Don't you just love doctors?

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bellski
Regular Member


Date Joined Apr 2008
Total Posts : 499
   Posted 6/11/2008 4:10 PM (GMT -6)   
So, as many of you know I am impatiently waiting for my biopsy results to see if I have dysplasia.  I was supposse to know by tomorrow.  I've been calling yesterday and today though because it is all I can think about.  Well the nurse said the biopsy results aren't in yet and that the doctor is on vacation until the 20th.  She said only he can tell me the results and he will call me when he gets back.  Last week he told me to call the office this week for the results.  I'm just frustrated.  We are waiting to decide if we are taking a vacation or going in for more opinions.  We can't plan anything until we know more.  I'm so frustrated.  Sorry....I just had to vent....Thanks for listening.
Bellski
P.S. I'm calling again tomorrow and demand (or ask) to speak to a differrent doctor to get my results.  Waiting is just too hard!
Lori (Bellski)-age 43 from Illinois
Diagnosed February 2008 with Ulcerative Proctitis, possible dysplasia
Currently: symptoms have subsided, awaiting biopsy results for dysplasia
Medications:  Asacol 400mg X 6, Cymbalta 20 mg X 1, Canasa (during flares) Vitamins:  Calcium 600 + D X 2, One a Day Women's X 1, Citrucel,
High fiber diet
"I thank God that  I found this website!"
 


ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 6/11/2008 4:25 PM (GMT -6)   
Ugh, I really hate that. How stupid. It's like when you get xrays and you KNOW the tech knows exactly what they're looking at but they're like "The doctor will call you and tell you what we find". I know it's a liability thing but it still sucks.

Anyway, I see no reason why another doctor couldn't tell you the results, especially if your doctor knew he was going in vacation and told you to call the office for the results. Good luck I hope you're able to find out soon. Waiting is the worst part, especially when you're afraid it might be bad news.
Female, 22, Ulcerative colitis (pancolitis) since 1999; GERD; gastritis; osteopenia in hip & lumbar region of the spine from long term prednisone use.

Current Meds:
10mg Lexapro (for depression/social anxiety)
Digestive Advantage: Crohn's and Colitis formula (2 pills per day, started 5/14/08)
125mg Azathioprine
4800mg Asacol (Four 400mg tablets, three times a day)
 
 
 


checkerjane91
Regular Member


Date Joined May 2008
Total Posts : 61
   Posted 6/11/2008 4:30 PM (GMT -6)   

OMG!  That's crazy, especially when he told you to call this week.  Like he didn't know he was going on vacation?

I don't blame you a bit for being frustrated, I would be feeling exactly the same way.  I am sorry that I don't have any words of advice for you.  Just wanted to let you know that I understand waiting is the hardest part.  Especially when you are expecting to know the results on a specific day and then find out that it could be more than a week after that!  I wonder if the doctor who is "on call" for him could help you?

You know, it would be really nice to get what you pay for when it comes to health care (even if you have insurance it's not like they don't make a pretty penny off of you).    I went to a new doc yesterday, and his office visit was $220.  I had to pay a $20 copay.  Anyway, he wasn't in the room with me very long, and I would have been really p!$$ed off if I had paid $220.

I hope you know something soon, sending alot of hugs and smiles your way!

Beth

P.S. - I noticed on the "What You Hate Most about IBD" thread that you mentioned teaching.  I am going into my second year of teaching.  I hope you are enjoying your summer even in light on the stress your colon and doctor are putting you through! 



seconder
Veteran Member


Date Joined Jun 2008
Total Posts : 610
   Posted 6/11/2008 4:31 PM (GMT -6)   
I actually loathe doctors, even the ones I get along with.

ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 6/11/2008 4:41 PM (GMT -6)   
"You know, it would be really nice to get what you pay for when it comes to health care (even if you have insurance it's not like they don't make a pretty penny off of you). I went to a new doc yesterday, and his office visit was $220. I had to pay a $20 copay. Anyway, he wasn't in the room with me very long, and I would have been really p!$$ed off if I had paid $220."

Seriously!!! One time I went in to a doctor to have some moles checked out because my doctor employer and a few people told me I should, just to be safe. This guy came in the room, asked why I felt they might be problematic, told me I was not at risk for cancerous moles, looked at ONE (not even the ones I was talking about) and left. He acted like I was a huge inconvenience to him and he was annoyed that I would waste his time with something like that and was in the room for no more than two minutes. Needless to say I never went to that doctor again but I still had to pay the copay and I didn't even feel like it was worth the $20. It's just outrageous.
Female, 22, Ulcerative colitis (pancolitis) since 1999; GERD; gastritis; osteopenia in hip & lumbar region of the spine from long term prednisone use.

