Well, I am really sorry to whine like this. But, I am being very emotionally needy right now. As supportive as my family is with this whole thing, I really think they probably do get a bit tired of hearing about this.
Anyway, I am going to see a new gi on Tuesday. He is the sixth one for me. I am mainly concerned that he will be a jerk about the fact that I didn't take meds for about three years. I am hoping when I explain the reasons - they were not helping (tried all 5ASA's), they cost $400 a month, I was paying for school, and had no insurance - he will understand.
I mean, the fact that I sought out Lialda, went to my regular doctor for a script, and then sought him (the new GI), would tell him that I am concerned and do care? Right?
I think it all stems from the fact that I have not had very good experiences with the GI docs of the past.
Doctor #1 - First noticed symptoms. Went to family doc who referred me to a GI.
Doctor #2, All he gave me was med for diarrhea - a symptom I didn't have. He didn't schedule a follow-up and never mentioned a colonoscopy. Didn't run any bloodwork, etc.
Doctor #3 - Decided to go to Indian Health Services since I didn't have insurance. They did a colonoscopy, but they (at least the clinic I went to) are very limited in both expertise and medicine. All they had was sulfasalzine, which gave me the worst stomach aches of my life.
(Same doc as #1) - Read about Canasa, and went to my regular MD. He agreed to let me try it. Went great for about six months.
Doctor #4 - gave me a rectal, said, "Oh, you are bleeding." DUH!!! Wouldn't have been there if I wasn't. Said she wanted to do a colonoscopy, but wasn't sure when she could fit me in. Prescribed Asacol which made me worse. I called and told the nurse, who, I assume, talked to the Dr. All she had to tell me was that I was on the maximum dose, and it should be working.
Doctor #5 - Prescribed Colazol, which didn't help. This was three years after my initial diagnosis. He said we would talk about a colonoscopy if this didn't work. He wasn't really that bad. I guess I expect too much out of a doc, but it would be really nice if they acted like they cared.
Doctor #6 - The doc that I have been seeing for the last four years. I have gone though all of the 5ASA's, both orally and the other end. Steroids, too. He hasn't mentioned a colonoscopy (even though I now have insurance), and he hasn't mentioned where to go from here.
I think alot of the dr. drama was due to no insurance. Who knows. Maybe this guy will be able to help. Crossing my fingers. I just don't want him to be a jerk, I want him to know what he is talking about, and I want him to at least "act" like he cares. Tall order, isn't it?
Thank you all so much!!!