Update - No More Remission

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Veteran Member

Date Joined Nov 2005
Total Posts : 675
   Posted 6/7/2008 7:55 AM (GMT -6)   
As many of you "regulars" may recall, I stopped my Remicade treatments after 2 1/2 years of treatments and full remission. My hope was that maintenance drugs (in this case Lialda) could/would keep me in remission for a while. My last Remicade infusion was in February and I started the Lialda in March. Since I have stopped the Remicade treatments my energy level has increased substantialy. I have felt great and have been doing so much more than I have been able to do in the past. Then, this week I noticed blood in my stool, had increased number of trips to the bathroom (from 1 per day to about 4 per day) and lots of gurgling down there. So, I called my GI. (after some prompting from Sherry/Red). He put me on a low residue diet for at least a week and prescribed Rowasa enema. I had no problem with the enema last night, no cramping or discomfort, of which I am relieved! So, this might just be a Blip and I don't know what to expect or think. I do not regret my decision to get off of the Remicade, as I did not want to be taking treatments indefinetly if it was not really necessary. I worry about the long term effects of the drug in my system overall. The only way that I could know if I could survive without the drug was to stop using it.
  So, on to the next chapter and course of treatment! Wish me luck. And Sherry, thanks for all of your support and advice!
pancolitis. Osteopenia. multi-vitamin, calcium, omeprazole, benefiber, boniva, align.  Remicade since Dec. 2005. www.myspace.com/dmbarris
"The secret to my own happiness, my own good future, is within my own hands, I must not miss that opportunity"

Elite Member

Date Joined Mar 2003
Total Posts : 10407
   Posted 6/7/2008 10:35 AM (GMT -6)   
Debbie, sorry to hear you're having problems again. I also hope this is just a blip for you and comes back under controll quickly.
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Asacol, Rowasa, Pentasa, Prednisone, Entocort, Azathioprine
Avascular necrosis in both shoulders is my "forever" gift from steroid therapy.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.

Elite Member

Date Joined Apr 2004
Total Posts : 23551
   Posted 6/7/2008 12:55 PM (GMT -6)   
You're very welcome Debbie - you know I'm here for you anytime. You don't have to stick to emailing me, you can call to ya know? :) I'm glad you didn't have any troubles with the Rowasa. And I hope that this will get it settled for you quickly. Who wants to be flaring for summer right??
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs), Hydrocortisone E's, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis~Sacroiliitis-epidural injections
To help Healingwell - click here: DONATE


New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, July 22, 2018 7:45 AM (GMT -6)
There are a total of 2,984,153 posts in 327,188 threads.
View Active Threads

Who's Online
This forum has 161976 registered members. Please welcome our newest member, Mike218.
343 Guest(s), 5 Registered Member(s) are currently online.  Details
Baginapples, trailguy, sandyfeet, cashlessclay, LostBay2020