Phantom Limb and UC

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Veteran Member

Date Joined Jun 2008
Total Posts : 610
   Posted 6/7/2008 10:08 AM (GMT -6)   
Okay, here's a really random symptom.
I cut my finger off six or seven years ago, and I had phantom limb sensations for about a year afterward and then they went away.  But, when my flares get really bad, the phantom limb sensations return.
It's not especially bothersome, but it is creepy.  It's really creepy when I'm showering or washing dishes and I can feel the water on a finger I know is not there.  Mostly, though, I see the humor in it:  "Hi, there, friend.  You've come back."
Anyone else have other strange symtoms???

Veteran Member

Date Joined Jul 2005
Total Posts : 1614
   Posted 6/7/2008 10:32 AM (GMT -6)   
I had my gallbladder out 20 years ago, and to this day, I still get the phantom gallbladder symptoms. People look at me weird when i tell them about this, but it is true. I even asked mydoctor about phantom symptoms and he told me it is common to have these when something like a limb or gallbladder is removed.

So you are not alone.
Diagnosed July 2005 with Pancolitis
Asacol 4 tabs 3 times daily
Diosmin(for leg and vein support)

Veteran Member

Date Joined Jul 2006
Total Posts : 723
   Posted 6/8/2008 3:56 PM (GMT -6)   
Have you ever read any books by Ramachandran?
For instance:  Phantoms in the Brain : Probing the Mysteries of the Human Mind, coauthor Sandra Blakeslee, 1998, ISBN 0-688-17217-2
You might find it interesting to read, I know I did.
Diagnosed with Ulcerative Colitis 6/2006 at age 26 after sudden E.R. visit
~Pancolitis (Mild to Moderate)
 ~I had Mono in 2000
On Colazal 3x3/day; Folic Acid 1mg; Calcium/Magnesium/Zinc combo
In remission about 2-3 months after E.R. but not back to normal!
~Interested in finding a cure/making sense out of U.C. and philosophical and psychological aspects of UC and "Stress" and Personal Development issues with Chronic Illnesses. 

Regular Member

Date Joined Feb 2005
Total Posts : 369
   Posted 6/8/2008 7:10 PM (GMT -6)   
LOL, i also have a missing limb...had a toe removed due to severe gangreen as a result of a lawnmower accident. It was over 30 yrs ago and i STILL have phamtom feeling w/ that toe!!! I feel it itch sometimes and i also feel like i need to clip it's toenail sometimes! LOL

I have never noticed a link to my flares tho, i will try to pay more attention to see if there is relation!!!! GL
2003, dx moderate UC
2000, dx selective IGA deficiency w/ anti IGA antibodies
2000, dx Antipholipid Antibody Syndrome
1999-current, chronic hemmoragic ovarian cysts, w/ partial ovary removal
1977, complete reconstruction of foot after lawnmower accident (chronic pain)
6mp 75mg, prednisone 40mg (just starting meds again)
percocet 5mg 3x day
potassium 3x day

Veteran Member

Date Joined Jun 2008
Total Posts : 610
   Posted 6/10/2008 9:58 AM (GMT -6)   
Phantom limb sure is strange, isn't it?
I haven't read that book, doors, but I've heard of mirror therapy.  Thanks for the recommendation, and I'll put it on my list.
In some circles, it seems phantom limb sensations are associated with nerve inflammation, which may be effected by uc, I guess. 
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