Wife in hospital

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uofmcamaro
Regular Member


Date Joined Jan 2008
Total Posts : 20
   Posted 6/3/2008 10:33 AM (GMT -7)   
Just got out yesterday.  She is having a rough time.  She'll wake up at least 4 to 6 times a night having to go to the bathroom and all that comes out is blood.  Her doc. says her blood counts aren't fading, so he released her, but at times she gets a bit dizzy.  Is this normal? 
 
Also, someone give me the info on Ramicade?  He is wanting to start her on that and I have done little research on it.  Seems to be kinda pricy.  I'm sure insurance will cover much of it, but still.  Is it pretty good stuff?

AngelTT
Regular Member


Date Joined Jun 2005
Total Posts : 213
   Posted 6/3/2008 10:43 AM (GMT -7)   
Remicade is all that has worked for me. Sounds like she does need some serious meds so she can quit bleeding and get to feeling better. Does he at least have her on steroids in the meantime? If they have tried a lot of meds on her and they aren't working I would definitely try the Remicade. My insurance covers it once I got through the deductible and co-insurance. Good luck - I hope she feels better soon!

34 year old female, Diagnosed 5 years ago
Current Meds: Remicade every 6 weeks, Prednisone 20mg, Prevacid, Sustenex, Lialda, Lexapro (anxiety), Synthroid, Iron, vitamin, Fish Oil
Expecting first child 12/08 via gestational surrogate!!!!


uofmcamaro
Regular Member


Date Joined Jan 2008
Total Posts : 20
   Posted 6/3/2008 10:46 AM (GMT -7)   
Good thing we met the deductible this weekend in the hospital. We'll see from there. He has her on steroids I know of. We were sent home with Dr. orders for about 4 or 5 perscriptions. She has her consult with her Dr. next week and they will figure out the details from there I suppose.

jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 6/3/2008 2:00 PM (GMT -7)   
I was on Colazal, Azathioprine and Entocort (a steroid) and still going 15 times a day with lots of pain and blood. Remicade had me in remission within a month. Yes, it can have some serious side effects in a small number of cases, but then so can all the other drugs we take.

I get my remi at the doc's infusion center, so it's seen as a specialist office visit. I pay $35 and the insurance pays the rest. It usually runs $4-5 thousand per infusion, and the infusions are generally every 8 weeks.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Avascular necrosis in both shoulders is my "forever" gift from steroid therapy.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6447
   Posted 6/3/2008 7:05 PM (GMT -7)   
UofMCamaro, welcome to Healingwell!

Yes, I was sick as ever; same thing...lots of blood and very dizzy. I had tried most of the meds and Remi put me into quick remission and I've been there ever since (3 years now!) and doing well. No side effects and feel good. My insurance covers most of the cost too; it's not cheap but worth it for me.Hope this helps, and hope your wife if feeling better soon.
Carol

Remicade - will have my 22nd infusion on June 12.
Vitamin B-12/Biotin, Probiotics
 
Co-Moderator for the UC Forum
 
 

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