preventative maintenence?

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Regular Member

Date Joined Jun 2008
Total Posts : 237
   Posted 6/11/2008 9:35 AM (GMT -6)   
I have so many questions i can't even keep them all straight.  my son has been in remission since shortly after his diagnosis in nov '07. so far the pentasa is keeping things in check. i probably haven't done nearly enough research on my own but i was hoping ya'll could help me out with some diet/supplemental suggestions. feeding a toddler is hard enough without trying to worry about special needs. i know high fiber/low fiber and low refined sugar/sodium, less processed food. i find lots of conflicting info on what to eat.... luckily he already like fresh fruits and we're working on the veggies. he also eats yogurt, but of course he prefers the kid friendly kinds. i'm thinking about trying some of the digestive ones and just making my own labels to put on them with ninja turtles and green food color and stuff.
any foods we should particularly avoid? things we should try? what about vitamins and supplements? his GI gave us all the usual pamphlets, but there's only so much to learn from them. i'd really like some first hand experience information. i'm so glad to have found this forum and have already gained a wealth of insight in the 2 days i've been reading here.
also, aside from bloody/mucousy diarrhea and complaints of pain, what are the other signs of a flare up that i should keep an eye out for. he communicates well for his age, but there's only so much a toddler can tell you.

Veronica (26), mommy to Chris (2.5 yr old, diagnosed november 2007 with left sided UC) and Emily 2.5 months
Chris current meds: Pentasa 250mg 3x's daily
currently in remission

Post Edited (UCMommy) : 6/11/2008 8:49:21 AM (GMT-6)

Veteran Member

Date Joined Feb 2006
Total Posts : 5698
   Posted 6/11/2008 10:25 AM (GMT -6)   
First my heart goes out to your little one. UC is horrible and I feel especially bad for young children who are diagnosed with it. As for diet, everyone is different. I found that foods did not affect my disease one way or the other except when I was in a flare. A balanced diet is probably best and it appears you are doing that. As for supplements the only one I would recommend is a good probiotic taken daily. Brands that have been tested for efficacy and approved are Culturelle. If you cannot find it in your local drugstore you can easily purchase it online.

dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free

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