Posted 6/4/2008 6:57 PM (GMT -6)
The news tonight said people who used the drugs before the age of 18 I believe. It might have been even younger. My doc has always said that they do not know the long term effects of Remicade and I can't stay on it for too long. Like everyone else I am wondering what the heck I am going to do since they have tried every other medication on me. sad
34 year old female, Diagnosed 5 years ago
Current Meds: Remicade every 6 weeks, Prednisone 20mg, Prevacid, Sustenex, Lialda, Lexapro (anxiety), Synthroid, Iron, vitamin, Fish Oil
Expecting first child 12/08 via gestational surrogate!!!!

Posted 6/4/2008 8:53 PM (GMT -6)
Maybe more information will be released. My mother takes Enbrel for her arthritis. I wonder if that will be approved for UC. She hasn't had any problems with it but this makes me worried.
Jessica 26/F 30mg pred
dicyclomine 10Mg as needed
Citalopram 20 MG
Culturelle once daily
omeprazole(for acid reflex)
Tried (Entorcort EC 9ml/day and Prednisone, Asacol ,colazal)

Posted 6/4/2008 9:27 PM (GMT -6)
Melatonin is a natural TNF blocker but I thibk you'd have to take mega doses...
Posted 6/5/2008 7:23 AM (GMT -6)
If I took mega doses of melatonin, I would either be sleeping all of the time or none of the time! HEHE :)
Remember to eat crow while they are small. Big feet really hurt going down.

UC - 3 years so far
Remicade every 8 weeks
Asacol 4/3 times a day

Fingers crossed 'cause I am working on being pregnant.

Posted 6/5/2008 9:19 AM (GMT -6)
Remicade's website pretty much acknowldeges what that article said.
Female, Age 19, Dx w/ UC August 2007
Seasonal allergies
9 Asacol/day, 1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis) 3 pills/day, 1 Florastor/day
1 DanActive/day

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