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NA_NA
New Member


Date Joined Jun 2008
Total Posts : 11
   Posted 6/10/2008 9:28 PM (GMT -6)   
My sig. other was just recently diagnosed with UC 2 weeks ago. He suffered from severe stomach cramps and progressively more bleeding 2 months before he went to get checked out. He is taking the Lialda prescribed by his Gastro. doctor, but is also willing to try a few other recommendations posted here. One of the recommendations from a nutritionist at a local health food store was RevitalX. I am wondering if anyone here has has any experience w/RevitalX. She suggested that he wean off the Lialda, but we are not completely comfortable with that, so he's chosen to try both. RevitalX has a large dose of probiotics included in the powder, along with a multitude of other vitamins. He is wondering if he should go full force with the powder mix and only one meal a day, or just maintain a healthy diet, along with the powder.
Since we are new to understanding UC, we are not sure how much longer we can expect the bleeding to occur. His stool is still watery, but not sure if its from the cleansing effect of RevitalX or another problem to be worried about?
He is also planning to try the VSL#3 probiotics soon.

We've enjoyed all the great information posted on the forum!
Also, he is taking Aloe Vera, Digestive Enzymes, Chinese Herbal medicine, & manuka honey

quincy
Elite Member


Date Joined May 2003
Total Posts : 30366
   Posted 6/11/2008 1:12 AM (GMT -6)   
Hi...welcome to the forum.

Seems very odd that a nutritionist would encourage him (SO) wean off meds.

He should also be on rectal meds.

q


*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

Post Edited (quincy) : 6/11/2008 8:53:28 AM (GMT-6)


seconder
Veteran Member


Date Joined Jun 2008
Total Posts : 610
   Posted 6/11/2008 5:41 AM (GMT -6)   
That's S-O, not S-O-N, Quincy.
 
Hi kwaa,
 
Don't wean off of the meds.  Lialda may not work for your s-o, but you should try other asa medications if that's the case.
 
Not familiar with the particular product you've been recommended, but many people with uc add a probiotic of some sort to their diet.  At one time I did, but I didn't find that it did much for me.  But I do eat a lot of yogurt; I was raised on the stuff, and I notice a difference if I skip a day.
 
Aloe vera also caused the runs when I took it.
 
There are a number of tricks to firm up the stool.  You might try some fiber.  (I eat a lot of oatmeal.)  But, if your s-o's colon is inflamed, you might want to wait a touch.  I've been bleeding for a year, so I wish I could tell you when that will stop.
 
I understand the impulse to want to try natural remedies, but I wouldn't let them replace conventional therapy, especially at first.
 
And, as quincy points out, frequently, well meaningly, you can always try rectal meds. 
 
 

jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 6/11/2008 7:34 AM (GMT -6)   
Yes, please don't wean off the medication. 5-ASA medications not only help maintain remission, they also have a protective factor against colon cancer. I'd be really suspect of a nutritionist who gives such irresponsible advice. I also suspect she's practicing in violation of what is allowed by her license.

I do use a probiotic, Primadophilus Reuteri, that I buy on-line. It's inexpensive and for me, helps keep things more formed and allows me to eat more fiber without having D.

Be aware that it may take up to four weeks for the medication to become fully effective, and then it will take some time to heal the colon. If the frequency of stools hasn't decreased after four weeks, it's time to call his GI and discuss it. Good luck, and I hope he is soon feeling much better. Please feel free to ask whatever questions you like here. Remember that the responses you get will be varied and each person will tell you what they believe works for them. None of us are responding as health care professionals, so never let our advice take the place of talking to the doctor.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from steroid therapy.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


quincy
Elite Member


Date Joined May 2003
Total Posts : 30366
   Posted 6/11/2008 8:53 AM (GMT -6)   
thnx seconder.
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


seconder
Veteran Member


Date Joined Jun 2008
Total Posts : 610
   Posted 6/11/2008 4:32 PM (GMT -6)   
de nada. . . .

Sometimes you just have to tell people to stick in the keister.

NA_NA
New Member


Date Joined Jun 2008
Total Posts : 11
   Posted 6/11/2008 4:53 PM (GMT -6)   
Thanks everyone for the great advice. To the nutritionist's credit, I believe she was under the impression that he was taking an antibiotic and said that it would work against the RevitalX she was recommending. But we agree, it is not a good idea to wean-off the Lialda without giving it more time. All your comments about how long the healing process takes, really helped us to relax a little more. We were becoming impatient after not seeing immediate results, but it's good to know that it takes time to heal. Also, the Dr. didn't provide any advice about the Gastritis, in addition to UC and a heital hernia.


We will let you know how the RevitalX works if there are any significant changes.

Eric704
Regular Member


Date Joined Jan 2006
Total Posts : 261
   Posted 6/12/2008 1:55 AM (GMT -6)   
Best thing I've done for my colitis after 7 years of meds was getting off of them.
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