Colitis Symptom free for over 1 year and counting.

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Icebound
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Date Joined Jun 2008
Total Posts : 13
   Posted 6/11/2008 1:02 AM (GMT -7)   
It may not work for everyone but I have friends who have tried it and they have had awesome results:
 
SCD Diet + take the following daily - 4 Wild Salmon & Fish Oil capsules 1000mgs, 4 Acidophilus with bifidus & FOS(Non-Dairy), take a natural source multi-vitamin from a trusted manufacturer, 4 Calcium Magnesium with Zinc and drink plenty of Green Tea or White Tea as they both have excellent anti-inflammatory properties. The above has helped me greatly. Hope it helps you. 
 
There is alot of people charging for help with colitis but I think sites like this site are great as we should all work together to rid everyone of this horrible condition.
 
I took out your email address for security reasons.  Please remove your email addy as your screen ID and put it in your profile.    

Post Edited By Moderator (Red_34) : 6/11/2008 4:54:04 AM (GMT-6)


Red_34
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Date Joined Apr 2004
Total Posts : 23551
   Posted 6/11/2008 3:55 AM (GMT -7)   
Hi, welcome to HW. Thanks for sharing your success story. Where was the location of your Uc? Do you take any medications for it?
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs), Hydrocortisone E's, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis~Sacroiliitis-epidural injections
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Icebound
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Date Joined Jun 2008
Total Posts : 13
   Posted 6/11/2008 10:22 AM (GMT -7)   

Hi, the location was the lower bowel just before the rectum and a ways up. I was on medication (Asacol MSM pills & also enema's) but the pills started to kill my stomach and had no effect on the UC and taking the enema's was just too time consuming and of course annoying :) I finally had enough of the doctor being negative and I started doing research into natural anti-inflammatories and discovered the one's I listed had great properties as well I thought it would be great to restore and enhance the positive flora in the intestines to rid the bad microbes and all has been great since let alone I don't have a beer belly anymore with following the diet I'm on plus I'm in terrific shape.

Thanks for the reply:)   


Got2Believe
Regular Member


Date Joined Feb 2007
Total Posts : 436
   Posted 6/11/2008 11:02 AM (GMT -7)   
You should be very proud of yourself for discovering this and sticking to it. Congratulations. I already have most of what you mentioned so I'll try to take them.
Tell us more. Do you ever slip with your diet or is it strictly SCD? How long have you had UC? Please tell as much as you want. This is amazing.
                                                                                         
28/M/TX single parent of gorgeous 2.5yo girl (revised 5/8/08)
Severe Colitis (pancolitis) since January 9, 2005
currently:  6th week flaring;improving; 2bm/day; very little blood
RX/day:  Currently 10mg of prednisone per day. Lost job and insurance 10/2007 and stopped taking asacol and Imuran cold turkey
OTC: seldom use VSL#3, vitamins & other natural treatments
Diet: SCD helps tremendously, but am not strictly on it.
Other: food combos, enzymes, good posture, chewing more, etc.


AMK77
Veteran Member


Date Joined Mar 2008
Total Posts : 678
   Posted 6/11/2008 11:26 AM (GMT -7)   
Yes, please tell us if you stick to the SCD diet strictly. I would love to hear more about your success. Are you completely off meds now?
Diagnosed 2/29/08 with Mild Universal UC
I've had UC since 2000 but was in remission for most of those 8 years med free
Lialda Colazal & Asacol made symptoms worse, MUCH worse
Not taking any more meds for now. Trying a holistic approach.


bellski
Regular Member


Date Joined Apr 2008
Total Posts : 499
   Posted 6/11/2008 11:30 AM (GMT -7)   
What is the scd diet? I suppose I can google it.
Lori (Bellski)-age 43 from Illinois
Diagnosed February 2008 with Ulcerative Proctitis, possible dysplasia
Currently: symptoms have subsided, awaiting biopsy results for dysplasia
Medications:  Asacol 400mg X 6, Cymbalta 20 mg X 1, Canasa (during flares) Vitamins:  Calcium 600 + D X 2, One a Day Women's X 1, Citrucel,
High fiber diet
"I thank God that  I found this website!"
 


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2201
   Posted 6/11/2008 11:57 AM (GMT -7)   
The Specific Carbohydrate Diet
 
http://www.scdiet.org
Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal.
 
