perspective spin

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Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 6/4/2008 3:16 PM (GMT -6)   
so lately I have been down in the dumps, feeling sorry for myself, getting angry and bitter.  I felt somewhat better coming to terms with some things like surgery being a real possibility etc. and taking action on researching it and other meds.
 
So I have been thinking about how things are not going too well with my 2 diseases and then I just thought, hey I could have 3 or 4 etc.......What am I complaining about?  (just joking around.......ah, I crack myself up).
Beth, 32 ~ small flare - hoping caused by aspirin - hydrocortisone e's
Major Flare Sept/Oct 07
UC dx'd 03/00 (Proctosigmoiditis); Pancolitis since 09/07
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd 09/07 - partial remission since 03/08
Prednisone 5mg 1xday (tapered from 60 = ), Simvastatin 20mg 1xday, Diovan 160mg 2xday. Enalapril 20mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.  Do you have edema? If so, check your blood protien level!
 


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 6/4/2008 4:43 PM (GMT -6)   
When I'm feeling depressed over my many diseases/illnesses/conditions I take a step back from myself, count my blessings and the wonderful things in my life then think about the more serious diseases that I DON'T have. Yeah, sometimes we have to change our perspectives on things to get our heads on right.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis~Sacroiliitis-epidural injections
To help Healingwell - click here: DONATE
 
 
 
 

 
 


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5185
   Posted 6/4/2008 5:33 PM (GMT -6)   
In one of the halls in my high school (in PA) there was a framed placard that read "I was poor and complained because I didn't have any shoes-- until I met a man who didn't have feet." I guess whoever hung it there wanted us to learn to stay positive because things could be worse. It's a shame that you suffered this setback with UC after returning from vacation, but, hopefully, you'll get it back under control before too long. Or you'll have a consultation & get helpful info in the near future. / Old Hat (nearly 30 yrs with left-sided UC ... [etc.])

quincy
Elite Member


Date Joined May 2003
Total Posts : 30704
   Posted 6/5/2008 1:59 AM (GMT -6)   
Making a decision is quite an awesome feeling....it doesn't come easily sometimes...and for some there will be regret, others it will be a relief. Beth, I can understand how you would feel about your decision about surgery.

I truly believe that it helps us to keep things in perspective. but only AFTER we understand and accept our own situation (subjective). We cannot negate our own "suffering" according to the measuring stick of another that we use to justify our feelings. There will always be someone else who is worse off...or eventually we might be.


I think it best we acknowledge whatever we're experiencing, allow ourselves the feeling for a while and then get on with functioning to the best of our abilities.

We never know what tomorrow will bring.....

I agree with seeing the positives and blessings in our lives along with all the other stuff. It all has to be put into a perspective that allows us to function without too much guilt or from becoming totally absorbed by our disease/disorder.
 
The grey area is most challenging.

quincy


*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

Post Edited (quincy) : 6/5/2008 1:02:00 AM (GMT-6)


lemonhead
Veteran Member


Date Joined Dec 2007
Total Posts : 1028
   Posted 6/5/2008 7:29 AM (GMT -6)   
Whenever I start to feel sorry for myself, someone comes along who is struggling more than me. Right now it is my son's preschool teacher who has 7 kids. Her husband was diagnosed with 2 inoperable brain tumors....cancer....6-12 months. It sure didn't take long for me to count my blessings and turn all of my self-pity into a positive energy....like how and I going to help her get through this. I think what is the worst that will happen.....I lose my colon. It could be way worse. I could lose my life.
I just read the book by eckhart Tolle, and it is all about not letting your disease define you. If you do, that is who you become, and I refuse to become the horrible UC.
diagnosed with left-sided UC in 1997. (45cm)
Currently on 10mg Prednisone
12 caps of colazal    9 caps Colazal
2 rowasa enemas nightly
35, female


bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 6/5/2008 8:18 AM (GMT -6)   
That's a good idea, Beth. Sometimes I tell myself that even though I may have a risk of cancer, I don't actually have cancer or anything so bad like that.
leamonhead, which book by Eckhart Tolle did you read?
Female, Age 19, Dx w/ UC August 2007
Seasonal allergies
9 Asacol/day, 1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis) 3 pills/day, 1 Florastor/day
1 DanActive/day

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