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Ashley O
Regular Member


Date Joined Jun 2008
Total Posts : 72
   Posted 6/6/2008 11:13 PM (GMT -6)   
Hey Everyone! I've been reading the board for a while and thought it was time to register and say hi!

My name is Ashley and I'm 19 years old. I was diagnosed with left-sided UC when I was 16 years old in October 2005. For about a year my doc had me on high doses of Prednisone but it wasn't getting me to a remission and he was afraid about compromising my organs with long-term steroid use so he had me try Remicade in August 2006. Since then I've felt pretty good. I only need Remicade every 8 weeks and I'm generally in a Remission. I still have bad days and anxiety. I'm prone to bathroom urges of course, but I'm a lot better. Before I went on Remicade my UC caused me to drop out of high school and finish my junior year through a home hospital teacher. After Remicade I was able to go back to school for Senior year and graduate on time. Now I'm attending college and just made it through my first year. I have minor flares every once and a while because I get really stressed out and overwork my body, but my college has a students with medical disabilities program that really helps me work with my professors so I can be in classes and not worry about UC related absences or bathroom visits during lectures. It's been really nice. As you all know the disease is incurable and lifelong, but I have hope that I'll be able to live my life as normally as possible. I'm coming coming up to my 3 year mark in October and I feel like this disease has made me grow up so fast.

Anyway. A big hello to everyone in the forum and I look forward to trying to give other fellow UC people advice from my experiences and enjoy reading what you all have to say so I can learn from you as well.

Sincerely,
Ashley O

_______________________________________________________________
Female, Age, 19, DX w/Left sided UC October 2005
Present Meds: Remicade Infusion every 8 weeks since August 2006

Past Meds: Canasa Sups, 40 mg Prednisone Daily for 1 year, Miralax Daily, Ginger Supplements

tjf
Veteran Member


Date Joined Dec 2005
Total Posts : 3238
   Posted 6/7/2008 7:38 AM (GMT -6)   
Hey and Welcome!!! Glad to hear you are doing well on Remicade. And congrats on finishing your freshman year of college!!!
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-9 a day, Acidopholis Pearls, Nexium

http://www.healingwell.com/donate
Co-Moderator UC Forum


jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 6/7/2008 10:31 AM (GMT -6)   
Welcome to HealingWell, Ashley! Your story can be an inspiration to some of our other young members, I'm sure.

Isn't Remicade wonderful? It gave me my life back, too. I know it's inconvenient to take and there are possible side effects, but for a lot of us it's a great trade-off. Kudos to you for getting back in school and preparing for the wonderful life to come.

I think it's likely that a cure for UC will be found in your lifetime, so keep your hopes up, Ashley.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Avascular necrosis in both shoulders is my "forever" gift from steroid therapy.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


bellski
Regular Member


Date Joined Apr 2008
Total Posts : 499
   Posted 6/7/2008 1:48 PM (GMT -6)   
Ashley. Welcome and God Bless You.  You do seem to have a great attitude.  Through hard times, we do grow.  Best of luck to you.  Lori (Bellski)

bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 6/7/2008 4:41 PM (GMT -6)   
Hey, Ashley! Thanks for posting on my thread. I finished my first year of college as well! I also registered with the disabilities office and they helped me get good housing (single room, private bathroom!) for next year. I'm glad Remicade has worked for you!
Female, Age 19, Dx w/ UC August 2007
Seasonal allergies
9 Asacol/day, 1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis) 3 pills/day, 1 Florastor/day
1 DanActive/day


Ashley O
Regular Member


Date Joined Jun 2008
Total Posts : 72
   Posted 6/7/2008 4:51 PM (GMT -6)   
Thanks so much for such a warm welcome everyone!


________________________________________________________________________
Female, Age, 19, DX w/Left sided UC October 2005
Present Meds: Remicade Infusion every 8 weeks since August 2006

Past Meds: Canasa Sups, 40 mg Prednisone Daily for 1 year, Miralax Daily, Ginger Supplements

JewelsOK
Regular Member


Date Joined Jun 2007
Total Posts : 364
   Posted 6/7/2008 9:21 PM (GMT -6)   
Welcome, Ashely! As a mother of a 9 year old and a 16 (almost 17) year old who both have UC, your post gives me hope! Thank you for sharing! I'm so glad things are going well for you. My kiddos are both in remission and have been for almost a year (both since around Aug.), but I often worry what the future hold for them.

Again, thanks and welcome!
Julie

Mom of Son 16 UC dx 07/02, Sulfasalazine, Imuran, folic acid, L. Reuteri, Zyrtec, Iron, Vit/Min

Daughter 9 UC dx 08/07 Colazal, 6MP, Iron, Vit/Min., Culturelle


AMK77
Veteran Member


Date Joined Mar 2008
Total Posts : 678
   Posted 6/7/2008 9:55 PM (GMT -6)   
Welcome Ashley! :-)
Diagnosed 2/29/08 with Mild Universal UC
I've had UC since 2000 but was in remission for most of those 8 years med free
Lialda Colazal & Asacol made symptoms worse, MUCH worse
Not taking any more meds for now. Trying a holistic approach.


yuckygut
Regular Member


Date Joined Feb 2008
Total Posts : 214
   Posted 6/8/2008 1:19 PM (GMT -6)   
Welcome Ashley, and continued good luck with your studies.



----------------------------------------------

yuckygut

diagnosed 1998

now off prednisone and colazal

drink 1 Haldi daily

quincy
Elite Member


Date Joined May 2003
Total Posts : 30703
   Posted 6/8/2008 2:24 PM (GMT -6)   
Welcome to the forum Ashley! Hope you're able to continue feeling well through college.

Will you be working during the summer or taking the time off?
quincy
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


Ashley O
Regular Member


Date Joined Jun 2008
Total Posts : 72
   Posted 6/8/2008 5:52 PM (GMT -6)   
Thanks for the kind words again everyone!

Heather: Summer jobs in my small town are scarce this summer so I decided to take summer classes at the little junior college close by to speed up my General Ed. I'll be taking a Psychology and Speech class. Hopefully I'll continue to feel well because it's a 45 minute commute each way and car drives are my main cause for anxiety with UC. Thanks for asking :-)

Ashley

_______________________________________________________________________
Female, Age, 19, DX w/Left sided UC October 2005
Present Meds: Remicade Infusion every 8 weeks since August 2006

Past Meds: Canasa Sups, 40 mg Prednisone Daily for 1 year, Miralax Daily, Ginger Supplements

quincy
Elite Member


Date Joined May 2003
Total Posts : 30703
   Posted 6/9/2008 3:58 AM (GMT -6)   
Sounds as though you'll be very busy. Hope all goes well!
q
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 6/9/2008 2:06 PM (GMT -6)   
Welcome Ashley, don't let anything hold you back..........you are doing great!!!!

I'm going back to school too, have my associates, now going for my bachelors.
Beth, 32 ~ small flare - hoping caused by aspirin - hydrocortisone e's
Major Flare Sept/Oct 07
UC dx'd 03/00 (Proctosigmoiditis); Pancolitis since 09/07
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd 09/07 - partial remission since 03/08
Prednisone 5mg 1xday (tapered from 60 = ), Simvastatin 20mg 1xday, Diovan 160mg 2xday. Enalapril 20mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.  Do you have edema? If so, check your blood protien level!
 

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