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hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 6/6/2008 8:10 PM (GMT -6)   
Hi everyone.  I'm usually in the lupus or cfs forum, but I unfortunately got a recent diagnosis if UC confused .  For about the past 5-6 months I had been having a lot of diahrrea and was having many bowel movements everyday, sometimes with blood.  My doctor thought my lupus might be attacking my GI tract so I got referred to a GI doc who set up a colonoscopy.  I won't even go into how sick I got with the prep and then again after the procedure.
 
Anyway, I got the call a few days ago that they biopsy showed UC.  Luckily it's not very severe right now and I was told to take Flagyl for a week.  I have a follow up with the GI doc in July - they wanted me in sooner, but he's on vacation.  I didn't know anything about UC, so I've been doing some reading.  I wanted to ask what the purpose of the Flagyl is and if it has helped much with symptoms.  Thanks
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

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Severin
Regular Member


Date Joined Oct 2007
Total Posts : 320
   Posted 6/6/2008 9:07 PM (GMT -6)   
Flagyl is an antibiotic. Generally it does help somewhat with the symptoms (for *most* people). Though it is generally not one of the first drugs they put you on for UC...
"We are dreamers, shapers, singers and makers..." - Elric, Technomage
  • 28yo male. Brisbane, Australia. Diagnosed at 16yo. Currently enjoying severe pan-colitis.
    - Participating in the Golimumab trial as of 1st May, 2008;
    - 2x Colazide, twice a day; 25mg of 6-MP a day; 1xAllopurnol;
    - 1x teaspoon of Metamucil 3 times a day;
    - 1x BIOCeuticals UltraBiotic 45 + 1x SB FlorActiv twice a day.


jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 6/6/2008 9:42 PM (GMT -6)   
Welcome to the UC board, hippimom. Flagyl is often used when it's suspected we have a clostridium dificil infection causing some of our symptoms. Some docs will start with a round of Flagyl "just in case", then move on to other drugs.

Some things you should ask about when you follow up with the GI: where in the colon is the UC located? It can be anything from proctitis, affecting the rectal area only, to pancolitis, involving the entire colon and rectum. Knowing what areas are involved will help you with making treatment choices. Generally we start out on one of the 5-ASA oral drugs, usually Asacol. It's important for you to know that this is also available as an enema or a suppository, and these are helpful in treating the rectal and sigmoid areas, where oral meds don't always reach. So ask your GI about including rectal meds in your starting regimen.

Sorry to hear you have the double-whammy of UC and lupus, but I guess we all know we're at increased risk for other autoimmune diseases. They say what doesn't kill you makes you stronger, but I think most of us would be just a little weaker than we've had to become.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Avascular necrosis in both shoulders is my "forever" gift from steroid therapy.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


jamo0001
Regular Member


Date Joined Apr 2007
Total Posts : 75
   Posted 6/6/2008 10:01 PM (GMT -6)   
My doc always puts me on Flagyl to combat C. diff, a particularly stubborn type of intestinal infection. Usually a two-week course, followed by another two-week course a few months later ;).
James

21 yrs old, diagnosed severe pan ulcerative colitis 2 Mar 2007
Hospitalized 27 Apr-5 May 2007
Remission since 4 July 2007
Asacol (mesalamine) 400 mg x 12 daily
Remicade <--first infusion on 3 May 2007; currently once every 8 weeks
Imuran (azathioprine) 50 mg x 2 daily
Eating fruits and vegetables like there is no tomorrow...
"God bless Remicade!"


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 6/7/2008 9:42 AM (GMT -6)   
Thanks so much for the information. All of this will help me know what questions to ask when I see the doc next month.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; UC 2008; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums



seconder
Veteran Member


Date Joined Jun 2008
Total Posts : 610
   Posted 6/7/2008 9:53 AM (GMT -6)   
Flagyl is often prescribed to treat inflammation of the colon, as my GI explained to me when he prescribed it after two stool sample tests came back negative for c. diff.  Unfortunately, I had a severe reaction to flagyl and it made my symptoms much, much worse, to the point I was hospitalized.
 
Coincidentally, it was also prescribed for my dog when I found blood in his stool.  Same explanation.

Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 6/7/2008 12:58 PM (GMT -6)   
I'm sorry that you have this hanging over your head now too. But now you know what you're dealing with, you can start onto the road to feeling better. If you should have any questions, don't hesitate to ask. Also, be sure to check the resource section here or visit www.ccfa.org
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs), Hydrocortisone E's, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis~Sacroiliitis-epidural injections
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