HELP!! I need help, I am really sick!!

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elephantlover
Regular Member


Date Joined Mar 2008
Total Posts : 56
   Posted 6/12/2008 7:04 PM (GMT -6)   
Hi all, I haven't been on lately due to being in the hospital and to sore and sick to sit at P.C. But I really need you all's help. Am Confused!! I went in the hospital on May 19, not because of U.C. but my heart. I had 2 stents put in. My heart is fine now, except I have gas from my acid reflux build in my chest and it scares me. They put me on Plavix, 2 baby aspirin, cholestrol meds, they said it might irritate the U.C. But I have to take it. But what is really scary is this, Sunday I felt sick to the stomach, no energy, just laid around. In the middle of the night I woke up not being able to control my BM. It is Bright Bright yellow, runny as water, no blood mixed with it til yesterday. Stomach cramps so severe, in one day I took 4 bentyl's, 3 Canasa's, A entire bottle of Pepto-Bismol, 9 Colasal, 2 probiotics and still no control. Went to G.I. today and she said I am in a moderate to severe flare-up. I hate to think about what a severe one is like. My P.P. said she thought it was a intestinal virus, but wasn't sure and gave me some pills for the cramps. I iust want to know if anyone else has had these symptoms and what did your G.I do to help. I start tonight on Rowasa enemas and she said if I am not better by Monday, she might have to put me back in the hosp or start me on predisone. She put me back on percoset and I hate feeling doped up. I have lost 10 pounds since Sunday. Am a little bit dehydrated, but am drinking alot of water which goes straight thru. Please, if anyone could give me a little advice or just share some conversation with me. I would appreciate it. Please !!!!Angel

FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 6/12/2008 7:25 PM (GMT -6)   
I just wanted to say hi and sorry that you are having a hard time. I hope someone comes along soon with advice.

expecting226
Regular Member


Date Joined Jul 2007
Total Posts : 402
   Posted 6/12/2008 7:50 PM (GMT -6)   
It sounds like a flare to me.

While I don't have any experience with your heart medications, I would make sure your GI is working with your cardiologist to get all of that figured out. Are they communicating about your situation? Each disease can't be monitored in a vaccuum... they have to be managed in conjunction with each other, if at all possible.
Wearing many hats: Mother, Wife, Daughter, Professional, Sister, Friend
 
Current Medications:
- Asacol (4 pills, 3x per day)
- Rowasa (1 enema daily, as needed)
- Folic Acid (1 mg, 1x per day)
- Calcium (600 mg, 2x per day)
- Multi-Vitamin (1x per day)


elephantlover
Regular Member


Date Joined Mar 2008
Total Posts : 56
   Posted 6/12/2008 7:52 PM (GMT -6)   
Thank you very much for caring, Fit. I feel so bad and am so sick. My husband and daughter has been wonderful thru all this, but I am sure they are tired of the moans from the bathroom. I hope someone will read and have some sdvice. I think I am going to call my P.P. in the morning and get another Dr. for a second opinion. This one just doesn't seem like her heart is in it. Thanks again for being so kind hearted. Angel
 


elephantlover
Regular Member


Date Joined Mar 2008
Total Posts : 56
   Posted 6/12/2008 8:02 PM (GMT -6)   
Hi Expecting, no they are not communicating. When I first went in the hospital they were arguing over was it my heart or Acid Reflux. One G.I. Dr. that is in the group with my G.I. insulted and embassed me so bad, it was awful. He wanted to send me home but my Cardio said no way, something wasn't right. I passed all their heart tests, I do not know how. Except the old push around EKG and it would come back showing something wrong. Had two arteries almost blocked, one 95% The other one 70%. I was having small heart attacks and their machines wasn't catching it. When we questioned this they said those test were only 85% right, meaning 15% are allowed to walk away. I am so thankful I do have excellent cardio's. Thanks for caring and keep in touch. Feels good to talk about it. Angel
 


jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 6/12/2008 8:24 PM (GMT -6)   
Elephantlover, please ask your GI to run a stool culture. Being in the hospital always puts us at risk for c. diff. infection, and it can be brutal if not treated quickly. And it sounds as if you're not happy with the GI; if that's so, consider looking for a second opinion (or just a new GI.) You need a GI who will treat you aggressively and listen to what you say.

