Back in February I was diagnosed with pancolitis after having a month straight of bloody and muscusy diarrhea. (All my life though I've had bloody diarrhea but never for a month straight, It was usually just a couple days at a time and then it would go away)
But yea, I was put on 8 asacol a day, 50mg of prednisone and the antibiotics ciproflux (I think thats what it was) and I forget the others name, But it tasted like metal when you left it in your mouth longer then two seconds. Nothings really improved pain and cramping wise but I've gone down from 30+ stools a day to 10-20. But there still really urgrent, If I got to go I only have about
5-30 seconds to make it to a bathroom it or will just spill out. I go in for another colonoscapy in two weeks and then my doctor is going to decide if I move on to remicade, Though on specialist I talked to said I can discuss surgery anytime with him. And I've been giving it alot of thought. But I would sort of like to get off the prednisone first cause I'm getting all the lovely side effects from it. I had moon face so badly I went for a eye appointment and they told me to go home cause he couldn't get the pressure of my eyes. And all the other great side effects, Dizzyness, Disorented (I can't even do basic math some days), Night sweats, Acne, A ton of body hair, Legs, Arms, Shoulders neck are all sore a good 12 hours of the day. Now I'm tapering down on the prednisone and on a weekly methotrexate (on week 5) But I feel it's just getting worse again, I'm down to 25mg of prednisone and I'm starting to get really sick again but I don't want to go back up cause the side effects just make life even crappier then what it is. My doctor told me if I was to get sick again to go back up, But another specialist said to keep going down and hope the methotrexate kicked in by the time I hit 5mg. So I think I'll just wait for the colonscapy and hopefully the Remicade works for it.
I also seen, http://www.lialda.com/ on tv and was wondering if I should ask my doctor about
it? Is there anything else I could ask my doctor for to help maybe?
Also, Do any of you leak stool? I have to go and wipe about
fifty times a day cause I leak so much.
The meds I'm on now are
Asacol 8x a day
Prednisone 25mg a day
Prozac 20mg a day
Think I should take calcium and a multi vitamin to?
Post Edited (bb224) : 6/5/2008 5:30:27 PM (GMT-6)