The Bright Side of IBD...

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Celey
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Date Joined May 2007
Total Posts : 1284
   Posted 6/10/2008 7:35 PM (GMT -6)   
I know I'm kind of stepping out of line here since I have Crohn's, not UC... but I figure us IBDers gotta stick together a bit, anyway, right? Can't let you guys go on feeling really depressed without your own little bright spot in this thread...

So... Think very hard. It might take a while, but try to think of the positive things that have come about since your being diagnosed with UC...

The thing I think about is that having Crohn's disease (and being so limited in what I can eat, now) has really encouraged me to explore my options regarding food. If I didn't have Crohn's, I'd probably stick to eating the same old things that I love to eat all the time (that I can't eat now... like brownies, for instance)... now, I have to work to find things that I can eat... and this has led to some interesting recipes I've experimented with. :)
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.


bb224
Regular Member


Date Joined Jun 2008
Total Posts : 33
   Posted 6/10/2008 7:42 PM (GMT -6)   
You can't eat brownies? May god have mercy on your soul.

Celey
Veteran Member


Date Joined May 2007
Total Posts : 1284
   Posted 6/10/2008 7:48 PM (GMT -6)   
Err... yeah.... It really sucks... but please... I am trying to keep things positive. :)
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.


Pooie1981
Regular Member


Date Joined Mar 2008
Total Posts : 274
   Posted 6/10/2008 8:31 PM (GMT -6)   
Okay, I am going to give this a try...

1. I am gaining a new outlook on life and going to start appreciating things I do/have now that I may not be able to do or have in the future. When I go back to work I think I am even going to appreciate that more than before because its something I dont think I am going to be able to do forever....

2. Ya find out who your true friends are.

3. I have been planning to get married in October.. my fiance never really knew what to expect with my Colitis and now that I have been in this flare he knows what he is in for.. and he loves me just the same. When I told him about the possibility of future surgery and possibly getting a pouch on my side... he said we'd save on toilet paper !! hahaha... Having this disease and this flare up has shown me that he is truly in love with me.. sickness and in health. I am blessed.

4. I have to agree on the eating healthier thing. Although I have strayed a bit the last few days.. I am eating spinach which is something I NEVER would have went out of my way to eat before.

5. Lastly... I found this site.. with all its great people, information, questions, comments, suggestions and stories. :O)

I really didn't think I would come up with anything... now I am smiling. :O) Good thinking Celey.
Jenn 26/female
Ulcerative PANCOLITIS diagnosed 2004
Asacol 3 pills once/day
Daily Vitamin for Women and Folic Acid
Currently in a flare since March 6 !!!!!!!!!!!!!!!!!!!!!!!


Celey
Veteran Member


Date Joined May 2007
Total Posts : 1284
   Posted 6/10/2008 8:33 PM (GMT -6)   
Great job, Pooie... :)... That's an excellent list. *Hugs, hugs* //^_^\\
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.


Pooie1981
Regular Member


Date Joined Mar 2008
Total Posts : 274
   Posted 6/10/2008 8:40 PM (GMT -6)   
LOL thanks... It really wasn't as hard as I thought... and like I said, it helped... and made me smile... HUGS back !!!!!
Jenn 26/female
Ulcerative PANCOLITIS diagnosed 2004
Asacol 3 pills once/day
Daily Vitamin for Women and Folic Acid
Currently in a flare since March 6 !!!!!!!!!!!!!!!!!!!!!!!


bellski
Regular Member


Date Joined Apr 2008
Total Posts : 499
   Posted 6/10/2008 9:21 PM (GMT -6)   
Thanks for posting this message, I was thinking of doing the same thing.  O.K.  One thing good that has come out of this disease is this website.  I feel a connection with the people on it and they are all very nice.  Another thing that is good is that I see how my family loves me and cares for me simply that they are concerned.  And finally, the best thing that I think can come out of having any disease or trial, is that it helps me grow closer to God.  When things are hunky dory, we sometimes shut God out because we don't think we need Him.  God is always there to help us through hard times, so this disease is bringing me closer to Him. 
Bellski (:
Lori (Bellski)-age 43 from Illinois
Diagnosed February 2008 with Ulcerative Proctitis, possible dysplasia
Currently: symptoms have subsided, awaiting biopsy results for dysplasia
Medications:  Asacol 400mg X 6, Cymbalta 20 mg X 1, Canasa (during flares) Vitamins:  Calcium 600 + D X 2, One a Day Women's X 1, Citrucel,
High fiber diet
"I thank God that  I found this website!"
 


Bennie
Veteran Member


Date Joined Nov 2006
Total Posts : 552
   Posted 6/10/2008 9:46 PM (GMT -6)   
Having a valid reason when the kids discuss bodily functions (they've always enjoyed talking about farting and pooping, now they can use IBDs as an excuse).