As for the angioplasty and stints, my husband had three stints placed in April. His major coronary artery was 97% blocked, and both of the branches below where it splits were more than 50%. He had absolutely no symptoms, but our fabulous PCP found it on his stress test. I hope you do as well post-op as he has.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from steroid therapy.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


elephantlover
Regular Member


Date Joined Mar 2008
Total Posts : 56
   Posted 6/12/2008 8:40 PM (GMT -6)   
Hi Judy, I am doing fine from the angio, its the meds I think that is causing all this flare up. But I am one sick puppy right now. I am hungry and can not eat, because it hurts so bad. I have no control over BM and am having to wear depends for accidents. My G.I. is in such a hurry, you are right she doesn't talk to you that much. I have already spoken with my PCP about another one and I am going to call in the morning and get a second opinion. I go to my cardio tuesday and he listens to me, I think Alot of him. I am going to talk with him. What is C. Diff. infection? thanks for caring and talking. Angel
 


bellski
Regular Member


Date Joined Apr 2008
Total Posts : 499
   Posted 6/12/2008 8:43 PM (GMT -6)   
HI Angel, I am so sorry that you are so sick. I will be praying for a speedy recovery for you and for remission. Hang in there. Bellski
Lori (Bellski)-age 43 from Illinois
Diagnosed February 2008 with Ulcerative Proctitis, possible dysplasia
Currently: symptoms have subsided, awaiting biopsy results for dysplasia
Medications:  Asacol 400mg X 6, Cymbalta 20 mg X 1, Canasa (sometimes) Vitamins:  Calcium 600 + D X 2, One a Day Women's X 1, Citrucel, Probiotics
High fiber diet
"I thank God that  I found this website!"
 


elephantlover
Regular Member


Date Joined Mar 2008
Total Posts : 56
   Posted 6/12/2008 8:50 PM (GMT -6)   
Bellski, Thank you so very much for caring, and please keep me in your Prayers, they do work. I got to do that rowasa enema tonight and I just wonder how and if it will make me sicker. Guess I am getting scared of meds. Angel
 


Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4509
   Posted 6/12/2008 9:31 PM (GMT -6)   
I'm so sorry you're feeling so crappy. I haven't had the symptoms you describe, but the above suggestions regarding getting a stool sample and maybe getting a second opinion are good ones. Hang in there and I hope you get better soon.
24 years old
Diagnosed with UC March 2007; yet to go into complete remission
Asacol 4 tablets 3x/day
Rowasa (generic) - nightly; Canasa (1,000 mg) in the morning
Nature's Way Primadophilus Reuteri 2/day; Chewable multivitamin; Metamucil; Viactiv


Katmom
Veteran Member


Date Joined Mar 2008
Total Posts : 1202
   Posted 6/12/2008 9:59 PM (GMT -6)   
Get to a new Gastro, as quickly as you can. You sound like you are in a serious flare. There are other med's they should be considering, but they have to be done in conjunction with your heart issues. Sounds like you should be in the hospital with an IV, and quickly.
Stay connected and keep seeking answers. Hang tough, K
Daughter,14 diagnosed 1-08 w/ UC .learning from you all.
Rowasa, Asacol, Prednizone 50mg, major flare, Hosp. @U of C, Comers. IV steroid, no food, then low residue, home.
Now, began mp6, beginning taper of Pred, now 45mg, horrible acne, moon face, and fearful of future.
trying probiotics, Omega 3, and keeping up with doc visits.


