Last November my two year old son, Christopher, was diagnosed with UC. As far as i can tell it started between the ages of 6 -12 months. he was strictly breastfed for the first 6 months. after he started eating other foods i periodically noticed little specks of blood and mucous in his stool. the more he ate real food and nursed less, the more (quantity) and more often i noticed blood and mucous and that he was not having normal BM's and his stools were getting runnier though they had never been particularly formed. his pediatrician kept telling me that a little blood was normal and chocking the diarrhea up to stomach bugs. by age two he was having extremely painful explosive diarrhea 2-3 times daily. it hurt him so bad i would have to sit on the floor and hold him while he cried and pooped. the stool itself was so massive and watery that it would leak out of his diapers and run down his legs soaking whatever he was wearing. it was also extremely foul smelling. by then i was seeing blood and mucous almost daily. also, all he would eat was bananas and bread. i kept asking the pediatrician and kept getting the same response, questions about
diet and tests for parasites and other likely causes for diarrhea in a toddler. finally one day the nurse called to tell me the parasite tests came back negative (duh) and i got a little snappy with her. i asked what the next course of action would be and she asked me what i meant. well just having negative results doesn't make the problem go away. so finally they referred Chris to the GI. the pediatrician's referral said "acute diarrhea" though i had explained to him on several occasions that my child had NEVER had a solid poop in his life. eventually we got notice from the GI place that he had an appointment. a few weeks before the first scheduled GI appt Chris had his usual morning horror show BM and then about
1/2 hour later he had another though this second one was almost completely blood and mucous, at least several tablespoons worth. Of course seeing this amount of blood come out of my baby completely freaked me out and i called the GI office and demanded they see him sooner. they moved his appointment up but told me all that was available was the nurse practitioner. She was great. she listened to our story and asked a ton of questions and then checked his bottom and tested his stool for blood. she scheduled him for a colonoscopy and endoscopy the next day. that's when he was diagnosed with left-sided UC. the following day we spent at the local childrens hospital doing barium x-rays to see how wide spread the problem was. he was put on prednisone, pentasa, prevacid and iron. The prednisone made him insane! the first day he was on it he spent the entire time screaming, spinning and running into the wall. it also made him mean. i saw improvement in his BM's within the first few days of taking the Pentasa and he is now in remission. his only medication now is the Pentasa 250 mg's 3x's daily and he's the only 2 1/2 year old i've ever met who can swallow pills and capsules, out of necessity i'm sure. in the beginning i would give him the pentasa
opened into a spoonful of grits (yes we're in the south) but the prednisone had to be shoved down his throat. he caught on real quick to that and started swallowing them himself. He's the youngest person with UC his GI has seen by at least 8 years. Sometimes he doesn't want to take the medicine and i have to explain to him that his tummy will get sick again. I've started a medical journal for him. i'm also concerned about
UC presenting in my daughter.
i'm glad to have found this group and can't wait to get started learning more about UC and having people to talk to about it. i have had a difficult time finding any information on UC in children.