daily, 1mg folic acid


colitis-owns
Regular Member


Date Joined Jun 2008
Total Posts : 41
   Posted 6/3/2008 7:47 AM (GMT -6)   

I work in a Dermatology Hospital..

I deal Mainly with Kidney Transplant patients who use Azathioprine and Prednisolone long term. I deal with them because they tend to get skin problems i.e skin cancers after being on treatment long term.

I myself am on Azathioprine and use SPF 50 from April til October and also wear hats when out in the sun !! also try and avoid the sun from midday til evening !!

Trust me its best to stay out of the sun if possible, use high factor sun block and also wear hats if on Azathioprine or Prednisolone.

It is safe if you take pre-cautions.

 

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