Sorry you're having such a difficult time, Libby. I'm not sure what will help with the extra-intestinal symptoms, but it seems that an immunosuppressant might be worth trying. It seems logical that it would help systemically with all sorts of auto-immune symptoms.
I just noticed your cecum is also involved, so probably Canasa alone may not be enough. Talk to your doc about
Azathioprine or 6-MP. I'm concerned about
the affected area spreading if not properly treated and becoming pancolitis. Good luck.
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from steroid therapy.
Colazal, Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.