Changing Doctor

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

lenie
Regular Member


Date Joined Feb 2008
Total Posts : 97
   Posted 6/6/2008 2:59 PM (GMT -6)   
I'm finally doing something that I've been wanting to do for the past three months.  I've been seeing a gastro doc for the past two years.  The problem is he hasn't really done anything for me.  I'm still the same way I was two years ago.  I can't go into remission for more than 6 weeks than I flare up again. I'm in pain just about every day and it starts about an hour after I eat, around my waist area is swollen that I can't button my pants.  I feel like the doc is missing something.      I feel so guilty leaving him because he has been so nice to me.  Come Tuesday I see a new doc and I'm praying that he can get a handle on my problems.  Has anyone else had to change doctors to get better results. 
 
quincy...Husband had the prostate surgery and is doing real well.  He went back to his doc today and had the catheter removed.  He feels great!   He goes back in Sept. for recheck.  So all is well there. 
Meds:  Asacol 2 tablets 3x a day
Entocort 3 capsules for a week when flaring
Canasa when flaring
Xanax for anxiety
Nexium


kb5
Veteran Member


Date Joined Jan 2007
Total Posts : 1015
   Posted 6/6/2008 4:12 PM (GMT -6)   
I switched from the Gi who dx'd me just a few monts after in 1998. He was a jerk. I had no problem with him medically it was just because I couldn't deal with him as a person. He was so mean and awful. I cried everytime he talked. I love my GI now. I have been with him for 10 yrs. Best move I have ever made.
Kelly, 30

Left sided UC diagnosed 1/98 age 19, Pan colitis diagnosed 1/07
Currently on 4x3 Asacol, no more pred after two years!!!! Off imuran as remicade is working!
Prontonix once daily for acid reflux, zofran 8mg every six hours for nausea
Remicade started 3/1/08...just had 4th infusion


quincy
Elite Member


Date Joined May 2003
Total Posts : 30703
   Posted 6/6/2008 5:06 PM (GMT -6)   
Hi Arlene...awesome your husband is doing well!! I hope the next visit is benign.

Regarding all your other problems...curious if you've seen your gyne recently and if you've been checked for ovarian problems. Just a thought and don't want to add to the already torment you've been going through.

I hope the new doctor is able to look at the whole picture instead of just the most obvious.

Thanks for the update...I think you're doing the right thing. I've not had to change doctors, fortunately.

Please post on Tuesday to let us know how it all goes for you......make a good list of pertinent info/questions to have at the ready.

Again, great news about your husband...
quincy
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 6/6/2008 5:35 PM (GMT -6)   
I changed GI doctors after my first one had been treating me for over a year and seemed to not have any new ideas. He had me on Colazal, Imuran and Entocort and I was still very sick. He didn't seem concerned, and wasn't talking about trying anything else.

After a little playing around with the dosages, when Remicade was approved, my new doc started on it, and I've been doing well ever since.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Avascular necrosis in both shoulders is my "forever" gift from steroid therapy.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


AngelTT
Regular Member


Date Joined Jun 2005
Total Posts : 213
   Posted 6/6/2008 5:44 PM (GMT -6)   
I've had to change four times. sad
34 year old female, Diagnosed 5 years ago
Current Meds: Remicade every 6 weeks, Prednisone 20mg, Prevacid, Sustenex, Lialda, Lexapro (anxiety), Synthroid, Iron, vitamin, Fish Oil
Expecting first child 12/08 via gestational surrogate!!!!


checkerjane91
Regular Member


Date Joined May 2008
Total Posts : 61
   Posted 6/6/2008 9:34 PM (GMT -6)   
Hi Lenie,
 
Me too!  I have been seeing the same GI for about four years - off and on.  I can't get more than two months of remission, but I stayed with him for various reasons.  Like your GI, he didn't seem too concerned about the situtation, and he wasn't talking about doing anything different.
 
My appointment is on Tuesday as well.  I hope it's our lucky day, and I'll keep my fingers crossed for you!
 
