Posted 6/13/2008 9:40 AM (GMT -6)
Elephantlover: I second Judllyn, my first thought when I read your email was that it sounds like C.diff. I would cconsider this especially with the recent hospital stay. Hope you can get to the bottom of this soon and have resolution.
Slimcook
dx:2003 Pancolitis
current meds:
Colazol 1500 TID, Imuran 100mg, Healthy Trinity Probiotic, Grape Seed Ext. Biotin, Vit. E., Selenium, Flax Oil, Calcium, Zinc and Emergen-C

Posted 6/13/2008 10:04 AM (GMT -6)
Elephantlover,

I was going along fine until I took aspirin over a two day course I think that is what cause me to flare up and now I am @ 40mg of pred and it is finally helping my flare.

HTH!
Beth, 32 ~ small flare - hoping caused by aspirin - hydrocortisone e's
Major Flare Sept/Oct 07
UC dx'd 03/00 (Proctosigmoiditis); Pancolitis since 09/07
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd 09/07 - partial remission since 03/08
Prednisone 5mg 1xday (tapered from 60 = ), Simvastatin 20mg 1xday, Diovan 160mg 2xday. Enalapril 20mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.  Do you have edema? If so, check your blood protien level!
 

Posted 6/13/2008 10:40 AM (GMT -6)
I have no advice but you have my thoughts and prayers. I know the frustration of so many doctors, I have UC, asherman's syndrome (female issue) and stage 3 chronic kidney failure. I have to agree with other posters, search for a new GI you don't need the added stress of a GI that's not listening to you.

I hope all is well I haven't seen a post from you today. With any luck you are resting peacefully for a change (o:
Posted 6/13/2008 11:21 PM (GMT -6)

Hi EL,

Sorry about your situation. I have gone throught the heart/uc combo, I had a quadruple bypass. When I was struggling to stablize from a flare my cardio doc let me drop the aspirin. When I was stable I added the aspirin back in. Ask him if you can do that and then ease back in with 1 a day for some time before you add the second. Ask if maybe you can stay on one a day. I assume they are the 81mg.

Good luck  


Steve


Asacol 1200mg-3x a day

Probiotic=metagenics ultra flora plus DF

Hydrocortizone when needed

Off the prednesone since September 8th (omg)


Heart meds

Lipitor,Toprol, aspirin 81

synthroid

Posted 6/13/2008 11:26 PM (GMT -6)
If they put you on antibotic to prevent infection for the stents then that might have really kicked up your UC. Hope you feel better soon.

Post Edited (bbc) : 6/14/2008 10:01:41 AM (GMT-6)

Posted 6/14/2008 9:04 AM (GMT -6)
Angel, I've been thinking about you.  I hope you are starting to get better.  How are you feeling today?  Lori (Bellski)

Lori (Bellski)-age 43 from Illinois
Diagnosed February 2008 with Ulcerative Proctitis,
Currently: symptoms have subsided for the most part
Medications:  Asacol 400mg X 6, Cymbalta 20 mg X 1, Canasa (sometimes) Vitamins:  Calcium 600 + D X 2, One a Day Women's X 1, Citrucel, Probiotics
High fiber diet
"I thank God that  I found this website!"
 

Posted 6/14/2008 1:15 PM (GMT -6)
Hi everyone, I am feeling better today. Have only been about 7 times. I had that really scary episode last night where I just poured blood, but it stopped. It is still bright yellow and watery. The cramps are not so severe and are farther apart today. I got about 6 hours sleep last night without getting up and that made me feel better. I ate a few peices of toast this morning, the first real thing I have had in days. Have lost about 13 pounds, that I can afford to lose, but not this way. My stomach is so sore I don't want to touch it or stretch it. I hope I continue to do better. I did not take my asprin this morning and I am feeling better. But I will take my Plavix this evening, I need that. Go back to cardio tuesday. Thank you all for caring and talking with me. Makes me feel better to know someone fully understands. Angel
 

Posted 6/14/2008 1:24 PM (GMT -6)
I'll continue to pray for you. You might want to keep a journal of what's been going on to tell the doctor in case you forget things. When you are so sick, it's hard to focus sometimes. Keep us posted, Lori (Bellski)
Lori (Bellski)-age 43 from Illinois
Diagnosed February 2008 with Ulcerative Proctitis,
Currently: symptoms have subsided for the most part
Medications:  Asacol 400mg X 6, Cymbalta 20 mg X 1, Canasa (sometimes) Vitamins:  Calcium 600 + D X 2, One a Day Women's X 1, Citrucel, Probiotics
High fiber diet
"I thank God that  I found this website!"
 

Posted 6/14/2008 1:29 PM (GMT -6)
Lori, I am keeping it all wrote down so I can take to Dr. I am also going to do the butter bowl container and catch it next time. If for nothing else myself. I want to know what is coming out of me. I know that sounds gross, but I am tired of looking and not knowing if it really is clotted blood or stool. Keep me in your Prayers and I will have you in mine. Angel
 

Posted 6/14/2008 8:51 PM (GMT -6)
EL - are you on Colazal? I had very yellow stools while on it for a few months back in '03.

I hope you're continuing to feel better!
Pan-colitis and GERD diagnosed May 2003
Osteopenia diagnosed Feb 2006
Status:  Flaring
 
Asacol 12 per day,  Azathioprine 100mg, Aciphex, Forvia, and Pro-Bio
30mg Pred until I get set up for Remicade
 
Co-Mod for the UC forum:  Keep HealingWell running smoothly:  www.healingwell.com/donate

Posted 6/14/2008 9:13 PM (GMT -6)
Hi Dakota, Yes I am on Colasal, 3 x 3 a day. I had soft yellow stool from it. What I have now is watery bright yellow stool. But it is starting to let up some now. Just have the bloody Stool in bottom of commode now. Stomach still hurts, but no where near what it was. I think alot now might be just from where I am so sore. And I am weak and hungry. I have lost a total of 16 pounds, it went fast. Kind of scary to watch yourself lose weight that fast. But I needed to lose it so I guess that was the good thing. Laid down and slept 3 hours today. Been a week today since it started. Thank you for caring and May God Bless You, Angel 

 

Posted 6/14/2008 10:46 PM (GMT -6)
I understand the feelings - like your guts have been trampled and are RAW. Losing that much weight is tough on the body. I'm concerned that you're not getting enough nutrients. Are you able to get down Gatorade or Powerade? Chicken broth? Keep foods simple and REST when you can.

Let us know how you're doing.
Pan-colitis and GERD diagnosed May 2003
Osteopenia diagnosed Feb 2006
Status:  Flaring
 
Asacol 12 per day,  Azathioprine 100mg, Aciphex, Forvia, and Pro-Bio
30mg Pred until I get set up for Remicade
 
Co-Mod for the UC forum:  Keep HealingWell running smoothly:  www.healingwell.com/donate

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