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Scottjk7890
New Member


Date Joined Jun 2008
Total Posts : 19
   Posted 6/9/2008 11:06 PM (GMT -6)   
I know dairy is kind of a no no, but soy milk should be fine right? And I keep hearing nuts and seeds are bad too. Its almost traumatic as my major workout foods are milk, peanut butter, peanuts and popcorn.

quincy
Elite Member


Date Joined May 2003
Total Posts : 30999
   Posted 6/10/2008 12:45 AM (GMT -6)   
Soy would cause me more gas than would milk....
Try not to use the term no-no regarding foods in regards to UC. Some bother people, some exacerbate discomfort, some don't cause any noticable symptoms at all. Food doesn't cause flares.

What symptoms are you having that is encouraging you to switch?

Most of us can be lactose intolerant....and when flaring, can cause more discomfort. Some will get gas regardless, and sometimes find that Lactaid milk or Lactaid pills helps lessen the symptoms.

Some female UCers have estrogen sensitive flares...soy is naturally high in estrogen, so...for some it might not be the best choice. Not to say that would be a bad choice for you....definitely try it, and if you have discomfort, then it's not a best choice.

Another option is Rice Dream....very refreshing!

Sometimes moderation is the key...finding the amount can be a pain, however.

If I haven't already....welcome to the forum.

What meds are you on?

quincy
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


OUsooner
Regular Member


Date Joined Sep 2004
Total Posts : 80
   Posted 6/10/2008 1:26 AM (GMT -6)   
Yeah i would do some research on soy.  From what i can remember, its not beneficial to health.
 
 
I'm 25 years old and a student.  :)
Pan-colitis DX in 98
Meds:
Prednisone 8mg (tapering). Colazal, Entocort. 
Supplements:
Carlson Fish oil, Glutamine, Whey Protein Isolate,  Multivitamin-mineral, Borage Oil, Digestive Enzymes, Natren probiotics 
Diet:
No sugar, grains, dairy.  Whole foods only. Water only.


Dr-A
Veteran Member


Date Joined Jul 2006
Total Posts : 2105
   Posted 6/10/2008 7:58 AM (GMT -6)   
I use almond milk mostly, soy second to that since it is cheaper. Neither bother me, but the almond milk is better. Almond milk makes good ice cream too... without the side effects that regular ice cream gives me.... mmmmmmmm.
Proctitis DX 1998
Lialda 1x day
Hydrocort Enema As Needed


kb5
Veteran Member


Date Joined Jan 2007
Total Posts : 1015
   Posted 6/10/2008 9:33 AM (GMT -6)   
I prefer rice milk to soy myself but i don't have any problems with dairy.
Kelly, 30

Left sided UC diagnosed 1/98 age 19, Pan colitis diagnosed 1/07
Currently on 4x3 Asacol, no more pred after two years!!!! Off imuran as remicade is working!
Prontonix once daily for acid reflux, zofran 8mg every six hours for nausea
Remicade started 3/1/08...just had 4th infusion


Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3442
   Posted 6/10/2008 9:34 AM (GMT -6)   
Lactaid Milk is the way to go! I don't drink milk, per se, but I eat cereal a lot. And I've been using fat-free, lactose-free, calcium renriched Lactaid milk- it's the ebst! Tastes fine in a bowl of cereal/oatmeal or a smoothie, no digestive issues at all, plus you get the added calcium which is good for people who've been on prednisone (I have, may times). I think it comes in 2%, whole, & skim varieties- also not calcium enriched. I used to drink tons of soy milk years back, but just stopped. This was way before my UC was diagnosed, so I don't know if it had any effect at all on it. And I also eat pnut butter crackers for lunch at least 2-3 times a week, peanut butter with Ritz crackers. Pnut butter is a really good way for someone with UC to get protein & fat.

diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade infusions
Imuran- 100mgs/day
Culturelle
 
 
 
 


JGutz
New Member


Date Joined Jun 2008
Total Posts : 11
   Posted 6/10/2008 9:56 AM (GMT -6)   
I drink soy milk every morning and sometimes twice a day. I doesnt seem to give me problems.  I have heard that almond milk is easier for the digestive system, but I have never bought almond milk. Can I pick these up in the grocery store? I want to give a try since I love eating almonds anyway.
Currently taking for UC - Prednisone 50mg, Colazal 750mg 9pills/day, hydrocotisone, Asacol 


jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 6/10/2008 1:12 PM (GMT -6)   
Welcome to HealingWell, Scott. Generally we avoid seeds and nuts when flaring because they are rough and physically irritate our inflamed colons. Nut butters may be fine, just try them and see. When in remission, I'm able to eat nuts and seeds in moderate amounts without trouble. I'm not able to eat popcorn at all, even in remission. The hulls just feel like barbed wire going through.

As far as dairy goes, I agree that you may want to experiment and observe whether it bothers you or not. Dairy has never bothered me, in fact cheese is one of my go-to foods when I feel I might be starting to get some inflammation. We're all different, and we each have to figure out our own best diet.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from steroid therapy.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


Dr-A
Veteran Member


Date Joined Jul 2006
Total Posts : 2105
   Posted 6/10/2008 3:39 PM (GMT -6)   
JGutz, Kroger's carries almond milk.   It's in the organic section at mine.
 
You can also make it if you have a pound of almonds.  I just blanch mine overnight in 4 cups water, blend them.  Run through a strainer to get the white milk portion off into a cup (this takes a little effort), add honey or agave nectar to sweeten, vanilla if you like.  You can also use the leftover ground up almond flour as protein source, or mix in with stuff.  Fun Fun.


