Update on smoking

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Rio in Maryland
Veteran Member


Date Joined Nov 2007
Total Posts : 891
   Posted 6/11/2008 1:56 PM (GMT -6)   
Just writing to give an update on my experiment with smoking. 
 
I was diagnosed with UC a few months after quitting smoking.  There had been several discussions on the issue and a few ex-smokers/nicotine users on this site and elsewhere had mentioned improvements in their symptoms after getting back to smoking.
 
After considerable thought I decided to give snus a try (chewing tobacco).  After a month of using it I noticed no effect on my symptoms, and then went to the next step and started smoking again.  I had previously smoked about 10 cigs a day.  I did not see any improvement at all and eventually ended up smoking more than I had ever done before. 
 
I smoked for about 4 months and had an extremely difficult time trying to quit again.  However, I have finally managed to kick the habit and have been smoke-free for about 2 weeks now.  My symptoms have not changed after stopping smoking.
 
Well, there's no way I'm going back to smoking again and I just wanted to write about my experience as I know there are other ex-smokers out there who have been wondering whether or not to try smoking again.  
Rio, 32 yr old male - diagnosed with UC in 07/2006.
 
Alternative therapies for several months (SCD, ayurvedic treatment, VSL#3): didn't work and became anaemic. Canasa, 2 daily: remission for a month then flared-up.
07/07-11/07: 4800mg Asacol (6 x 400mg, twice a day) & Aloe Elite.
Completed first (6 week) tapered course of Pred in 10/07, flaring up since coming off it.
11/07: Switched from Asacol to 12 x 750mg Colazal (3 weeks on it and symptoms got worse)
12/07: Asacol 4800 mg, Started Azathioprine 175mg, Prednisone taper from 60mg - Now on 10mg; 2/08: added 2 Pentasa x 1mg on alternate days.


Dr-A
Veteran Member


Date Joined Jul 2006
Total Posts : 2105
   Posted 6/11/2008 2:15 PM (GMT -6)   
If I can figure out how to make a nicotine enema, that will be my next venture.
Proctitis DX 1998
Lialda 1x day
Hydrocort Enema As Needed


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 6/11/2008 3:26 PM (GMT -6)   
They are working on a med that mimics the effect the carbon monoxide has on an inflammed colon.

Keep in mind, smoking does not necessarily work for every UCer, anymore then it's necessarily always going to make every CD worse (I speak from experiance in which smoking has helped me), IBD is very indvidulaistic and it's pretty much why there is not one thing that works for all.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


Severin
Regular Member


Date Joined Oct 2007
Total Posts : 320
   Posted 6/12/2008 3:01 AM (GMT -6)   
From my experience, it seems that only quitting smoking has any major effect - usually between 1.5 and 2 months after quitting I will flare really badly.

This does not work in reverse however, starting smoking again does not seem to improve my symptoms any.
"We are dreamers, shapers, singers and makers..." - Elric, Technomage
  • 28yo male. Brisbane, Australia. Diagnosed at 16yo. Currently enjoying severe pan-colitis.
    - Participating in the Golimumab trial as of 1st May, 2008;
    - 2x Colazide, twice a day; 25mg of 6-MP a day; 1xAllopurnol;
    - 1x teaspoon of Metamucil 3 times a day;
    - 1x BIOCeuticals UltraBiotic 45 + 1x SB FlorActiv twice a day.


colitis-owns
Regular Member


Date Joined Jun 2008
Total Posts : 41
   Posted 6/12/2008 3:06 AM (GMT -6)   

Both of my major flares occured after stopping smoking. I tried patches, nicotine gum and a nicotine nasal spray the second time to try and curb my symptoms.

Have been in remission for nearly a year with Azathioprine and havent even thought about starting smoking again.