Current Meds:
10mg Lexapro (for depression/social anxiety)
Digestive Advantage: Crohn's and Colitis formula (2 pills per day, started 5/14/08)
125mg Azathioprine
4800mg Asacol (Four 400mg tablets, three times a day)
 
 
 


Dr-A
Veteran Member


Date Joined Jul 2006
Total Posts : 2105
   Posted 6/11/2008 5:57 PM (GMT -6)   
I had an 8:30 appt. on Fri morning. I was there at 8:15. I was seen at 9:30 blood pressure taken, put in another room. Sat until a little after 10 am. Nurse practitioner came in talked with me for a little while set me up for colonoscopy. Wouldn't change my lomitil to bentyl. Took my blood and charged me 860$ LOL!!!
Now working in a practice myself I apologize to a patient if I am 5 minutes late. No one mentioned a dang thing to me about taking forever, when I was the second one to be seen that morning. Pitiful.

Called me yesterday to reschedule my colonoscopy a week later because the doctor has a meeting to go to................ Yes, very irritating, and if he wasn't the so called best IBD doc in Nashville I would have walked out. Colonoscopy now scheduled a few days before I go off to Jamaica.
Proctitis DX 1998
Lialda 1x day
Hydrocort Enema As Needed


ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 6/11/2008 6:03 PM (GMT -6)   
D_A, I hate when they just stick you in a room and forget about you for two hours. Unfortunately I'm the pushover type and would sit there all day without saying a word, it's just unfortunate that it happens so often! I wish they would at least call and say "Just so you know, the doctor is running behind schedule so it'd be best if you came in an hour later so you're not waiting forever"

But to charge you $860 for that is outrageous :(
Female, 22, Ulcerative colitis (pancolitis) since 1999; GERD; gastritis; osteopenia in hip & lumbar region of the spine from long term prednisone use.

Current Meds:
10mg Lexapro (for depression/social anxiety)
Digestive Advantage: Crohn's and Colitis formula (2 pills per day, started 5/14/08)
125mg Azathioprine
4800mg Asacol (Four 400mg tablets, three times a day)
 
 
 


bellski
Regular Member


Date Joined Apr 2008
Total Posts : 499
   Posted 6/11/2008 7:54 PM (GMT -6)   

Thanks for all of the replies, I think we've all had our share of frustrations with doctors and situations. 

Checkerjane:  I just finished my second year teaching.  I went back to college and started when my kids were older.  What grade do you teach?  I teach 2nd.  It is the best job in the world.  Take Care,  Bellski


Lori (Bellski)-age 43 from Illinois
Diagnosed February 2008 with Ulcerative Proctitis, possible dysplasia
Currently: symptoms have subsided, awaiting biopsy results for dysplasia
Medications:  Asacol 400mg X 6, Cymbalta 20 mg X 1, Canasa (during flares) Vitamins:  Calcium 600 + D X 2, One a Day Women's X 1, Citrucel,
High fiber diet
"I thank God that  I found this website!"
 


PumpFast
Regular Member


Date Joined Jun 2006
Total Posts : 140
   Posted 6/11/2008 7:59 PM (GMT -6)   
bellski said...
So, as many of you know I am impatiently waiting for my biopsy results to see if I have dysplasia.  I was supposse to know by tomorrow.  I've been calling yesterday and today though because it is all I can think about.  Well the nurse said the biopsy results aren't in yet and that the doctor is on vacation until the 20th.  She said only he can tell me the results and he will call me when he gets back.  Last week he told me to call the office this week for the results.  I'm just frustrated.  We are waiting to decide if we are taking a vacation or going in for more opinions.  We can't plan anything until we know more.  I'm so frustrated.  Sorry....I just had to vent....Thanks for listening.
Bellski
P.S. I'm calling again tomorrow and demand (or ask) to speak to a differrent doctor to get my results.  Waiting is just too hard!

Bellski,
 
I am just wondering. You sate in your signature that you were just diagnosed with UC in 2008. How long have you been having symptons of UC before your diagnosis?
 
The reason I am asking you this is because dysplasia very rarely shows up in those who have had UC less than 7 years. Maybe they the pathologists goofed the first time?
 
Take Care,
 
PF
6MP, Asacol, Rowasa
VSL#3, Florastor (Saccharomyces boulardii), Mutaflor(E. Coli Nissle 1917)
Psyllium Seed Powder, Turmeric Extract, Fish Oil, SeaCure
Multivitamin, Folic Acid, Vitamin C, Alpha Lipoic Acid, L-Carnitine, L-Taurine
Ulcerin I and Ulcerin II (ayurveda herbal medication for UC)
Low Dose Naltrexone 4mg