 


Icebound
New Member


Date Joined Jun 2008
Total Posts : 13
   Posted 6/11/2008 12:33 PM (GMT -7)   

Hi all, thanks for all the great words of encouragement but it is my pleasure if this helps you as too many people are out there trying to make a profit all the long making things worse (in most cases). I am very proud to mention I have been medication free for the whole time 1 year and counting with no symptoms of UC what so ever. I was devastated when I found out I had this horrible disease but don't give up. I am very strict with the diet and if you want a great read try Breaking the Viscious Cycle as it really an eye opener and Elaine Gottschall is a god sent for her work. I was diagnosed about 2 years ago and at the 6 month point of being diagnosed I had enough basically. Just remember these medications only bandaid the problem, everything needs to change, diet, stress management and outlook. I used to always hold grudges against people too and I tried swallowing the pill and approaching the people I had a thorn in my back against and I apologized to them and man I tell you it made a huge difference in my stress levels. I know this may not always be possible with everyone or a situation but everything that can be done to make things positive can only help and not hinder. Everyone laughs with my green tea/ white tea as I like it strong, usually 2 bags to one cup. Follow the SCD diet from Elaine Gottschall (sorry if the last name is spelled wrong :)) and take the supplements listed as we all have something missing out of our diets that causes this and everything should turn, it may take one to three months but it will be worth it, please get 7-8 hours sleep a night as well for repair. Let's all work together and share as much information as possible and we can all be proud of ourselves that in some way we've made each other better.

Keep in touch :) Icebound.  


PeanutMom
Regular Member


Date Joined Jun 2008
Total Posts : 197
   Posted 6/11/2008 1:07 PM (GMT -7)   
what do you call symptom free? I was told I was in remission but I still have to make trips to the facilities no less than 5-10 times in a day. I can see where they say that's better because when I was flaring I was literally house bound. 5-10 still keeps me close to home and with an 18 month old it gets hard to chase him down then have to suddenly stop & run because of sudden urges.

I was diagnosed in 1999 and have been jockeyed around more than I can even remember at this point, I have been medication free for the last year (at my demand) but I still suffer urges and frequency to a point.


Am I expecting too much thinking I could one day be pain free and have a routine schedule for my body?

Bigphule
Regular Member


Date Joined Dec 2007
Total Posts : 137
   Posted 6/11/2008 3:07 PM (GMT -7)   
icebound, congrats, I just don't think that I could stay on a diet like that. But if you're doin it great.
Diagnosed UC 12/2007
Updated 6/2/08 
 
Prednisone 40mg x 1/day 
Mercaptopurine 50mg x1/day 


Icebound
New Member


Date Joined Jun 2008
Total Posts : 13
   Posted 6/11/2008 4:37 PM (GMT -7)   
I remember when I first became sick with this and my wife and I had our second child at around the same time. I worked during the day and when at home in the night I would
let my wife get sleep and if our son would get up, which he did as he would spit up continuosly then I would get up with him to feed and change him. I remember sitting there feeding him and getting the urge to go to the bathroom, I thought it was diarrhea and just kept going that night and then it continued to the point I had to stay there and the poor little guy was on my lap as I was sick and bleeding. I thought maybe I had a bug. Then it started at work as I'd be sitting down and get an urge and I couldn't get to the bathroom fast enough and I'd end up going in my pants before reaching the toilet, you can imagine the embarrasment. It got to the point I couldn't pass gas as I was terrified of embarrasment and the blood and loose stool and not being able to get off the toilet. I once had a fissure tear and thought it was that again so proceeded to get suppositories for hemmoroids and trying to use those things killed me and put me in pain and had my wife finding me trembling on the floor more than once. Finally I had enough and past the denial and went to see my doctor to get a referral to see a gastro specialist. I went for my first segmoid scope and it killed me as the pain was unbearable and when I was put in recovery they came and told me it was colitis and gave me Asacol 500mg pills plus a prescription for salofalk enema's. The pills killed my stomach and did nothing for it and the doctor said that is a side effect and all pills do the same and the enema's just interfered with my family time and where very uncomfortable to administer. I no longer for over a year and counting take any medications and I have no more urges to go to the bathroom, no blood, no cramping, no pain, no high fibre diets(they make UC worse in the first place), and I have 1 bowel movement a day and it is healthy with no mucus and agin no blood and I'm happy to say I can pass gas again which my wife although she is very happy for me hates that part :)
 
Just imagine having your freedom back, not having to wonder if a bathroom is next to where you are or if you'll make it there, gaining healthy weight and muscle tone, having energy, no mood swings(my wife loves that one). I first hand know how hard this diet is as I love to eat and I'm Canadian so our foods are very greasy and are easy to access which I'm sure the rest of you love too but if you give it a shot you'll feel better, I know it as I have done it and continue to and the food is really good with access to all ingredients just at your supermarket or health store. If you need support feel free to email me when your craving those chips, milk, beer or whatever else it may be or just remind yourself of the pain you used to be in and do you really want to go back to that? Surely the answer is no.   


Icebound

Post Edited (Icebound) : 6/11/2008 9:54:53 PM (GMT-6)


NuffinButtTrouble
Veteran Member


Date Joined Mar 2007
Total Posts : 679
   Posted 6/12/2008 8:41 AM (GMT -7)   
Icebound,

(or should I say "IceMan" lol), thanks for the post.

