Wondering if any of you know about this steroid.

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Blue220
Regular Member


Date Joined May 2008
Total Posts : 191
   Posted 6/2/2008 9:13 PM (GMT -6)   
I'm new here, so I have not read all the 300 some posts, so I'm sorry if this has been mentioned already.

I was diagnosed with colitis last year, and it's been a darn rocky road ever since. Recently, I have been stuck in this flare that I just couldn't escape. I switched over from asacol to lialda last thanksgiving, and I was doing better. Until now, of course. My doctor put me on entocort and it seems to work pretty well so far. I haven't been taking it for very long, so we'll see for sure later. I am just wondering if anyone else is taking it, and I would like to know how it's working for you. It doesn't have the same wild side effects as prednisone and a few others out there, which was the only reason(besides the flare) why I agreed to try it.
21 years old
Diagnosed with moderate/severe UC June 2007(undiagnosed a while before that. It was terrible).
Now taking Lialda 3x a day, and just started taking Entocort(3 pills in the morning) on 5/29/08. Hopefully that helps. I've had this flare I cannot get rid of, and it's cramping my entire life. Oh, and my summer vacation.
Severely anemic, now taking 3 65mg iron tablets a day.
Also might have celiac disease. In the process of being tested for that.


Severin
Regular Member


Date Joined Oct 2007
Total Posts : 320
   Posted 6/2/2008 10:23 PM (GMT -6)   
Here's some info about the drug that Entocort is based on called Budesonide.

Budesonide has a very high first pass metabolism, meaning the body breaks it down and gets it out of your system faster (from my understanding). This results in it having fewer side effects from the long term metabolites related to drugs like Prednisone.
"We are dreamers, shapers, singers and makers..." - Elric, Technomage
  • 28yo male. Brisbane, Australia. Diagnosed at 16yo. Currently enjoying severe pan-colitis.
    - Participating in the Golimumab trial as of 1st May, 2008;
    - 2x Colazide, twice a day; 25mg of 6-MP a day; 1xAllopurnol;
    - 1x teaspoon of Metamucil 3 times a day;
    - 1x BIOCeuticals UltraBiotic 45 + 1x SB FlorActiv twice a day.


jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 6/2/2008 10:30 PM (GMT -6)   
I was on Entocort for quite a while. It seemed to help with the inflammation. Unfortunately, I'm just really sensitive to steroids and did get some nasty side effects. So still a good idea to use it as briefly as you can.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Avascular necrosis in both shoulders is my "forever" gift from steroid therapy.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


quincy
Elite Member


Date Joined May 2003
Total Posts : 30976
   Posted 6/3/2008 1:34 AM (GMT -6)   
Hi...welcome to the forum.

It's a "topical" med that's released in the first part of the terminal ileum and then into the colon. It will be absorbed through your intestines into the bloodstream, and isn't considered a systemic medication...meaning it will target your whole body.

It's a lower dosage of steroid, but you can still have side effects.

I do suggest you request rectal 5ASA retention enemas to add to your already 5ASA regimen.

Where in the colon is your UC...limited or throughout?

Are you seeing a GI for your UC or your GP?

quincy
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


Blue220
Regular Member


Date Joined May 2008
Total Posts : 191
   Posted 7/12/2008 11:36 PM (GMT -6)   
OK, I just figured out kinda how to get back to this post. I couldn't find it.. I'm new still. =]

I'm seeing my aunt, who is my GI doc for this. I keep in touch with her a lot.

The entocort worked very good for me, and I'm down to just taking one pill a day now. Today was the first day of that, which went well.

However, I'm up to taking three iron pills a day as I have been for about a month, and I don't know if that's the cause of my intense and never ending stomach pain, or if that's something else.

Whatever it is it's really killing my stomach. I'm back to not being able to stand up straight as I was when I had such bad pain my guts before those got better. Ugh!
21 years old
Diagnosed with moderate/severe UC June 2007(undiagnosed a while before that. It was terrible).
Now taking Lialda 3x a day, and just started taking Entocort(3 pills in the morning) on 5/29/08. Hopefully that helps. I've had this flare I cannot get rid of, and it's cramping my entire life. Oh, and my summer vacation.
Severely anemic, now taking 3 65mg iron tablets a day.
Also might have celiac disease. In the process of being tested for that.

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