How R U? (at Dr.'s Office)

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Got2Believe
Regular Member


Date Joined Feb 2007
Total Posts : 436
   Posted 6/4/2008 1:25 PM (GMT -7)   
I know it's like the other thread, but with a little twist. My GI's nurse always calls my name out of the waiting room and say's "How are you?" this is weird b/c of the situation. Everyone usually goes to the Dr. when we are not feeling good, you know...I usually only say good or better if I actually feel better than my last visit. I feel relatively comfortable with my GI's nurese and kind of close to her since I probably talk to her for 3 minutes and my GI for like 2 minutes.lol.
But then the Dr askes the same question to start. Oh Boy. What to say and not sound like the biggest pecamist in the world. I usually start off with positive things like I gained a pound or today I had a formed stool then I say but.................
We really need to be blunt with our Dr's but it's always good to start of on a positive note.
How do you all handle this question at the Drs office.
                                                                                         
28/M/TX single parent of gorgeous 2.5yo girl (revised 5/8/08)
Severe Colitis (pancolitis) since January 9, 2005
currently:  6th week flaring;improving; 2bm/day; very little blood
RX/day:  Currently 10mg of prednisone per day. Lost job and insurance 10/2007 and stopped taking asacol and Imuran cold turkey
OTC: seldom use VSL#3, vitamins & other natural treatments
Diet: SCD helps tremendously, but am not strictly on it.
Other: food combos, enzymes, good posture, chewing more, etc.


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 6/4/2008 1:50 PM (GMT -7)   
When I was flaring, I was brutally honest. "Not good. I'm going 20 times a day, bleeding every time and can barely lift my feet to walk. But at least I know I don't have colon cancer, right?"
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Avascular necrosis in both shoulders is my "forever" gift from steroid therapy.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5151
   Posted 6/4/2008 2:21 PM (GMT -7)   
My gastro, who subspecializes in IBD treatment, saved me from disaster 15 yrs ago when I was very debilitated from a severe flare. That colors all my reactions during office visits. Essentially, I feel very bonded to this human being who gave me back my life & has been very kind, tolerant of my mood swings, & supportive over the years. So I express myself freely & my gastro does, too. That's the best kind of exchange patients can have. We don't spend a whole lot of time together, but it is 98% quality time-- with about 2% involving unforeseen interruptions, which can be frustrating, when the office gets overbusy. It's an absolute blessing to find an office situation where UC is dealt with effectively & compassionately. / Old Hat (nearly 30 yrs with left-sided UC ... [etc.])

Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 6/4/2008 2:48 PM (GMT -7)   
I've been with my GI for a long time so when he asks me this, I usually say (if I'm flaring) I've had better days and start to explain to him what's going on and he listens without interrupting - he's such a great doc and he usually spends a lot of time with me.

My other docs, I'm just honest by saying, "Well obviously not too good if I'm here!" :)
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis~Sacroiliitis-epidural injections
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bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 6/4/2008 4:04 PM (GMT -7)   
Whenever I talk to my GI nurse and I'm flaring, I say "I'm surviving, I guess..." I haven't been to my GI while in an actual flare (except for before I was diagnosed), but I plan to be brutally honest (let's hope I don't chicken out).
Female, Age 19, Dx w/ UC August 2007
Seasonal allergies
9 Asacol/day, 1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis) 3 pills/day, 1 Florastor/day
1 DanActive/day


basa0806
Veteran Member


Date Joined Feb 2005
Total Posts : 2103
   Posted 6/4/2008 9:24 PM (GMT -7)   
Whenever my mom makes an appointment they always ask what's wrong so when I get there they immediately ask about what my mom told them and take my blood pressure and all that. My GI is very laid back (he's a pediatric GI) so we just have a conversation about what symptoms I have. I've never had an awkward moment with my GI, for God's sake he's seen my butt on 4 different occasions! But, I have to switch to an adult doctor soon (which makes me SOO sad!) so I'm sure we'll have an awkward first meeting... :/
Sam
19 years old
Diagnosed March 2005
Remission since January/April 2006 (incident with mono)
3200mg Asacol, 25mg Amitriptlyine, Ortho Tri-cyclen lo, Imodium when I need it
"If you don't like something, change it. If you can't change it, change your attitude"
Maya Angelou


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 6/4/2008 9:35 PM (GMT -7)   
Usually I always respond at the office of my GI to anyone who asks how I am with a "well I likely wouldn't be here if I was feeling good".

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


quincy
Elite Member


Date Joined May 2003
Total Posts : 30097
   Posted 6/4/2008 10:41 PM (GMT -7)   
I see my GI every 6 months, and if I happen to be in before that he raises his eyebrows and says..."Well, I didn't expect to see you this soon", or something like that.

I do bring a list of issues, questions, etc....and if I'm doing well, I start off with that statement, schedule of enemas at that time, then get into the fact that I need prescriptions and whatevever else.

If I'm sick or concerned about something new...then I'll say "well, I was good up until (whenever) then I've been consistently having (whatever) and thought it best to see you asap since I'm not improving".

I'm usually in there for about 10 or 15 minutes.

The nurse/assistant has been with my GI forever. I do talk with her for a few if it's at a lull in business while whe takes me into the examining room and also afterward while I'm waiting for my next appointment time (in 6 months if I'm just for a check-in or in 3 months if there's been a problem).

When I'm sick and she or the doc asks...I'll state "well, not so good at this time, and I thank you for getting me in so quickly"

quincy
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

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