Ugh..Am i ever going to get off the Pred??

So sorry. I am sympathetic to your plight. My daughter is fighting a similar fight. She is down to 5mg, and experiencing nausea and a bit of D. We are not upping the level yet, and I hope they consider upping your other meds before putting you on just more Pred. My daughter is on 6mp, and 6 Asacols still. It you go back to an IV steroid you have to begin weening all over again, probably from 50 or so. On the other hand, if it is what works to stabilize your colon, you have to do what you have to do. Get to a very good doc who sees this daily. and keep reading on this site. You will learn of many options open to you.
Hang tough.

---

Daughter,14 diagnosed 1-08 w/ UC .learning from you all.
Rowasa, Asacol, Prednizone 50mg, major flare, Hosp. @U of C, Comers. IV steroid, no food, then low residue, home.
Now, began mp6, beginning taper of Pred, now 45mg, horrible acne, moon face, and fearful of future.
trying probiotics, Omega 3, and keeping up with doc visits.

I couldn't get off Prednisone. My doctor started me on Imuran and when we finally got the dosing correct, it seems to be working and I slowly got off the Prednisone (after nearly a year.) Don't worry, you have lots of options yet. It seems that often times the first flare can be the worse. Especially finding what treatment works for you.

---

UC diagnosed Dec. 2006
Azathioprine 200mg/day
Prednisone 0 ! (After nearly 1 year)
Multivitamin, B complex vit., fish oil, calcium, fiber supplement, probiotic, adrenal support

Like sasquatch said, you have a number of options yet. Many of us here
have gone thru the terrible steroid days, I had to deal with it for a long time
until I found an antiinflammatory agent that worked for me. I wish you the
best, and hopefully your GI can find the right combo for yourself. Keep
reading the posts on this site, as they are very helpful, and it shows you
are not alone.

--------------------------------------------------------

yuckygut

diagnosed 1998

now off prednisone and colazal

drink 1 Haldi daily

Hey Katrina!

So wow you are totally my twin sister! I was diagnosed October 2005 when I was 16 (I'm 19 now) and I was on 40mg of Prednisone for 1 WHOLE YEAR!!!! It sucked sooooo bad. Because of Prednisone I gained 50 pounds (and I was not thin to begin with) had the moonface, irritability, acne, increased appetite, and depression. Same as you my GI doc tried to taper me off every so often when my symptoms would start to lighten up but I could never get lower than 20mg without going into a full blown flare again. I was also doing Canasa Suppositories and homeopathic vitamin supplements as well. I even tried VSL #5 probiotics mixed into applesauce. Boy was that gross. Nothing was working and I had to finish second semester of my junior year through a home hospital school program with a tutor. It sucked majorly. I literally was alone at home for about 8 months during my first year of diagnosis. I couldn't leave the house with constant D and my friends were grossed out and thought I was a party pooper-literally. To top it all off I got C-Diff on top of a flare and boy was that fun. I wasn't respond to C-Diff antibiodics either. I was in the hospital for a week. Anyway, eventually my GI doc got a clue and saw that I had a pretty severe case of left sided UC so he suggested I try Remicade. It's an IV infusion once every weeks that I started August of 2006 and it is a MIRACLE drug!!! I've been in "remission" ever since. I have mini flares every once in a while but nothing compared to my first year with UC. I finished Senior year of high school with highest honors and just finished my first year of college with no problems. Remicade is amazing. I'll admit I'm a little afraid of what being on Remicade for the rest of my life will do to my body as far as side effects go, but I can't think of that because nothing is worth more than getting your life back. I'm so sorry you're dealing with this and just want you to know that things may suck now, but it does get better! You can still be a relatively normal teenage girl. You just have to find your right combo of drugs (ask your doc about Remicade), understand your body and how UC affects you, and keep positive.

Good Luck Girl! We're all in this together!

Ashley

_______________________________________________________________________________________

Female, Age, 19, DX w/ Severe Left sided UC October 2005
Present Meds: Remicade Infusion every 8 weeks since August 2006

Past Meds: Canasa Sups, 40 mg Prednisone Daily for 1 year, Miralax Daily, Ginger Supplements

Ladies and Gentlemen,
Please have them monitor your heart. I was pulled off Pred after it weakened my heart. I had to keep taking larger and larger doses to stop the bleeding. Plus the 40 pound water weight gain did not help anything either. That is what they think was wrong with my heart and they are hoping it recovers like the rest of me. The only thing it limits me in is being outside in the heat (OH DARN! :) ). I workout but do not do strenuious exercise. So please be very careful.

---

Remember to eat crow while they are small. Big feet really hurt going down.

UC - 3 years so far
Remicade every 8 weeks
Asacol 4/3 times a day
Flaxseed
Fossamax
Calcium
Gas-X

Fingers crossed 'cause I am working on being pregnant.