First, you should never stop any steroid cold turkey. Tapering is always best. Second, if the entocort is the only thing keeping your disease under control, yes, you will flare when you stop taking it. 3mg. is not a therapeutic dose, so I'm not surprised it isn't helping you.
Remember, Entocort is a steroid. Unlike Prednisone, it's formulated to be released in the colon so less of it is absorbed into your system generally. That doesn't mean it works differently, and while the side effects may be less pronounced, they will eventually appear.
I wonder if your doc has tried other 5-ASA's or immunosuppressants. Those are options that can be tried before Remicade if you wish and (s)he agrees. And if you're having that feeling of needing to go but can't, you should still be on rectal medications. That symptom means you have significant rectal inflammation, and all the oral meds in the world may not clear it up.
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Avascular necrosis in both shoulders is my "forever" gift from steroid therapy.
Colazal, Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.