I was watching Deadliest Catch a few nights ago and was wondering how anyone with a UC flare would be able to survive out there.
Here are my concerns. With UC I find that I need more sleep than "normal" people. With the hours those guys work, would he be able to get enough sleep? Will he have easy access to the bathroom? How is the food they eat? I know they eat a lot of food. Is it relatively fatty? I know they need the calories and burn them. But fatty food will move through the guts more quickly. Will he be able to take his meds at regular intervals?
Typically UCers stay on meds ALL OF THE TIME. These are called maintenance meds and are used to keep the UC from progressing and to try to keep a person in remission. It doesn't always work ideally. The maintenance meds are usually the 5ASA meds - Asacol, Colazal, Lialda, Pentasa.
Sometimes you can feel a flare coming on. Sometimes it just comes and slaps you in the face - no warning what-so-ever.
Things he might be able to do to help if he flares while out fishing: Talk to his doc and have prednisone on hand at all times. That way if he flares, he would be able to start this fast acting (yet possibly evil med) right away in hopes of calming things down. Maybe the extra pred energy would even help?!!? He and his doc may be able to come up with other alternatives as well.
Hope this helps a tiny bit.
BTW - Welcome to HealingWell! I'm sorry that your husband has been so sick with this darn disease (DD for short).
Pan-colitis and GERD diagnosed May 2003
Osteopenia diagnosed Feb 2006
Asacol 12 per day, Azathioprine 100mg, Aciphex, Forvia, and Pro-Bio
Posted 6/6/2008 4:36 PM (GMT -7)
Your husband has experienced about the worse that ulcerative colitis will provide and since this disease is new to the two of you I want to give you hope that he will be able to resume his life as a fisherman. Once the disease is controlled and he is on a regime of maintenance medications he should be able to return to his job. Most UCers are able to manage their disease in the workplace and will have periodic minor flares that they can control by raising their maintence medications. Having UC should not mean one has to permanently change their lifestyle. It seems that a lot of UCers experience their worst flare as their first flare. I will keep your husband in my thoughts and hope that this too is the worst of the UC experience that he will ever have.
dx proctitis in 1987
dx UC in 1991, was stable until 1998
1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics
2000 lost all my B-12 stores and became anemic
2001 opted for j-pouch surgery- now living life med-free