Has anyone here used patches etc and had success with curbing symptoms ? or is it just actual smoking that helps ?


jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 6/12/2008 7:44 AM (GMT -6)   
Rio, I'm sorry it didn't help because your UC is still raging; I'm glad it didn't work because it lowers your chances of having both UC and emphysema. So, I'm not sure what to say. I'm hoping the western medicine will work for you finally.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from steroid therapy.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


Rio in Maryland
Veteran Member


Date Joined Nov 2007
Total Posts : 891
   Posted 6/12/2008 9:02 AM (GMT -6)   

Colitis-owns: I should have mentioned that I also tried nicotine patches for two months in 2007 and no response.

Judy: Thanks.  I am following my prescribed regimen of Western medecines but am also persevering at trying alternative treatments to get this under control.  I began acupuncture treatments last week and will give the forum an update on that once I've done it for a reasonable amount of time.


Rio, 32 yr old male - diagnosed with UC in 07/2006.
 
Alternative therapies for several months (SCD, ayurvedic treatment, VSL#3): didn't work and became anaemic. Canasa, 2 daily: remission for a month then flared-up.
07/07-11/07: 4800mg Asacol (6 x 400mg, twice a day) & Aloe Elite.
Completed first (6 week) tapered course of Pred in 10/07, flaring up since coming off it.
11/07: Switched from Asacol to 12 x 750mg Colazal (3 weeks on it and symptoms got worse)
12/07: Asacol 4800 mg, Started Azathioprine 175mg, Prednisone taper from 60mg - Now on 10mg; 2/08: added 2 Pentasa x 1mg on alternate days.


Bad Gut
Regular Member


Date Joined Feb 2007
Total Posts : 304
   Posted 6/12/2008 10:07 AM (GMT -6)   
My two cents. It seems that we hear a lot of people who stop smoking and end up in a flare afterwards. I always thought a lot of UC complications is due to stress and how our bodies handle stress. I do know that stress causes me problems. So I always wondered if it is really the stress that people go through when quitting smoking is what is really causing them to flare, rather than not having the smoke. When you stop smoking the body has to go through a detox period and rebalance your blood sugar metabolism. I think with all the physical stress and mental stress that people go through when quitting smoking is what is at the core of starting a flare.
Diagnosed Feb 2007
12 Asacol Daily
Rowasa nightly
Multi-Vitamin Daily
1 Probiotics pill daily - Culturelle with Lactobacillus
Tumeric and Garlic supplement 2x daily


creamofrice
Regular Member


Date Joined Jun 2008
Total Posts : 32
   Posted 6/12/2008 10:57 AM (GMT -6)   
I agree with badgut. I think because our disease is so subjective and personal we tend to over analyze a lot of what we do, eat, feel. I know it's important to be aware of all these things but I know sometimes I become a little obsessive when trying to figure out what is causing a flare. The mind is such a powerful thing and nicotine is so addictive that I’m sure we could easily convince ourselves that nicotine helps with UC to the point that it would help. Kind of a placebo. Also I know how relaxing a cigarette is on a cold day with a nice warm cup of coffee. Definitely reduces stress. I know how hard and stressful it is to quit smoking and that could definitely start anyone up on a flare. I quit smoking Feb. 07 after smoking for 6 years and it was really hard on the body and mind.
Diagnosed with Severe Ulcerative Colitis in Dec 2005 at age 19
2nd flare up-Hospitalized for 41 days (april-may 2008)
prednisone 30mg (tapering)-taking sicne 2005 :(
asacol 400mg-9 pills a day
remicade (just started)
iron, calcium, vitamin c
Attempting Diet-Eat right for your blood type (Type O)


ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 6/12/2008 11:48 AM (GMT -6)   
When I started a severe flare about three years ago, I quit smoking one month into it because I thought that would reduce my terrible heartburn, which it did a little... But then I flared for a year straight and NOTHING, not even prednisone, would help me. Then I started smoking again and was almost in remission two months later.
I have quit again a year ago and while I am flaring some now, I don't have any plans to start again even though I know there's a good chance it would help, it's just not worth it to me anymore.
Female, 22, Ulcerative colitis (pancolitis) since 1999; GERD; gastritis; osteopenia in hip & lumbar region of the spine from long term prednisone use.

