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Update - No More Remission

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Ulcerative Colitis
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shoegrl2
Veteran Member
Joined : Nov 2005
Posts : 675
Posted 6/7/2008 5:55 AM (GMT -7)
As many of you "regulars" may recall, I stopped my Remicade treatments after 2 1/2 years of treatments and full remission. My hope was that maintenance drugs (in this case Lialda) could/would keep me in remission for a while. My last Remicade infusion was in February and I started the Lialda in March. Since I have stopped the Remicade treatments my energy level has increased substantialy. I have felt great and have been doing so much more than I have been able to do in the past. Then, this week I noticed blood in my stool, had increased number of trips to the bathroom (from 1 per day to about 4 per day) and lots of gurgling down there. So, I called my GI. (after some prompting from Sherry/Red). He put me on a low residue diet for at least a week and prescribed Rowasa enema. I had no problem with the enema last night, no cramping or discomfort, of which I am relieved! So, this might just be a Blip and I don't know what to expect or think. I do not regret my decision to get off of the Remicade, as I did not want to be taking treatments indefinetly if it was not really necessary. I worry about the long term effects of the drug in my system overall. The only way that I could know if I could survive without the drug was to stop using it.

  So, on to the next chapter and course of treatment! Wish me luck. And Sherry, thanks for all of your support and advice!

 

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jujub
Elite Member
Joined : Mar 2003
Posts : 10421
Posted 6/7/2008 8:35 AM (GMT -7)
Debbie, sorry to hear you're having problems again. I also hope this is just a blip for you and comes back under controll quickly.
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Red_34
Forum Moderator
Joined : Apr 2004
Posts : 23581
Posted 6/7/2008 10:55 AM (GMT -7)
You're very welcome Debbie - you know I'm here for you anytime. You don't have to stick to emailing me, you can call to ya know? :) I'm glad you didn't have any troubles with the Rowasa. And I hope that this will get it settled for you quickly. Who wants to be flaring for summer right??
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