I upped my pred again

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 6/11/2008 10:40 AM (GMT -6)   
went from 5mg to 20mg last wed saw some improvement (less blood, same amt of bm's, maybe a couple less here and there) and now so sick of it, put myself up to 40mg today to try to get rid of this flare.
 
I know I should call my GI, but he will want to put me on remicade (I can tell this using my ESP skills) and I am just not ready to do that, I am pretty sure this flare was caused by aspirin so I just want to try to see if I can taper down the pred again.
 
I feel bad about upping my pred w/out talking to my GI, so maybe I will call them today and let them know.  I guess I am just hoping I can get this flare under control and then taper back down to 5mg.
Beth, 32 ~ small flare - hoping caused by aspirin - hydrocortisone e's
Major Flare Sept/Oct 07
UC dx'd 03/00 (Proctosigmoiditis); Pancolitis since 09/07
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd 09/07 - partial remission since 03/08
Prednisone 5mg 1xday (tapered from 60 = ), Simvastatin 20mg 1xday, Diovan 160mg 2xday. Enalapril 20mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.  Do you have edema? If so, check your blood protien level!
 


kb5
Veteran Member


Date Joined Jan 2007
Total Posts : 1015
   Posted 6/11/2008 11:16 AM (GMT -6)   
Sorry to hear you still aren't doing well.

What are your fears about remicade?

Have you upped your probiotics?

40 usually got be better within a few weeks but had such a hard time coming off.

Hope you feel better soon!
Kelly, 30

Left sided UC diagnosed 1/98 age 19, Pan colitis diagnosed 1/07
Currently on 4x3 Asacol, no more pred after two years!!!! Off imuran as remicade is working!
Prontonix once daily for acid reflux, zofran 8mg every six hours for nausea
Remicade started 3/1/08...just had 4th infusion


Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 6/11/2008 11:47 AM (GMT -6)   
for remicade it is kind of my "last hope" before surgery unless I can somehow get on humira. So I trying to keep that in bag so to speak, it's my security blanket (even though who knows if it will help me or not). I know I just cant live my life with flares for very long (I lose too much blood and quality of life) and will get the surgery if the meds don't help me.

I just went back on probiotics and take the refrigerated 5billion cfu promidiolphious (sp?) natures way kind. I was thinking of upping that to 2xday, what do you think?

Also, kb5, how are you doing on remicade?  How is your nausea?  Are you still on imuran?


Beth, 32 ~ small flare - hoping caused by aspirin - hydrocortisone e's
Major Flare Sept/Oct 07
UC dx'd 03/00 (Proctosigmoiditis); Pancolitis since 09/07
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd 09/07 - partial remission since 03/08
Prednisone 5mg 1xday (tapered from 60 = ), Simvastatin 20mg 1xday, Diovan 160mg 2xday. Enalapril 20mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.  Do you have edema? If so, check your blood protien level!
 

Post Edited (Beth75) : 6/11/2008 10:55:12 AM (GMT-6)


disco
Regular Member


Date Joined Jan 2008
Total Posts : 154
   Posted 6/11/2008 3:05 PM (GMT -6)   
Remicade works great for me, if you are covered for it I wouldn't wait. 
Diagnosed in spring 2005 at age 28
Currently on 12 asacol pills a day + Entocort
40 MG Pred cycle stating 3/26
Remicade


bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 6/11/2008 3:29 PM (GMT -6)   
Beth, why Humira and not Remicade? I thought they were similar.
Female, Age 19, Dx w/ UC August 2007
Seasonal allergies
9 Asacol, 1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis), 2 Florastor, 50 mg 6MP


Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 6/11/2008 3:39 PM (GMT -6)   
Remicade is FDA approved for UC and my insurance approved it alreaday (but I went into remission, so I have not gone that route yet). Humira is not yet FDA approved for UC, it is for Chron's, so at this point, I don't know if it would be covered through my insurance, I would probably have to fail on remicade and then go through some monumental steps to get approval or get on a study (which I take other meds for my kidneys, so they prob. would not want me).

I hope this flare was caused by me taking aspirin, which can cause us UC'ers to flare up. When I taper down again, if I flare up, I will most definitely seek out remicade. If Imuran works for me, I have no problem taking it for as long as I can. I feel like I am just buying time anyway..........
Beth, 32 ~ small flare - hoping caused by aspirin - hydrocortisone e's
Major Flare Sept/Oct 07
UC dx'd 03/00 (Proctosigmoiditis); Pancolitis since 09/07
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd 09/07 - partial remission since 03/08
Prednisone 5mg 1xday (tapered from 60 = ), Simvastatin 20mg 1xday, Diovan 160mg 2xday. Enalapril 20mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.  Do you have edema? If so, check your blood protien level!
 


UCfree_at17
Regular Member


Date Joined May 2008
Total Posts : 91
   Posted 6/11/2008 4:30 PM (GMT -6)   
I just got diagnosed about three months ago with UC and the very day after my doctor found out it was UC he started me on a Remicade treatment. Ive had 3 since then. Theyve helped me a little and i didnt have any side effects at all =] Dont be scared. For a lot of ppl, Remicade is their miracle drug. You never know unless you try. Keep your head and ill be praying for you
God Bless, Katrina
Katrina
 
Severe UC, newly diagnosed
  Currently taking 15mg Prednisone,1mg Folic Acid,
25mg shot Methotrexate once/week,iron pill and multivitamin daily
 
 

New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, July 22, 2018 5:33 PM (GMT -6)
There are a total of 2,984,324 posts in 327,208 threads.
View Active Threads


Who's Online
This forum has 161989 registered members. Please welcome our newest member, 45791Anne312.
409 Guest(s), 14 Registered Member(s) are currently online.  Details
Froggy88, Kent M., whatdoigotDOC!, sandyfeet, cashlessclay, Girlie, feeling good, WilliamD, Landyandj, ShinytopPC, beagleman, KC342, 45791Anne312, (Seashell)