Proctitis DX 1998
Lialda 1x day
Hydrocort Enema As Needed

Post Edited (D_A) : 6/10/2008 3:45:56 PM (GMT-6)


JEG
Regular Member


Date Joined Apr 2008
Total Posts : 112
   Posted 6/10/2008 4:19 PM (GMT -6)   
For me, peanut butter is fine. Milk is the worst and makes me sick almost immediately (i'm in the middle of a flare though). I love popcorn, sunflower seeds, nuts, etc, but again during a flare if I eat them I pay for it. I would just test it out. Milk never bothers me unless I'm flaring. The other people on this forum are right when they say everyone is different and for me every flare is different. If you drink a glass of milk and are in the bathroom 5 minutes later, I'd say don't drink milk. It helped me to start keeping a food journal and note what i eat and how bad my symptoms are afterwards. good luck!
3x3 colazol a day (non-generic)
1000 mg canasa bedtime
3 entocort a day
20 mg prednisone daily
2 cortifoam enemas daily
prenatal vitamin


Scottjk7890
New Member


Date Joined Jun 2008
Total Posts : 19
   Posted 6/10/2008 8:38 PM (GMT -6)   
I've just been told dairy products are a bad thing for it. I've had this disease diagnosed for 3 months and it already is aggrivating me to no end. It started in Iraq but wasn't extremely serious, so I hid it. 3 months after I got back it flared up horribly, I almost needed a transfusion. And to boot military medicine took 2 1/2 months to diagnose and medicate me. I left one week with hemmoroid cream, with no hemmoroids, and 3 weeks later left with what's essentially immodium. Right now I'm on 4 asacol twice a day, finished a prednisolone packet a week ago, and just got put on mesalamine enemas. On the food side I think I'll have to experiment with milk, I think I'm flaring up again. Thanks all for the welcome, it feels much better to be able to talk about all this somewhere than I thought it would. With what my job is I've been feeling like a cripple for awhile now.

quincy
Elite Member


Date Joined May 2003
Total Posts : 30999
   Posted 6/11/2008 2:03 AM (GMT -6)   
It's good you're on the eneams.

Where in the colon is your UC...throughout or limited?

We all go through food adjustments.

Milk isn't BAD for UC....it's just that milk can cause some symptoms (lactose intolerance).

How much imodium are you taking?

5ASA meds may take a while to kick in (show improvement of symptoms).

Make sure you use the enemas nightly until you are "normal"...remember you must taper them. The benefit of that is you'll find a maintenance dosage if need be.

Experiment with foods...make sure you eat your protein as well.

quincy
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


LR2112
Regular Member


Date Joined May 2008
Total Posts : 26
   Posted 6/11/2008 9:01 AM (GMT -6)   
I have drank soy milk during prednisone treatments with no ill effects. Again, experiment.

Scottjk7890
New Member


Date Joined Jun 2008
Total Posts : 19
   Posted 6/11/2008 9:51 AM (GMT -6)   
The immodium was just what they gave me when they thought I was just being a wuss. My UC is throughout, I've had blood tests twice just to check that it wasn't Crohn's. I had a few glasses of milk last night, so far I feel awful, but not in a way I think the milk is causing.

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 6/11/2008 10:53 AM (GMT -6)   
Usually it's recommended that IBDers avoid dairy but often that's because we are more likely to become lactose intolerant...taking a good probiotic can aid with lactose intolerance (I speak from experiance, it has done wonders for me, I no longer have to use lactaid products because I take primadophilus reuteri probiotic which specifies that it aids with lactose issues)...

Some people are sensitive to soy products but don't even realized it (by connecting how lousy they feel when ingesting soy, especially if they are only minimally sensitive to it).

It's pretty much trial and error, like anything eles.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


JGutz
New Member


Date Joined Jun 2008
Total Posts : 11
   Posted 6/20/2008 10:03 AM (GMT -6)   

D_A thanks for the reply.  I will pick some up Almond Milk.  Sounds tasty.


Currently taking for UC - Prednisone 50mg, Colazal 750mg 9pills/day, hydrocotisone, Asacol 


bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 6/20/2008 10:08 AM (GMT -6)   
I agree that you'll need to experiment to find out what works for you. My nutritionist did recommend soy milk but I haven't tried it.
Female, Age 19, Dx w/ UC August 2007
9 Asacol, Rowasa1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis), 1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, 1 DanActive, Remicade (1st infusion 06/08), 2.4 g Lialda


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 6/20/2008 1:25 PM (GMT -6)   
I was miserable without milk! It's one of my favorite foods/drinks. Thankfully I've found that it doesn't irritate me. Although I do stay away from drinking/eating a lot of dairy while I have frequent D and blood. There is something about dairy that can increase mucous production.

So, it's a trial and error thing. A food journal would be good. Write down what you eat/drink and what symptoms you have - then see if you can make a correlation.

I hope you find out what works for you :)
Pan-colitis and GERD diagnosed May 2003
Osteopenia (hip and spine) diagnosed Feb 2006
Status:  close to remission?!?!?
25mg Pred, Asacol 12 per day,  Azathioprine 100mg, Aciphex, Forvia, and Pro-Bio
1st Remicade infusion:  06/17/08
 
Co-Moderator for the UC forum:  Keep HealingWell running smoothly:  www.healingwell.com/donate


Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4538
   Posted 6/20/2008 8:11 PM (GMT -6)   
I drink soy milk almost every day. I also drink regular milk, but not as often, just because I don't like it that much. Peanut butter should be fine for you if it's the smooth kind. I eat p.b. frequently (I also eat nuts and popcorn though).
24 years old
Diagnosed with UC March 2007; yet to go into complete remission
Asacol 4 tablets 3x/day
Rowasa (generic) - nightly; Canasa (1,000 mg) in the morning
Nature's Way Primadophilus Reuteri 2/day; Chewable multivitamin; Metamucil; Viactiv

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