bellski
Regular Member


Date Joined Apr 2008
Total Posts : 499
   Posted 6/11/2008 8:27 PM (GMT -6)   
PF, I love hearing stuff like that.  It makes me worry less.  I want to say that before my colonoscopy that I had symtoms for 2 or 3 months.  I had thought it was internal hemmerroids and was trying to treat it but that didn't work.  
The inflammation was pretty severe and they thought there was dysplasia but couldn't be sure through all of the inflammation so they recommended close follow up and  more biopsies.  I am suppose to have my results to the latest biopsies tomorrow but the doc is out of town, I'm hoping  to get them from another doctor that works with him.  I have also heard that inflammation sometimes looks like dysplasia.  I am assuming all will be fine, but I can't wait to hear those words.  Thanks for your input, it helps me relax a little.  Take Care, Bellski
Lori (Bellski)-age 43 from Illinois
Diagnosed February 2008 with Ulcerative Proctitis, possible dysplasia
Currently: symptoms have subsided, awaiting biopsy results for dysplasia
Medications:  Asacol 400mg X 6, Cymbalta 20 mg X 1, Canasa (during flares) Vitamins:  Calcium 600 + D X 2, One a Day Women's X 1, Citrucel,
High fiber diet
"I thank God that  I found this website!"
 


KIMEEEE
New Member


Date Joined Jun 2008
Total Posts : 17
   Posted 6/11/2008 9:31 PM (GMT -6)   
Some doctors are great and some are completely lame. I went to the doctor 2 weeks after finding out about my coliits. My regular doctor had gone for the day due to an emergency, so i had a partner doctor that I have never met. She actually told me, "I'm so sorry you have colitis but at least you'll be skinny." Is that unbelievable or what?!! Never will see her again!!!!!
Diagnosed with mild colitis Feb 2008
 
Asacol 400mg 2x a day


PumpFast
Regular Member


Date Joined Jun 2006
Total Posts : 140
   Posted 6/11/2008 10:42 PM (GMT -6)   
bellski said...
PF, I love hearing stuff like that.  It makes me worry less.  I want to say that before my colonoscopy that I had symtoms for 2 or 3 months.  I had thought it was internal hemmerroids and was trying to treat it but that didn't work.  
The inflammation was pretty severe and they thought there was dysplasia but couldn't be sure through all of the inflammation so they recommended close follow up and  more biopsies.  I am suppose to have my results to the latest biopsies tomorrow but the doc is out of town, I'm hoping  to get them from another doctor that works with him.  I have also heard that inflammation sometimes looks like dysplasia.  I am assuming all will be fine, but I can't wait to hear those words.  Thanks for your input, it helps me relax a little.  Take Care, Bellski

In all likelihood you probably DO NOT have dysplasia. It makes no sense that you would have dysplasia with any type of UC (left side, pancolits, proctitis) of duration less than 1 year. Much less likely with proctitis. By most accounts that I have read, ulcerative proctitis has no more of a chance to develop colorectal cancer(dysplasia, etc.) than the general population. Try to rest your mind.

PF


6MP, Asacol, Rowasa
VSL#3, Florastor (Saccharomyces boulardii), Mutaflor(E. Coli Nissle 1917)
Psyllium Seed Powder, Turmeric Extract, Fish Oil, SeaCure
Multivitamin, Folic Acid, Vitamin C, Alpha Lipoic Acid, L-Carnitine, L-Taurine
Ulcerin I and Ulcerin II (ayurveda herbal medication for UC)
Low Dose Naltrexone 4mg


checkerjane91
Regular Member


Date Joined May 2008
Total Posts : 61
   Posted 6/12/2008 10:03 AM (GMT -6)   

Hi Lori,

I taught PreK last year, and I about lost my mind!  It takes a special person to be in a room full of four-year-olds all day long!  I got a job in the district I live in for next year, and I will be teaching 6th grade math, science, and geography.  I did a long term maternity leave sub in this grade and subjects, and I liked it.

Eagerly awaiting your good news because I know that's what it will be!!!!

Take some deep breaths today - hugs and warm wishes!

Beth


bellski
Regular Member


Date Joined Apr 2008
Total Posts : 499
   Posted 6/12/2008 10:21 AM (GMT -6)   

Hi Beth, Thanks for the reply.  I know what you mean, I taught preschool before and it wasn't my cup of tea.  I hope you like 6th grade. There is an awesome book I reccommend for summer reading and you might find it at the library.  It is called "The First Days of School"  by Harry Wong.  I read through it each summer to get motivated. 

Thanks for the encouragement.  I feel I will get good results too.  (: 

Take Care, Lori


Lori (Bellski)-age 43 from Illinois
Diagnosed February 2008 with Ulcerative Proctitis, possible dysplasia
Currently: symptoms have subsided, awaiting biopsy results for dysplasia
Medications:  Asacol 400mg X 6, Cymbalta 20 mg X 1, Canasa (during flares) Vitamins:  Calcium 600 + D X 2, One a Day Women's X 1, Citrucel,
High fiber diet
"I thank God that  I found this website!"
 

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