Good Luck,
Beth

julee70
Regular Member


Date Joined Oct 2007
Total Posts : 486
   Posted 6/6/2008 9:46 PM (GMT -6)   
There's no need to feel guilty about switching doctors. We all do it. I had one doctor who I really adored but he was not helping my colitis. I called him years later for advice about something and he was as sweet as always. I don't think they take this stuff personally. :)

If you have a recent colonoscopy report or bloodwork report you should bring them with you to your new doctor. I have copies of all my reports so that I can always bring them to a new doctor if I need to. I ask now for copies of everything, and I just say that I want a complete set of my medical records. If I ever want to go for a consultation with someone, won't have to ask my doctor for all my records.

I agree with quincy that bringing a life of questions with you is really helpful.

I think it's great that you've found another doctor. It's a very good step to take if you have not been seeing progress. Let us know how it goes!
-------
UC for the last ten years
Current Meds: 6MP since 2006, Cortifoam
Past Meds: You name it; I've tried it. (Asacol, Colazol, Pentasa, DiPentum, Rowasa, Canasa, Cortenema, sulfasalazine)
5ASA drugs don't work for me. Canasa seems to make me worse.
Alternative treatments I have had success with: Acupuncture, Hypnotherapy


lenie
Regular Member


Date Joined Feb 2008
Total Posts : 97
   Posted 6/6/2008 10:10 PM (GMT -6)   
julee70...I made the mistake of not getting my records as I went along. I learned the hard way. Monday morning I'm calling the doctors office and I'll ask the girl to make copies and I'll pick them up that afternoon. When I meet the new doctor I'll start off right from the get-go and get copies. I'm also bringing a truck load of questions. I'll let you know how it goes. Thanks a bunch.
Meds:  Asacol 2 tablets 3x a day
Entocort 3 capsules for a week when flaring
Canasa when flaring
Xanax for anxiety
Nexium


lenie
Regular Member


Date Joined Feb 2008
Total Posts : 97
   Posted 6/6/2008 10:18 PM (GMT -6)   
Hi Beth, Sounds like we're in the same boat. I hope we both have good luck. I want to be like so many of the people at this forum that talk about being in remission for a year. Everyone here has helped me so much. We get so much support here. When I get down with this UC there's always someone here that lifts me back up. Good Luck on Tuesday. Let us know how it goes. Arlene
Meds:  Asacol 2 tablets 3x a day
Entocort 3 capsules for a week when flaring
Canasa when flaring
Xanax for anxiety
Nexium


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 6/6/2008 10:29 PM (GMT -6)   
I'm on GI #4 in my 17 yrs of having IBD, it's really no biggie switching, they have plenty of patients I'm sure...especially where I live.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


lenie
Regular Member


Date Joined Feb 2008
Total Posts : 97
   Posted 6/7/2008 9:49 AM (GMT -6)   
your right pb4. When I'm gone someone else will fill my appointment slot. I'm kind of excited about seeing this new guy with the hopes of him helping me. I'll let you know how it goes.
Meds:  Asacol 2 tablets 3x a day
Entocort 3 capsules for a week when flaring
Canasa when flaring
Xanax for anxiety
Nexium


jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 6/7/2008 9:56 AM (GMT -6)   
When I was seeing the first GI, after about six month, my primary kept asking me "Has he said anything about Remicade?" "Is he talking about trying Remidade?" Even an internist who treats a total of about four patients with UC knew more intervention was needed for me.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Avascular necrosis in both shoulders is my "forever" gift from steroid therapy.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 6/7/2008 1:25 PM (GMT -6)   
Great to have a positive attitude lenie...please do keep us informed on how things go.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)

New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, July 21, 2018 7:04 AM (GMT -6)
There are a total of 2,983,879 posts in 327,157 threads.
View Active Threads


Who's Online
This forum has 161959 registered members. Please welcome our newest member, foy94203.
323 Guest(s), 4 Registered Member(s) are currently online.  Details
momto2boys, Steph6n, FANXMALAAY, huneri