PLEASE HELP CONFUSED?

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4MY2KIDS
Regular Member


Date Joined Nov 2007
Total Posts : 25
   Posted 6/2/2008 8:07 PM (GMT -6)   
OK I GUESS I SHOULD START FROM THE BEGINING. IT ALL STARTED BACK IN OCT 3 2007. I WAS FEELING BAD I GUESS STARTING ON OCT 1 2007 WITH HIGH FEVER (101.5 - 102.5) DD AND VOMITING AND STOMACH PAIN. I WENT TO ER ON OCTOBER 3 AND THEY DID A DIRECT ADMIT THOUGHT IT WAS MY GALLBLADDER. SO THEY DID CAT SCAN BLOOD WORK ETC. THE CAT SCAN CAME BACK AND SAID IT WAS PANCOLITIS. MY DOC SCHEDUDLE ME FOR A FLEX SIG THE NEXT DAY AND BIPOSIES. HE TOLD ME IT WAS INFLAMMATION BUT DIDNT THINK IT WAS PANCOLITIS. SO I HAD IV THERAPY ANITBODICS AND PAIN MEDS. I WAS DISCHARGED FROM THE HOSPITAL ON OCT 6, 2007. AND WAS TOLD TO TAKE ASACOL 400 MG 3 TIMES A DAY. MY DOC SAID HE WANTED TO DO A FULL COLONSCOPY ON NOV 22, 2007. NO PROBLEMS SINCE THEN. SO I WENT TO DO MY COLOSCOPY ON NOV 22, 2007 AND HE DID BIOPSIES AS WELL. HE THEN TOLD ME I HAD MILD INFLAMMTION AND THAT HE THOUGHT EVERYTHING WAS OK AND IT WAS ACUTE DIEASE. SO I CONTIUED TO TAKE MY ASACOL AS HE PRESCRIBED AND HE TOLD ME I COULD TAPER DOWN TO TWO A DAY AND THEN STOP THE MEDS AFTER THE TIME HE TOLD ME SO. SO I DID AS HE SAID. THEN BACK IN MAY OF 2007 I WAS REALLY SICK AGAIN WITH HIGH FEVER OF (102.5) VOMITING, DIAREAHHA (SPELLING SORRY) SO I CALLED THE OFFICE AND MY DOCTOR WAS NOT ON CALL. SO I EXPLAINED TO THE OTHER DOCTOR WHAT WAS GOING ON. HE WAS GOING TO TELL ME TO GO THE ER, BUT I TALKED HIM OUT OF IT, HE CALLED ME IN LEQUVIAN, PREDISIONE AND TOLD ME TO TAKE ASCAOL 400 MG X 9 TIMES A DAY (3600 MG) SO I TOOK IT ANT IT TOOK about 6 DAYS FOR THE FEVER, VOMITING AND DIHAREAAH TO GO AWAY. SO I WENT BACK TO MY DOCTOR FOR A FOLLOW UP VISIT AND HE SAID NOW ITS NOT ACUTE ANY MORE THAT I HAVE UC. (REALLY CONFUSED HOW CAN HE TELL WITHOUT DOING ANOTHER SCOPE) SO IM NOW TAKING MY ASCAOL AGAIN, AND MY RIGHT SIDE STILL HURTS LIKE CRAZY PAIN EVERYDAY.  IM SO CONFUSED. CAN ANYONE OFFER ANY ADVICE.  DO I HAVE UC OR NOT?
 
CURRENT MEDS
ASCAOL 400 MG 9 PILLS A DAY
 
 
 
Love in Christ  Teresa


Dr-A
Veteran Member


Date Joined Jul 2006
Total Posts : 2105
   Posted 6/2/2008 8:14 PM (GMT -6)   
Ack, TURN OFF THE CAPS! TOO HARD TO READ!

Sounds like UC. You need to tell the the GI doc that the asacol is not working. Don't wait around for a year like I did. Also, ask what part of the intestine is inflammed and ulcerated. This should be very specific in what they tell you. If they don't know they need to scope you again, or just find a new doctor.
Proctitis DX 1998
Lialda 1x day
Hydrocort Enema As Needed


newucpat
Regular Member


Date Joined Apr 2008
Total Posts : 54
   Posted 6/2/2008 8:52 PM (GMT -6)   
D_A when you say that you waited for one year, were you not seeing any difference at all?? the reason i am asking is bacause my husband is on Asacol which he started in first week of march the same day when he got diagnosed with UC. Up until end of may there were improvements but there was a minor flare after every 3-4 day. the blood was not stopping. he had 2-3 bowel movements but he had lot of stomach cramping, bloating and gas. he was loosing weight after each minor flare. finally after reading about the rectal meds on this website so much, i requested it and his GI prescribed hydrocortisone enemas for three months. so for the last two and a half weeks he is a little better. i was thinking may be meds always take this much time to make you feel better but now i am really questioning. after taking rectal meds his bleeding is slightly better but still easily seen in the stool or on top of it. do you think that we should also request some other medicine??
wife of a UC Patient diagnosed on 3/3/08 started Asacol 3/7/08 2-3x a day
takes mutlivitamin/mutlimineral tablet, folic acid, vit. C, vit. E, selenium, turmeric


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 6/2/2008 10:05 PM (GMT -6)   
newucpat said...
D_A when you say that you waited for one year, were you not seeing any difference at all?? the reason i am asking is bacause my husband is on Asacol which he started in first week of march the same day when he got diagnosed with UC. Up until end of may there were improvements but there was a minor flare after every 3-4 day. the blood was not stopping. he had 2-3 bowel movements but he had lot of stomach cramping, bloating and gas. he was loosing weight after each minor flare. finally after reading about the rectal meds on this website so much, i requested it and his GI prescribed hydrocortisone enemas for three months. so for the last two and a half weeks he is a little better. i was thinking may be meds always take this much time to make you feel better but now i am really questioning. after taking rectal meds his bleeding is slightly better but still easily seen in the stool or on top of it. do you think that we should also request some other medicine??

Does your Husband have pancolitis? If so he should try Rowasa enemas (same ingredient that's in Asacol)..also he may have to up his Asacol as GI docs like to start low then go higher...at least that's what they did with me.

Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 6/3/2008 5:10 AM (GMT -6)   
I'm glad to see you asked your questions here on HW Teresa :) Sorry I didn't have much time to chat with you the other night. It was bed time and my hubby was pestering me to go to bed. Couple of questions for you. When you go to the bathroom, is it almost always loose? Do you ever see any blood? If so, what color is the blood? Do you see mucous - either white slimy stuff or clear? Did you have any and/or all of these symptoms at one time or another?

A doctor typically will not go from saying your colitis to having Uc without confirmation of a scope/biopsies and/or blood tests. That's like saying that someone has a cold and turn around and tell them they have emphysema with no testing. I think you should find another doctor or at least call this doc up and ask for clarification? Ask how he can tell it has changed, what did the biopsies reveal, did the scope show ulceration, if so, how far was the ulceration.

I recommend you read up on the articles and information in the resource section of this forum. Admin, myself and other mods have added some great and informative pieces to read.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis~Sacroiliitis-epidural injections
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