Any suggestions for help!

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d923
New Member


Date Joined Jun 2008
Total Posts : 2
   Posted 6/3/2008 3:06 PM (GMT -7)   
Hello,
 
It's my first time here. Although I am not the one with the disease, it's my father. He's 53 years old and was diagnosed last year. I am looking for any suggestions of relief for him. All of the medications here are brands that he has been on, his colitis is somewhat under control, but other problems are arising such as extreme skin rashes with uncontrollable itching, swellin in one knee and severe bone and body aches. I feel like all these doctors do is continue to give him prescription after prescription. I must tell you that he has a horrible diet, he has struggled with his weight most of his life, he is 6 feet, about 330 pounds, and has felt more depressed than ever since this diagnosis. He has not felt good in two years and I'm not sure what direction to lead him in.
 
Any advice would be greatly appreciated.

AngelTT
Regular Member


Date Joined Jun 2005
Total Posts : 213
   Posted 6/3/2008 3:14 PM (GMT -7)   
I am not an expert on the arthritis since I am just getting it myself, but Celebrex is what my doc recommended. I too get periods of extremely itchy rashes all over. So far my doc has me take Benadryl until the cycles subside a bit, then a Zyrtec every day after that. A steroid shot might also help. I'm sorry your dad is going through all of this. You'll get some great advice on this site.

34 year old female, Diagnosed 5 years ago
Current Meds: Remicade every 6 weeks, Prednisone 20mg, Prevacid, Sustenex, Lialda, Lexapro (anxiety), Synthroid, Iron, vitamin, Fish Oil
Expecting first child 12/08 via gestational surrogate!!!!


Mellie
Regular Member


Date Joined Mar 2008
Total Posts : 110
   Posted 6/3/2008 3:50 PM (GMT -7)   
Has he tried probiotics like VSL#3 for the colitis? Also...if he can be convinced to follow a better diet his joints and tummy will thank him! I know when I limit sugar and eat healthy I have less joint pain and colitis issues. Good luck!
Diagnosed with Crohns/Colitis in 2004. Currently taking Azulfidine 500 mg/3 x 3 day, Synthroid. Have had joint complications such as pyroderma gangrenosum in ankles as complication of IBD. Started Humira March 2007


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 6/3/2008 4:03 PM (GMT -7)   

Arthritis is one of the possible extra-intestinal symptoms of UC.

It would be helpful, however, to know what medications your father is taking now. Prednisone can cause joint swelling and pain. It can also cause very painful death of bone tissue in the joints. Remicade often causes itching. Imuran can cause liver problems with resulting itching and skin discolorations.

I recommend checking with the GI before taking Ibuprofen, Naproxen, Celebrex or any other NSAID pain reliever. Some of us tolerate them okay, but they can cause intestinal bleeding and may lead to bad flaring of the UC. Start with Tylenol, then contact the doctor if that isn't adequately taking care of the pain.

Dietary needs are highly individual. Some of us see that certain foods bother us or that restrictive diets seem to help; others eat a normal diet and see no relationship between their diet and symptoms. Most of us tend to avoid foods that are very high in fat or fiber, though not all.


Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Avascular necrosis in both shoulders is my "forever" gift from steroid therapy.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


kim123
Veteran Member


Date Joined Jul 2006
Total Posts : 1201
   Posted 6/3/2008 4:22 PM (GMT -7)   
At the risk of taking a beating here, it sounds to me like he could have a fungal problem. Skin conditions, inflammation(arthritis), weight issues, depression, and yes, even colitis can all be attributed to fungus. Interesting he has all these symptoms, especially when you tell me he has a horrible diet. My advice, eliminate all processed foods, processed sugar, grains, yeast for 2 weeks and see if he doesn't feel much better. Does he crave bread, pasta or sugar? Fungi in our body need these foods to survive. Another indicator. Of course, all the meds he has been on could certainly be contributing to that, as well. If you always do what you've always done, expect the same result. He needs to try something other than just trying different drugs to help him feel better. Only 'he' can make the choice to do that though.

d923
New Member


Date Joined Jun 2008
Total Posts : 2
   Posted 6/4/2008 9:34 AM (GMT -7)   

Thank you for your response. A possible fungus issue was brought to our attention. I myself know that changing his eating habits and eliminating all of these antibiotics that are polluting his body would help, But, trying to change a man who has been set in his ways for 50 years is a frustrating struggle. I also do not feel like he has the right doctor. Do you have any reccomendations for a specific doctor? I feel like with the help of a very attentive and encouraging doctor he may be more inspired for change. We are in the Los Angeles area. Any referrals? Anyone?

Again, thank you to all who have responded. He doesnt know that I am in this forum so I am anxious to show him all of your responses!!

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