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Regular Member

Date Joined Jun 2008
Total Posts : 41
   Posted 6/3/2008 7:39 AM (GMT -6)   
Hi there everyone.
Dunno where to start really....
Well ive had indeterminate pancolitis for 3 years now and have been glancing at this site for a while now although i never got round to joining it. I was diagnosed after stopping smoking and having all sorts of problems with blood and urgerncy (guess you all know what i mean, right?)
Have been on pentasa tablets, pentasa suppositories, Prednisolone for a while and finally Azathioprine for over a year now which has kept things really low key 90% of the time which is great otherwise i'd still be on those darn steroids.
I still really limit certain foods such as loads of spice and fibre etc but have been able to go on holiday since starting Azathioprine which would have been unthinkable a year ago.
I was wondering if people that are in remission still carry around all the baggage of wanting/needing to know where all the toilets are at all times??
sorry if it was a long boring post

Veteran Member

Date Joined Dec 2005
Total Posts : 3238
   Posted 6/3/2008 7:42 AM (GMT -6)   
Hi and Welcome!! Even in remission I have to know at all times where the closest bathroom is. I don't know if that will ever go away. I think when you go through what we do w/ flares it is hard to let go of those insecurities.
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-9 a day, Acidopholis Pearls, Nexium
Co-Moderator UC Forum

Elite Member

Date Joined Mar 2003
Total Posts : 10407
   Posted 6/3/2008 8:06 AM (GMT -6)   
Welcome to HealingWell! Your post was not at all boring, it helps to know a little about your history when we communicate.

I don't have to know the precise location of the bathroom is, but I'm still hesitant to go anywhere that may not have readily available public facilities. One of the best things for me was when I could stop asking to be seated close to the bathrooms in restaurants.
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Avascular necrosis in both shoulders is my "forever" gift from steroid therapy.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.

Elite Member

Date Joined Apr 2004
Total Posts : 23551
   Posted 6/3/2008 9:05 AM (GMT -6)   
Hi there, welcome to HW :) I'm glad you finally joined us. I think that after having this for so long, it's an automatic given to scope out where the bathrooms are. I do it now and don't even realize I'm doing it. And other times it never even comes across my mind such is if I'm busy talking to someone or doing something. For me, just knowing where the bathrooms are is just a security thing. If I know a bathroom is available then I feel less anxious.
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis~Sacroiliitis-epidural injections
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