Anyone have only morning symptoms...

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kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 6/9/2008 5:18 PM (GMT -6)   
Hi again,
I am so new at this and just trying to get more info. I am being treated after UC diagnosis last week - so far using Canasa. I believe doctor mentioned pills if this does not work for me. 
I have suffered with IBS for about 20 years with on and off diarrhea controlled with Imodium when needed. Never have constipation. 
Then bleeding started and I had a colonoscopy.  I ONLY have symptoms mornings - usually about 2 or 3 very loose BM with blood - dimishing as I "go".  I rarely have more than 2 or 3 bouts and then done for the day and feeling fine.  If going out, I take Imodium to control it while out.
I also have nausea sometimes early morning (before I get out of bed) and sweats - can this be related or has anyone else had these symptoms. 
I am 68 and need to get this under control better so I can have knee surgery.
Thanks!
Elaine

68 year old female
diagnosed IBS about 20 years ago,
colonoscopy one year ago diagnosed as colitis
which cleared up by itself using Imodium when needed,
flareup (with rectal bleeding and diarrhea)- 2 months ago, colonoscopy showed mild
UC rectal and little above.
Taking Canasa 1000mg. once a day - just started. No help yet.


GardenerJames
Veteran Member


Date Joined Jan 2006
Total Posts : 616
   Posted 6/9/2008 7:50 PM (GMT -6)   
Hi Elaine, I think many of us are worse in the mornings, I'm in remission using Remicade, but still have to go a couple times somewhat urgently in the mornings.
James
Asacol 4 tabs 2x daily www.myspace.com/gardenerjames
Forvia once a day - Probiotic twice daily - Methotrexate 3 pills once a week - Actonel once a week
Calcium supp. - 1 mg Folic Acid daily - Omega-3 once daily
13th Remicade infusion End of April


KaseyF
Regular Member


Date Joined May 2008
Total Posts : 65
   Posted 6/9/2008 8:04 PM (GMT -6)   
I just started using Sulfasalazine a month ago. Before that, I was going somewhere around 15 times a day with urgency and blood. Now, I have to go exactly five minutes after I wake up, whatever time that is. It's like clockwork. I lay in bed and stare at the clock and my stomach starts rumbling and then it's time for the bathroom. It's urgent, but not so urgent where I have to run like I used to in the past. I usually go one more time in the morning after I've had coffee. And then I'm either done for the day or I go once later in the evening, but not often. Originally, the morning trips were loose, but lately they have either been semi-loose or fully formed. No blood anymore either.

I say this because I think my meds are working, and the morning is the only time it's kind of urgent.

I do wake up sweating, but I always attributed that to my teprimental (sp?) AC. Now I'm curious if it's not? I can't say for sure because the sweating and the need for the AC started about the same time I began the meds.
27 years old, Female, NYC
Diagnosed with severe UC on May 13, 2008 (though I'd apparently had it for years)
500 MG Sulfasalazine x4 a day
Daily Multi-V, Folic Acid


Dr-A
Veteran Member


Date Joined Jul 2006
Total Posts : 2105
   Posted 6/9/2008 8:12 PM (GMT -6)   
Yeah, when not in a bad flare up my mornings are my worse. Recent flare that sorta flipped and evening were worse, lol.
Proctitis DX 1998
Lialda 1x day
Hydrocort Enema As Needed


bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 6/9/2008 8:23 PM (GMT -6)   
Yep, mornings seem to be the worst for a lot of people. When I'm in a mini-flare, I have to use the bathroom a few times in the morning; while in this full flare, it's usually in the morning and a couple hours after lunch.
Female, Age 19, Dx w/ UC August 2007
Seasonal allergies
9 Asacol/day, 1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis) 3 pills/day, 2 Florastor/day,
1-2 DanActive/day


Pooie1981
Regular Member


Date Joined Mar 2008
Total Posts : 274
   Posted 6/9/2008 9:00 PM (GMT -6)   
I find that my joint pain is worse in the morning and the evening. If I can convince myself to get outta bed and get a warm shower first thing in the morning my pains wont be too bad during the day. At night they come back full force tho.
Jenn 26/female
Ulcerative PANCOLITIS diagnosed 2004
Asacol 3 pills once/day
Daily Vitamin for Women and Folic Acid
Currently in a flare since March 6 !!!!!!!!!!!!!!!!!!!!!!!


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 6/9/2008 9:17 PM (GMT -6)   
For all IBDers in general, mornings are typically the worst time with having either crohns or ulcerative colitis.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


colitis-owns
Regular Member


Date Joined Jun 2008
Total Posts : 41
   Posted 6/10/2008 1:28 AM (GMT -6)   
ive been in remission for 10/11 months now and still have to go several times on a morning !!
I think thats quite usual for most people here.
 
Anyone find being constipated a lot lot worse than going too many times ???
I find it much more painful and uncomfortable.