Current Meds:
10mg Lexapro (for depression/social anxiety)
Digestive Advantage: Crohn's and Colitis formula (2 pills per day, started 5/14/08)
125mg Azathioprine
4800mg Asacol (Four 400mg tablets, three times a day)
 
 
 


Dr-A
Veteran Member


Date Joined Jul 2006
Total Posts : 2105
   Posted 6/12/2008 11:58 AM (GMT -6)   
I still need to figure out the best way to get the nicotine into the enema, bypassing the whole systemic and addiction thing.  The research on it is really interesting.  Any bright ideas???


Proctitis DX 1998
Lialda 1x day
Hydrocort Enema As Needed


Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4509
   Posted 6/12/2008 12:08 PM (GMT -6)   
Unfortunately, my smoking habit didn't prevent me from getting UC...
24 years old
Diagnosed with UC March 2007; yet to go into complete remission
Asacol 4 tablets 3x/day
Rowasa (generic) - nightly; Canasa (1,000 mg) in the morning
Nature's Way Primadophilus Reuteri 2/day; Chewable multivitamin; Metamucil; Viactiv


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 6/12/2008 12:29 PM (GMT -6)   

Carbon monoxide helps with inflammation in the colon...

http://www.medicalnewstoday.com/articles/35173.php

 

:)


My bum is broken....there's a big crack down the middle of it!  LOL  :)


Rio in Maryland
Veteran Member


Date Joined Nov 2007
Total Posts : 891
   Posted 6/12/2008 1:48 PM (GMT -6)   

I had read the published reports too on carbon monoxide/nicotine helping UC and I thought that it was worth a try, as after 2 years of not achieving full remission from all sorts of different treatments I was (and still am) desperate to get some kind of a normal life going - especially as I had never been ill before UC struck...Or to put it better, and take a quote from a GQ article on Marc Jacobs (the fashion designer)...my life had been normal until I got the "existential b*tch-slap of ulcerative colitis"!  

I agree that with this illness we can tend to over-analyze everything, from what we eat/drink to how we lead our lives and I recently stopped keeping a diary of my habits and symptoms so that I would stop obsessing over the minute details and instead focus on whatever is going right for me, rather than what's not.



Rio, 32 yr old male - diagnosed with UC in 07/2006.
 
Alternative therapies for several months (SCD, ayurvedic treatment, VSL#3): didn't work and became anaemic. Canasa, 2 daily: remission for a month then flared-up.
07/07-11/07: 4800mg Asacol (6 x 400mg, twice a day) & Aloe Elite.
Completed first (6 week) tapered course of Pred in 10/07, flaring up since coming off it.
11/07: Switched from Asacol to 12 x 750mg Colazal (3 weeks on it and symptoms got worse)
12/07: Asacol 4800 mg, Started Azathioprine 175mg, Prednisone taper from 60mg - Now on 10mg; 2/08: added 2 Pentasa x 1mg on alternate days.


cheeky22
Regular Member


Date Joined Jun 2008
Total Posts : 20
   Posted 6/25/2008 2:23 PM (GMT -6)   

Hi

This is the first post for me...

I was diagnosed with UC May 2007....I quit smoking 1 month before I was diagnosed and was using the Nicotine Patch and everything started about 1 week after I quit smoking but I waited 3 more weeks before seeing a doctor about it.  The dr's believe that quitting smoking triggered the UC even though I was using the patch.  I went back to smoking (stupid but I believed it would make me feel better).  Still flared on and off ( about every 3 months) but worse when I quit smoking.  Last flare was April 08 and I had again quit smoking in Feb, despite taking Prednisone 40mg again which usually helped within 7-10 days dr decided to try Remicade...and its wonderful.  Unfortunately I am again smoking, and afraid to quit..but maybe if i keep seeing results with the Remicade I will quit again.  So even though there is lots or studies on smoking/patch and UC the patch does not help me.

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