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New Member

Date Joined May 2008
Total Posts : 2
   Posted 6/4/2008 11:43 AM (GMT -6)   
Has anyone experienced headaches after stopping Prednisone? If so how long until they went away? I'm also feeling very sluggish since I stopped the prednisone. Is this normal?

Veteran Member

Date Joined Jul 2006
Total Posts : 2105
   Posted 6/4/2008 12:07 PM (GMT -6)   
Yes, only time I ever get headaches is on a taper.......   couple weeks off and on.   Just par for the course I suppose. 
Proctitis DX 1998
Lialda 1x day
Hydrocort Enema As Needed

Elite Member

Date Joined May 2003
Total Posts : 30853
   Posted 6/4/2008 1:15 PM (GMT -6)   
I've never been on pred, but I would assume it to be normal since it can cause hormonal fluctuations. Most women can relate to the hormonal ups and downs and headaches.

Some men do get headaches hormonally related, especially if they have migranes.

The other thing is that it could be tension headaches (pred can cause muscle changes and pressing on some nerves can cause can jaw clenching) and it might be helped by massage or a chiropractor.

*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

Regular Member

Date Joined May 2007
Total Posts : 169
   Posted 6/4/2008 1:54 PM (GMT -6)   
I've been having awful headaches the past couple of months. Maybe 2-3 a week. I've been off prednisone for about 4 weeks now, after a year-long taper. I'm sure that has something to do with them. I take 1300 mg Tylenol which usually helps a little (though not totally.) If they keep up I'm going to go see the Doc for some stronger pain killers, or figure out why I'm getting them for sure. But I'd imagine after being on Pred. for so long, it will take a while for it to eliminate from my body.
UC diagnosed Dec. 2006
Azathioprine 200mg/day
Prednisone 0 ! (After nearly 1 year)
Multivitamin, B complex vit., fish oil, calcium, fiber supplement, probiotic, adrenal support

Regular Member

Date Joined Jan 2008
Total Posts : 154
   Posted 6/4/2008 3:05 PM (GMT -6)   
I got headaches from tapering too fast recently.
Diagnosed in spring 2005 at age 28
Currently on 12 asacol pills a day + Entocort
40 MG Pred cycle stating 3/26

Mommy pooh
Regular Member

Date Joined Apr 2008
Total Posts : 131
   Posted 6/4/2008 8:50 PM (GMT -6)   
I get major withdrawal headaches any time my steroid dose is lowered. Even a while later when the headaches are less frequent, I can still get what I call "stress headaches" when I've had a long, hard, or stressful day. My adrenal glands just can't handle the load. I've been on steroids 10 months this time and I wonder if my adrenal glands will ever function properly. When I get one of those BAD headaches I have to take Lortabs. If it's not very bad, I can usually get relief from Tylenol.
  • 25 years old
  • Ulcerative Colitis since Sept. 2004
    • 1st flare Sept-Nov 2004
    • 2nd flare Aug. 2007-present
  • Currently taking 1000mg Dipentum, 50mg 6MP, and weaning off Entocort at 6mg, 2 Lialda, Digestive Advantage Chrons/Colitis, and Women's One a Day


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