Got2Believe
Regular Member


Date Joined Feb 2007
Total Posts : 436
   Posted 6/10/2008 7:31 AM (GMT -6)   
Yea, mornings are the worst. I lost a job last year for being late constantly. I had been written up like 3 times then a new manager came and I accidentally slept in for like the first time in my career and she gave me the boot. Today I had 3 BM's in the first 30 minutes after I woke up with some urgency. I was like I hope my roommate hurries up in there...

Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 6/10/2008 7:34 AM (GMT -6)   
In my current flare I am going 5x in the am and 5x when I get home.  If I sat on the toilet for an hour in the morning, would that count as one time?  (trying to make a joke = )

Beth, 32 ~ small flare - hoping caused by aspirin - hydrocortisone e's
Major Flare Sept/Oct 07
UC dx'd 03/00 (Proctosigmoiditis); Pancolitis since 09/07
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd 09/07 - partial remission since 03/08
Prednisone 5mg 1xday (tapered from 60 = ), Simvastatin 20mg 1xday, Diovan 160mg 2xday. Enalapril 20mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.  Do you have edema? If so, check your blood protien level!
 


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 6/10/2008 8:41 AM (GMT -6)   

I can't believe how young you all are.  I have had IBS for years but never blood - just occasional bouts of diarrhea controlled by eating better and Imodium when I had to - or pepto bismal. 

I suppose my age makes a difference.  Never realized that any of my joints pains could be related.  Doctor just said I have arthritis here and there.  I need two knee replacements and my surgeon won't operate until my bleeding is under control - do you think that will ever happen.  I am giving Canasa about 10 days before calling doctor - maybe he will add the pills and try that.  This is very frustrating but then I am sure I don't have to tell anyone here that.  ElaineNY


68 year old female
diagnosed IBS about 20 years ago,
colonoscopy one year ago diagnosed as colitis
which cleared up by itself using Imodium when needed,
flareup (with rectal bleeding and diarrhea)- 2 months ago, colonoscopy showed mild
UC rectal and little above.
Taking Canasa 1000mg. once a day - just started. No help yet.


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 6/10/2008 12:08 PM (GMT -6)   
kops2da said...

I can't believe how young you all are.  I have had IBS for years but never blood - just occasional bouts of diarrhea controlled by eating better and Imodium when I had to - or pepto bismal. 

Do you mean you've had IBD? :-)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 6/10/2008 12:34 PM (GMT -6)   

No - I had IBS for like 20 years.  I had a signoidoscopy 6 years ago and no colitis then.  I believe UC was caused by antibiotics taken for sinus infection last year.  Stool did not show that but it started right after I finished 2 weeks of Amoxicillin. I was prescribed enemas by a surgeon (I never did take them because of my reasons (obesity, etc.) and the bleeding stopped and seemed to clear up.  Just recently started again probably stress flareup since my husband has lung cancer.  I let it go while he was getting chemo, etc. and took Imodium nearly every day.

ElaineNY


68 year old female
diagnosed IBS about 20 years ago,
colonoscopy one year ago diagnosed as colitis
which cleared up by itself using Imodium when needed,
flareup (with rectal bleeding and diarrhea)- 2 months ago, colonoscopy showed mild
UC rectal and little above.
Taking Canasa 1000mg. once a day - just started. No help yet.


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 6/10/2008 12:40 PM (GMT -6)   
Oh, I see, because with IBS there actually is no bleeding involved, so I thought you meant IBD because many of us with IBD can go yrs with no bleeding (if we're lucky) but bleeding is considered a common symptom of IBD but not IBS, same with inflammation, it doesn't happen with IBS but that's what IBD is, inflammatory bowel disease.

I have both crohns and IBS and it can be frustrating.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


fitmom00
Regular Member


Date Joined Mar 2008
Total Posts : 113
   Posted 6/10/2008 6:48 PM (GMT -6)   
Yes!!! I've always wondered if others experienced this as well. For the most part, my flare is contained from waking until about 11-12:00. Then it's like I'm "done" for the day. There have been times during my flare where it bothered me at night, but not too often. I wonder if there is a physiological reason behind this. Even before UC, I was a regular morning person, if you know what I mean. Not sure if that would have much to do with it, but I'd be very interested to hear if someone has an answer as to why it's so much worse in the first few hours after waking.
Renee
Diagnosed w/ UC in August 2007
Current status: Flare

4 Lialda/day, steroid enema at night, Wellbutrin XL


barnsbury
Regular Member


Date Joined Jan 2006
Total Posts : 467
   Posted 6/13/2008 5:45 AM (GMT -6)   
Yep, add me to the list!  I cannot leave the house in the mornings at all. 

Abatacept Trial since Feb 2008 (Induction Period)
Back on Pred - 3mg - Steroid Dependent :-(
Azathioprine 175mg
Colazide x3
Actonel 35mg, EPA Fish Oils
Predfoam Enema - Had to stop as not allowed during trial
Asacol x 9, Lialda (Mezavant)
Remicade every 8 weeks  (Stopped working)
Aloe Vera Lily of the Desert Juice  Gave me the worst D !
Primadophilus Reuteri Probiotic
 

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