--Mom of bratcat (17 years old)--
Daughter bratcat was diagnosed with pancolitis October 2006
Current meds:
Asacol - 4 pills/3Xday, 2 tabs 6-mp/1.5 tabs 6-mp every other day, 25 mg prednisone, Remicade
 
11/14/06 - started prednisone; 1/28/07 - finished prednisone!
3/3/07 - began to taper off hydrocortisone sloowwly! Summer 2007 - slowly began tapering Rowasa. 9/07 -- flaring? Nightly Rowasa. 9/21/07 -- added hydrocortisone enemas. 9/30/07--added prednisone. 10/31--started 6-mp, stopped the enemas. Started lowering prednisone. 3/08-another flare!


ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 6/10/2008 10:11 PM (GMT -6)   
Having the perfect excuse to get out of doing/eating virtually anything you don't want to :)

I go to the doctor way more than I would if I were healthy, so if anything were to be wrong I'd find out sooner

Learning to be more compassionate to others, and being more in tune with myself

kazygirl
Veteran Member


Date Joined Sep 2007
Total Posts : 955
   Posted 6/11/2008 1:00 AM (GMT -6)   
i now know where every single bathroom is on the gold coast!~ LOL
so now, if someone on the street asks where the bathroom is, i can point them in the right direction... or most likely say 'follow me, im on my way there now (but try to keep up)"
steph - 32 - female - diagnosed UC in 2000
it was all over the place in my colon... but not anymore!
last 6 months have been fabulous with no UC symptoms at all (after a year long painfully horrible flare) 
weaned off everything..
but i think im flaring again..  grrr!
 
 


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 6/11/2008 4:57 AM (GMT -6)   
I've learned to slow down and really appreciate the good things in my life such as my children and husband. I've also learned that having a chronic disease doesn't have to make you stop living your life. To get out there and do things anyway. To live! :)
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs), Hydrocortisone E's, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis~Sacroiliitis-epidural injections
To help Healingwell - click here: DONATE
 
 
 
 

 
 


hana24
Regular Member


Date Joined Dec 2007
Total Posts : 354
   Posted 6/11/2008 6:26 AM (GMT -6)   
I have to force myself to not get so stressed out and I am way nicer to people - particully sick people. I watched a tv show last night that had a football player spend 30 days in a wheelchair to see what it was like for people who have to live in one. I think there are alot of people with a wide varity of problems that I can relate to now or at least sympathses. There are a lot of other sick people out there.
Jessica 26/F 30mg pred
dicyclomine 10Mg as needed
Citalopram 20 MG
Culturelle once daily
omeprazole(for acid reflex)
Tried (Entorcort EC 9ml/day and Prednisone, Asacol ,colazal)


madabs
Regular Member


Date Joined May 2008
Total Posts : 388
   Posted 6/11/2008 7:53 AM (GMT -6)   

Well....my GI looks quite a lot like Clive Owen! A definite bonus when I have to see him a lot. 

Also, having UC has freed me from the illusion that a day's worthiness is measured primarily by the number of things I have accomplished during it.


UC since 10/05, first symptoms felt as early 1983
canasa and lialda daily
 


Got2Believe
Regular Member


Date Joined Feb 2007
Total Posts : 436
   Posted 6/11/2008 8:09 AM (GMT -6)   
There has been a similar thread in the past. I like to say these are he major pluses
 
1) Way closer to GOD and for this I thank him all the time. He'll use whatever it takes to open your eyes...
2) My duaghter eats soooo healhy. She's 2.5 but will be an athlete like her dad someday.lol.
3) My daughter wont see me drinkin alcohol like I used to before UC.
4) I've learned so much about our #1 resource. The human body. And I'll probably live longer since I eat way healthier.

Bad Gut
Regular Member


Date Joined Feb 2007
Total Posts : 304
   Posted 6/11/2008 10:33 AM (GMT -6)   

There is so much but here are a few for me :

First thing is drive and determination in life.  I now hold the belief that anything is within our own power you just have to have the drive and determination to attack and conquer.  I'm not a quitter and battling this disease has driven the point home that no matter how large or over coming a problem is you just need to do whatever it takes to overcome it and never give up.

Secondly it has shown how the little things in life matter.  I stop to listen to the breeze in the trees nowadays, I stop to watch bugs and apreciate how hard they work in their little world of theirs.  

Third and most important it has taught me to love every minute of life - it can be taken away so easily from us.


Diagnosed Feb 2007
12 Asacol Daily
Rowasa nightly
Multi-Vitamin Daily
1 Probiotics pill daily - Culturelle with Lactobacillus
Tumeric and Garlic supplement 2x daily


kb5
Veteran Member


Date Joined Jan 2007
Total Posts : 1015
   Posted 6/11/2008 10:43 AM (GMT -6)   
Pooie... I've learned the same thing about my husband!!

It is the best feeling to know that no matter what My husband loves me. It's been 2yrs of homebound sickness. No work. I am about 80lbs more than the day he married me and he wants me more than ever. We've talked about it and agree that UC has brought us much closer together.

That is definitely the best part of UC for me.

Other perks:

I've learned to cook so that I would have some variety. I know love to cook!

