Being a big whiner about upcoming dr (new one) visit - sorry

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Regular Member

Date Joined May 2008
Total Posts : 61
   Posted 6/8/2008 2:16 PM (GMT -6)   
Hello All,
Well, I am really sorry to whine like this.  But, I am being very emotionally needy right now.  As supportive as my family is with this whole thing, I really think they probably do get a bit tired of hearing about this.
Anyway, I am going to see a new gi on Tuesday.  He is the sixth one for me.  I am mainly concerned that he will be a jerk about the fact that I didn't take meds for about three years.  I am hoping when I explain the reasons - they were not helping (tried all 5ASA's), they cost $400 a month, I was paying for school, and had no insurance - he will understand. 
I mean, the fact that I sought out Lialda, went to my regular doctor for a script, and then sought him (the new GI), would tell him that I am concerned and do care?  Right?
I think it all stems from the fact that I have not had very good experiences with the GI docs of the past.
Doctor #1 - First noticed symptoms.  Went to family doc who referred me to a GI.
Doctor #2, All he gave me was med for diarrhea - a symptom I didn't have.  He didn't schedule a follow-up and never mentioned a colonoscopy.  Didn't run any bloodwork, etc.
Doctor #3 - Decided to go to Indian Health Services since I didn't have insurance.  They did a colonoscopy, but they (at least the clinic I went to) are very limited in both expertise and medicine.  All they had was sulfasalzine, which gave me the worst stomach aches of my life.
(Same doc as #1) - Read about Canasa, and went to my regular MD.  He agreed to let me try it.  Went great for about six months.
Doctor #4 - gave me a rectal, said, "Oh, you are bleeding." DUH!!!  Wouldn't have been there if I wasn't.  Said she wanted to do a colonoscopy, but wasn't sure when she could fit me in.  Prescribed Asacol which made me worse.  I called and told the nurse, who, I assume, talked to the Dr.  All she had to tell me was that I was on the maximum dose, and it should be working.
Doctor #5 - Prescribed Colazol, which didn't help.  This was three years after my initial diagnosis.  He said we would talk about a colonoscopy if this didn't work.  He wasn't really that bad.  I guess I expect too much out of a doc, but it would be really nice if they acted like they cared.
Doctor #6 - The doc that I have been seeing for the last four years.  I have gone though all of the 5ASA's, both orally and the other end.  Steroids, too.  He hasn't mentioned a colonoscopy (even though I now have insurance), and he hasn't mentioned where to go from here.
I think alot of the dr. drama was due to no insurance.  Who knows.  Maybe this guy will be able to help.  Crossing my fingers.  I just don't want him to be a jerk, I want him to know what he is talking about, and I want him to at least "act" like he cares.  Tall order, isn't it?
Thank you all so much!!!

Regular Member

Date Joined Apr 2008
Total Posts : 499
   Posted 6/8/2008 2:41 PM (GMT -6)   
Good Luck Beth, I'll be praying that this doctor can help you feel better and get in remission. It is good to sometimes talk to others outside the family. Take Care, Bellski
Lori (Bellski)-age 43 from Illinois
Diagnosed February 2008 with Ulcerative Proctitis, possible dysplasia
Currently: symptoms have subsided, awaiting biopsy results for dysplasia
Medications:  Asacol 400mg X 6, Cymbalta 20 mg X 1, Canasa (during flares) Vitamins:  Calcium 600 + D X 2, One a Day Women's X 1, Citrucel,
High fiber diet
"I thank God that  I found this website!"

Elite Member

Date Joined Mar 2003
Total Posts : 10407
   Posted 6/8/2008 3:16 PM (GMT -6)   
Beth, just explain that, due to financial issues, you were unable to take your medication for a time. GI's are totally used to people stopping their medications, it happens a lot because of cost or because people haven't yet dealt with the denial that comes from having a chronic disease.

I'm also unable to take Asacol because it makes me much worse. This is something that happens with a minority of us. Lialda is the same drug, so could produce the same side effect. Colazal helped me, but didn't get me into remission. Your new doc may want to do a short trial of a 5-ASA orally and rectally just to verify that your response hasn't changed. Usually the next step would be immunosuppressants like Imuran or 6-MP. These take effect slowly, so if you're really in a bad way, you might be put on Prednisone to help with symptom relief until the new medication kicks in.

There are lots of choices available today, and the odds are highly in favor of some combination working for you. Take your history with you along with a medication list, and also your list of questions. Good luck, and I hope you "mesh" with this doctor.
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from steroid therapy.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.

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