Quincy Question or anyone who can help.

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therearemiracles
Veteran Member


Date Joined Dec 2006
Total Posts : 3588
   Posted 6/2/2008 8:13 AM (GMT -6)   
I have Left sided colitis and near cecum (mild) to reach these areas (cuz I have no idea where the cecum is) do you think I need both oral and rectal? I'm trying to do the least as possible with the meds since they effect bad.
 
Has anyone broke a asacol in half and tried with starting with half and working their way up to more tablets? I know it says don't break or chew.
Colonoscopy & Endoscopy 7/27, Left sided colitis and near cecum (mild)
Stopped Colozal 10/1/07 was on it for 7 weeks, side effects
Working with new doctor getting stool, urine and blood tests, waiting for results. starting back with ASACOL  6/1/08
 


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 6/2/2008 8:24 AM (GMT -6)   
Asacol are VERY hard tablets. I've never seen one broken. Also - the coating on the outside is was keeps the med from being dissolved until it reaches the intestines. So, breaking it would negate that effect.
Pan-colitis and GERD diagnosed May 2003
Osteopenia diagnosed Feb 2006
Status:  Getting close to remission!?!?!
 
Asacol 12 per day,  Azathioprine 100mg, Aciphex, Forvia, and Pro-Bio
Last dose of pred: May 25
 
Co-Mod for the UC forum:  Keep HealingWell running smoothly:  www.healingwell.com/donate


hedgehog
Regular Member


Date Joined Jul 2007
Total Posts : 102
   Posted 6/2/2008 10:23 AM (GMT -6)   
The cecum is the first part of the colon, so rectal meds wouldn't reach this area.  You'd need oral meds like Asacol that I think dissolve in the terminal ileum (last section of small intestine) and cecum.
 
Tara
-female - 32 -diagnosed June 2006
-last 25cm of colon affected
-Salofalk enemas stopped working
-xylocaine enemas put me in remission
-Asacol 2 800mg pills 2x/day
-budesonide enemas as needed


therearemiracles
Veteran Member


Date Joined Dec 2006
Total Posts : 3588
   Posted 6/2/2008 10:32 AM (GMT -6)   
Is it possible for one area to heal and not the other or is it when you have both spots you'll always have both? It just stinks and I hate dealing with this.
 
I go to the bathroom 3-4 in the am and usually nothing all day, but the feeling of "maybe I have to go" is always there. Thanks all for responding.
 
 
Colonoscopy & Endoscopy 7/27, Left sided colitis and near cecum (mild)
Stopped Colozal 10/1/07 was on it for 7 weeks, side effects
Working with new doctor getting stool, urine and blood tests, waiting for results. starting back with ASACOL  6/1/08
 


hekela
Veteran Member


Date Joined Nov 2006
Total Posts : 731
   Posted 6/2/2008 10:43 AM (GMT -6)   
i know the feeling you are talking about. i think you should give it a little more time if the asacol has helped you get to this point.

i also used to have that "i may need to go at any moment" feeling and i don't any longer.
it could also be PARTLY psychological since you're used to going during the day.

why not start rectal meds and keep up with the asacol?
have you made any diet changes?
29, happily married, stay at home mom to 2.5 year old son. due to have another boy 9/17/08
UC (probably pancolitis, but no c-scope yet), diagnosed June 2006, started having major symptoms sometime in January 2006, about 3 months after childbirth. 2nd flare (minor) may 2007 after taking caprylic acid for 2 weeks.

-Prednisone 8/28/06-2/28/07. and again may '07, 8 week course.
-Prayer! asacol, probio, ground psyllium husk, prenatal, folic acid, cal-mag

may you live all the days of your life.


kmach33
Regular Member


Date Joined May 2008
Total Posts : 21
   Posted 6/2/2008 1:04 PM (GMT -6)   
I am currently in the same situation of going a handful of times in the morning then usually fine the rest of the day but just have that feeling. A large part of it I do feel is phsycological as I was used to going all day. My weekends are usually better than the weekdays, and I think this is b/c my mind is not thinking about it all day, while at work sometimes I dwell on it. I recently started the suppositories and have seen some improvement, atleast with the urge in the mornings. My dr put me on the suppositories b/c he felt the 6mp was helping heal the upper part of the tract but wasn't helping the rectum. Stools are mostly formed. Can't say I'm going any less at this point though.
23yr old male, diagnosed October 2003
Medication:
9 Colozal/Day, 1.5 tabs 6-MP, 1000mg Canasa
Supplements:
1200mg fish oil/omega3 capsules/3x daily, 2 probiotics capsules/daily, 1mg folic acid


quincy
Elite Member


Date Joined May 2003
Total Posts : 30389
   Posted 6/2/2008 2:46 PM (GMT -6)   
Hi..ditto hedgehog (that used to be my nickname when I had very short red hair..lol!)

If you're not wanting or can't be on 5ASA meds, then consider the topical steroids Entocort and suppositories.

You have to deal with the cecum...for if you don't, the rectal inflammation will still give you grief.

If you have left-sided (up to the splenic flexure??)...there's a new steroid topical that's just being introduced that will be released in the colon as well as the terminal ileum.

You do have some options. Remember that the topical steroids will have some symptoms, but not as much as systemic.

Worth a try, methinks.

quincy
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


therearemiracles
Veteran Member


Date Joined Dec 2006
Total Posts : 3588
   Posted 6/2/2008 2:50 PM (GMT -6)   
Thank you all for takinig the time to respond. The diet is helping a lot of but tough no doubt.

Colonoscopy & Endoscopy 7/27, Left sided colitis and near cecum (mild)
Stopped Colozal 10/1/07 was on it for 7 weeks, side effects
Working with new doctor getting stool, urine and blood tests, waiting for results. starting back with ASACOL  6/1/08
 


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 6/2/2008 3:04 PM (GMT -6)   
Therearemiracles, another option since you're having trouble with the Asacol tablets is to talk to your GI about Pentasa. It's mesalamine, the same drug that's in Asacol, but it's in a capsule form and dissolves in the end of the small intestine, near the cecum. It's often used for people with Crohn's who have involvement of the small intestine. Because it's a capsule, it could be a little easier to swallow.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Avascular necrosis in both shoulders is my "forever" gift from steroid therapy.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


ThePostmodernIrony
Regular Member


Date Joined Feb 2007
Total Posts : 344
   Posted 6/2/2008 3:08 PM (GMT -6)   
I know what you mean about alot in the morning and then feeling alright but thinking you have to go. Also, I have a pill case on my key chain and i definitely broke an asacol there, its an offwhite color inside - but like someone else said, probably loses effectiveness when broken. Actually there was one in one of my bottles from the pharmacy and i was thinking i should probalby bring it back for the price of these things. Just wanted to share my stories, be well...
UC diagnosed January 05

Past Meds: Azasan (Imuran) - piercing chest pains after six days so tried different brand aka Azathioprine - morning nausea /didn't really help after more than 6 months, canasa (tried but got worse at the time - connected or not laying off for now), dicyclomine (still flared), Remicade - 7 treatments (stopping because no dramatic changes), allergy shots (03-07)
Current meds: Asacol 2 - 3x, Aciphex (acid reflux), prednisone boo 25 mg now tapering, multivitamin, caltrate 2x a day. probiotic (florasmart), astelin (nasal spray as needed for allergies), fosamax (bone density), levbid

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