I am now prepared for everything! i always have wipes on me when i'm with my neice and nephew, out with friends i am the instant walgreens always prepared with whatever may be needed.

oh there are more....it's just in the way you look at things.
Kelly, 30

Left sided UC diagnosed 1/98 age 19, Pan colitis diagnosed 1/07
Currently on 4x3 Asacol, no more pred after two years!!!! Off imuran as remicade is working!
Prontonix once daily for acid reflux, zofran 8mg every six hours for nausea
Remicade started 3/1/08...just had 4th infusion


Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 6/11/2008 10:52 AM (GMT -6)   
realizing how much people actually care, husband, friends and family.

I am addicted to wet wipes, not only do they help w/irritation from wiping but I have the cleanest bum in town!
Beth, 32 ~ small flare - hoping caused by aspirin - hydrocortisone e's
Major Flare Sept/Oct 07
UC dx'd 03/00 (Proctosigmoiditis); Pancolitis since 09/07
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd 09/07 - partial remission since 03/08
Prednisone 5mg 1xday (tapered from 60 = ), Simvastatin 20mg 1xday, Diovan 160mg 2xday. Enalapril 20mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.  Do you have edema? If so, check your blood protien level!
 


GangGreen
Regular Member


Date Joined Apr 2008
Total Posts : 44
   Posted 6/11/2008 11:18 AM (GMT -6)   
I learned an appreciation for all who struggle with a day-to-day illness, and an appreciation for the fact there are many people who are worse off on a day-to-day basis both with this illness and with other, more life-threatening illnesses.
dx UC Dec. 2001
currently in remission
 
Meds: asacol 6(400mg)/day
         entocort 3(3mg)/day
         canasa 1(1000mg)/day
         looking into probiotics
 


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 6/11/2008 12:08 PM (GMT -6)   
WE'LL NEVER HAVE A WEIGHT PROBLEM!!! LOL

princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 6/11/2008 12:59 PM (GMT -6)   
It forced me to clean up my diet, become more physically active and to destress my life. I'm in better physical shape than I've ever been and it feels great.
Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal.
 
 


ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 6/11/2008 2:01 PM (GMT -6)   
bbc said...
WE'LL NEVER HAVE A WEIGHT PROBLEM!!! LOL
Haha, true.. I've managed to put on a few pounds but I weigh very close to what I weighed throughout high school! It's nice to be able to eat all the junk food you want knowing that it won't make you gain weight, it will just make you have painful diarrhea for the rest of the night. Not sure if it's a good trade off but oh well, hahah.

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 6/11/2008 6:11 PM (GMT -6)   
bbc said...
WE'LL NEVER HAVE A WEIGHT PROBLEM!!! LOL
You would think that but unfortunately there are a ton of IBDers that battle the disease along with being over-weight...especially since pred is famous for doing that too many IBDers but even without pred, quite a few are over-weight.
 
:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


Got2Believe
Regular Member


Date Joined Feb 2007
Total Posts : 436
   Posted 6/12/2008 7:59 AM (GMT -6)   
Oh yea I just thought about another positive. We learn how to cope and not complain.
When I play basketball I always kind of find it funny and annoying sometimes to hear everyone complain about getting old, hurting, or being tired and I just think to myself if they only new...............
                                                                                         
28/M/TX single parent of gorgeous 2.5yo girl (revised 5/8/08)
Severe Colitis (pancolitis) since January 9, 2005
currently:  6th week flaring;improving; 2bm/day; very little blood
RX/day:  Currently 10mg of prednisone per day. Lost job and insurance 10/2007 and stopped taking asacol and Imuran cold turkey
OTC: seldom use VSL#3, vitamins & other natural treatments
Diet: SCD helps tremendously, but am not strictly on it.
Other: food combos, enzymes, good posture, chewing more, etc.


Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4236
   Posted 6/12/2008 11:16 AM (GMT -6)   
I don't let the little things in life bother me so much anymore. I've realized a lot of the things I used to get so mad or annoyed about just aren't worth it.
24 years old
Diagnosed with UC March 2007; yet to go into complete remission
Asacol 4 tablets 3x/day
Rowasa (generic) - nightly; Canasa (1,000 mg) in the morning
Nature's Way Primadophilus Reuteri 2/day; Chewable multivitamin; Metamucil; Viactiv


princesscolon
Veteran Member


Date Joined Apr 2006
Total Posts : 733
   Posted 6/12/2008 3:39 PM (GMT -6)   
I agree with everyone else about now I eat healthier and appreciate my life and family more, etc but one thing I don't think anyone mentioned is I love how flat my tummy gets after a "crappy" day. I guess that is weird, but it's true. For Celey; I sneak over to the Crohn's board sometimes so don't feel bad... I feel guilty when I do it though, LOL. I feel like I am betraying my UC homies. Ha ha.
Diagnosed with Left-sided UC in 1995 at age 15, Prednisone, Rowasa & Hydrocort. Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Aloe Juice, Canasa, Enotcort, Colazol, Anamantle, Remicade, etc... had 1 inch deep rectal ulcer 2004, put on Remicade, August 2007:Increased Remicade dosage-700mg every 6 weeks,diagnosed w/ Psoriatic Arthritis & Fibromyalgia Current meds: Clorazepate, Lomotil,  Tylenol pm, Lyrica started 1/17/08,  Humira started 4/4/08

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