My diet is similar to the SCD and I also take Acidophilus and bifidus probiotics that have to be refridgerated and other herbal supplements like Cal-Mag, etc. Apart from the Tea, our diets are very similar (I also take antifungals as well for now at least) and I am glad that you're doing well...it's not often that we hear of good news regarding UC, so I'm happy for you. I also have the book, "Breaking the Viscious Cycle" and it's an eye opener as to what foods are problematic (like sugar), etc. and why.

Finally, I believe that diet doesn't work for some of us because we are unique beings and sometimes because we don't give it enough time to work or we maybe eating something that we think is ok, but is actually contributing to a flare.

Thanks again for sharing,
"Long Live Our Colons!"
tongue  
NBT


Diagnosed with Ulcerative Colitis January 2007
Meds: Remicade, Primal Defense Ultra, Multi-vitamins (also iron, B12, Magnesium and Zinc), Flaxseed/Natures Bounty Fish Oil
Swanson Ultra Caprylic Acid (natural anti-fungal) 600mg x2 daily
Carrot & Garlic supplements (natural anti-fungal) x2 daily
Currently taking herbal meds in the search to regain full health.


Icebound
New Member


Date Joined Jun 2008
Total Posts : 13
   Posted 6/12/2008 4:55 PM (GMT -7)   
I hear ya and I agree everyone is different.
Icebound
Was taking Asacol 500 mg x 4 day
Salofalc Enema's everynight for two weeks and then as needed.
Symptom & Medication free for over a year and counting :)


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 6/12/2008 5:03 PM (GMT -7)   
Icebound,

Thanks for the info...I've heard this lady speak on the radio before she passed away.

How about sharing some of the good and bads foods (and good and bad carbs) with us so we all don't have to run out and buy another book.

Icebound
New Member


Date Joined Jun 2008
Total Posts : 13
   Posted 6/12/2008 6:28 PM (GMT -7)   
I'll get right on that and I'll either post it here in this blog or will make a new post for it. The book is also at any library too.
 
Icebound
Was taking Asacol 500 mg x 4 day
Salofalc Enema's everynight for two weeks and then as needed.
Symptom & Medication free for over a year and counting :)


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 6/12/2008 7:52 PM (GMT -7)   
That would be great and thanks .
FYI, some folks around here have tough time venturing too far from the "throne" and a trip tip the library might be a bit tough for them.
Looking forward to the do's and don'ts...good and bad foods/carbs etc.

Icebound
New Member


Date Joined Jun 2008
Total Posts : 13
   Posted 6/12/2008 8:32 PM (GMT -7)   
LOL......you're so right. My apologies to everyone on that comment and not only that there is usually only one bathroom too.....yikes.

Icebound
Was taking Asacol 500 mg x 4 day
Salofalc Enema's everynight for two weeks and then as needed.
Symptom & Medication free for over a year and counting :)


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 6/12/2008 8:39 PM (GMT -7)   
Icebound, just a reminder about lengthy posts. We need to be respectful of the bandwidth limitations, and we are asked to keep our posts short and to the point. If you can do that, great. If not, perhaps the information would better be distributed by e-mail. Thanks!


Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from steroid therapy.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


Icebound
New Member


Date Joined Jun 2008
Total Posts : 13
   Posted 6/12/2008 10:15 PM (GMT -7)   

Hi,

Are you talking about the posts I've previously posted or the information coming about foods allowed/not allowed etc?

I was planning on putting a link or something actually, my apologies.


Icebound
Was taking Asacol 500 mg x 4 day
Salofalc Enema's everynight for two weeks and then as needed.
Symptom & Medication free for over a year and counting :)


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 6/12/2008 10:48 PM (GMT -7)   
I was referring to the planned post, only because I could see it becoming long. A link is a better solution, thank you!
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from steroid therapy.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


PeanutMom
Regular Member


Date Joined Jun 2008
Total Posts : 197
   Posted 6/13/2008 6:45 AM (GMT -7)   
I'd be interested in that post or email too. . . .I have a hard time with weird things like I can eat spinach raw for days but any other greens tear me to shreds. It gets very frustrating to the point I'm in tears.

My worst time was a flare I had when my new born son was nursing. . . .I tried to wait until he was done but I was in such pain I was breaking out in a sweat. I had to break him off, lay him down and run. . . listening to him cry the whole time I was in there. I've never had my heart broken so badly and don't ever want to go through that again.

That's actually what prompted me to stop the meds I was taking to see how I was because I certainly wasn't under control on them. I actually got better without them and took my argument back to the GI. They weren't happy about the fact that I had tried that on my own but I was dead set I wasn't taking any of that again unless my situation warranted it. Since then I haven't had any major unexplainable flares and have been testing different foods on my own to see how I react. Having a guide would be SOOO much nicer.
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