Entocort dependency

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my3suns
Regular Member


Date Joined Apr 2008
Total Posts : 37
   Posted 6/6/2008 7:22 AM (GMT -6)   
Is it possible to become dependent on Entocort.  For the last month I have been taking 6mg of entocort.  I started bruising really bad, so my doctor had me stop.  I was at the end of my prescription so I just didn't refill it.  Within 3-4 day the blood, mucus, pain, and tenesmus started.  I have no D, usually constipation - and man is it bad.  I haven't really gone in 6 days.  I feel like I have to go, but then it is mucus and blood.  So annoying.  I saw the doc on Wed., and he put me back on Entocort, but only 3mg.  I don't think it is working.  I feel even worse today.  We just can't get this flare under control.  He brought up Remicade, which I do not want to take.  It sounds too dangerous to me. 
 
Thanks!
my3suns
 
Diagnosed with Ulcerative Proctitis in September of 2006
Canasa
Diagnosed with Pancolitis in April 2008
My current meds are Rowasa Lialda and Entocort
Current state - Flaring


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 6/6/2008 7:37 AM (GMT -6)   
First, you should never stop any steroid cold turkey. Tapering is always best. Second, if the entocort is the only thing keeping your disease under control, yes, you will flare when you stop taking it. 3mg. is not a therapeutic dose, so I'm not surprised it isn't helping you.

Remember, Entocort is a steroid. Unlike Prednisone, it's formulated to be released in the colon so less of it is absorbed into your system generally. That doesn't mean it works differently, and while the side effects may be less pronounced, they will eventually appear.

I wonder if your doc has tried other 5-ASA's or immunosuppressants. Those are options that can be tried before Remicade if you wish and (s)he agrees. And if you're having that feeling of needing to go but can't, you should still be on rectal medications. That symptom means you have significant rectal inflammation, and all the oral meds in the world may not clear it up.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Avascular necrosis in both shoulders is my "forever" gift from steroid therapy.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


my3suns
Regular Member


Date Joined Apr 2008
Total Posts : 37
   Posted 6/6/2008 8:28 AM (GMT -6)   
Thank you Judy. I think I will bump the Entocort back up to 6mg - that worked very well. Entocort is definitely the only thing keeping my disease under control and right now it is not doing it very well. I hate all of this. In the two years since diagnosis I cannot say I have been in remission, there are times when I feel pretty good, but they don't last long enough. I just want this to go away.

I will try all of the 5-ASAs before I will turn to Remicade - honestly, I don't think I will ever try Remicade. I am going to start Rowasa again tonight. I think that will really help.

Thanks!
my3suns
 
Diagnosed with Ulcerative Proctitis in September of 2006
Canasa
Diagnosed with Pancolitis in April 2008
My current meds are Rowasa Lialda and Entocort
Current state - Flaring


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 6/6/2008 8:32 AM (GMT -6)   
I agree that steroids regardless of what form they come should not be stopped abruptly. Not only can it make you flare again, it is not good on the adrenal functions. If you are constipated, have you tried any fiber supplements yet? What about Miralax? I get occasional constipation now too, mainly because I think I get so inflammed in there that I just can't go and my GI has ok'd the occasional use of Miralax. Fiber supplement will help make going easier. It's good that you are going to start the Rowasa again. And remember, that before Remi is even considered there is always 6mp or Imuran to try. These two immune suppressors have given many of us our life back.


 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs), Hydrocortisone E's, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis~Sacroiliitis-epidural injections
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