potty girl
Veteran Member


Date Joined Dec 2006
Total Posts : 835
   Posted 6/13/2008 12:03 AM (GMT -6)   
I have had 3 stents put in and They put me on baby aspirin along with my plavix but they had to take me off the aspirin it not only effected my uc but cause severe imflamation in my stomach. then they gave me carafate to get rid of the imflamation. The imflamation caused me to have really bad cramps.You may have to get off the aspirin. I was only takeing one a day.
Rona

synthroid .088 mg, lowpressor 50 mg x 2, cozaar 25mg x2, imdur 30 mg
nitroquick, proventol, plavix 75 mg, protonix 40 mg x 2, asacal 400mg x 9
carafate 1 gm x 4, zyrtec 10 mg, rhinocort aqua nose spray, fish oil,
potassium.


jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 6/13/2008 7:33 AM (GMT -6)   
Elephantlover, c. diff. is a bacteria, the mind-bending name is clostridium dificil. When we're sick or having a flare, or when we're on antibiotics it will tend to grow and infect our colons. It is the big new concern in hospitals, because a lot of people pick it up there, most likely because they're sick and it's around in other patients. Because the normal, "good" bacteria tend to get wiped out by UC, it leaves a wide-open door for it to infect us.
 
The reason I thought of it is that it tends to cause watery diarrhea and very severe cramping. UC flares can also do this, and the only way to be sure is to have a stool culture done. Thus, my suggestion about the stool culture.
 
Hope you're feeling better soon!
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from steroid therapy.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


slimcook
Regular Member


Date Joined Sep 2007
Total Posts : 43
   Posted 6/13/2008 9:40 AM (GMT -6)   
Elephantlover: I second Judllyn, my first thought when I read your email was that it sounds like C.diff. I would cconsider this especially with the recent hospital stay. Hope you can get to the bottom of this soon and have resolution.
Slimcook
dx:2003 Pancolitis
current meds:
Colazol 1500 TID, Imuran 100mg, Healthy Trinity Probiotic, Grape Seed Ext. Biotin, Vit. E., Selenium, Flax Oil, Calcium, Zinc and Emergen-C


Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 6/13/2008 10:04 AM (GMT -6)   
Elephantlover,

I was going along fine until I took aspirin over a two day course I think that is what cause me to flare up and now I am @ 40mg of pred and it is finally helping my flare.

HTH!
Beth, 32 ~ small flare - hoping caused by aspirin - hydrocortisone e's
Major Flare Sept/Oct 07
UC dx'd 03/00 (Proctosigmoiditis); Pancolitis since 09/07
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd 09/07 - partial remission since 03/08
Prednisone 5mg 1xday (tapered from 60 = ), Simvastatin 20mg 1xday, Diovan 160mg 2xday. Enalapril 20mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.  Do you have edema? If so, check your blood protien level!
 


PeanutMom
Regular Member


Date Joined Jun 2008
Total Posts : 197
   Posted 6/13/2008 10:40 AM (GMT -6)   
I have no advice but you have my thoughts and prayers. I know the frustration of so many doctors, I have UC, asherman's syndrome (female issue) and stage 3 chronic kidney failure. I have to agree with other posters, search for a new GI you don't need the added stress of a GI that's not listening to you.

I hope all is well I haven't seen a post from you today. With any luck you are resting peacefully for a change (o:

philly-fan
Regular Member


Date Joined Dec 2006
Total Posts : 185
   Posted 6/13/2008 11:21 PM (GMT -6)   

Hi EL,

Sorry about your situation. I have gone throught the heart/uc combo, I had a quadruple bypass. When I was struggling to stablize from a flare my cardio doc let me drop the aspirin. When I was stable I added the aspirin back in. Ask him if you can do that and then ease back in with 1 a day for some time before you add the second. Ask if maybe you can stay on one a day. I assume they are the 81mg.

Good luck  


Steve


Asacol 1200mg-3x a day

Probiotic=metagenics ultra flora plus DF

Hydrocortizone when needed

Off the prednesone since September 8th (omg)


Heart meds

Lipitor,Toprol, aspirin 81

synthroid


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 6/13/2008 11:26 PM (GMT -6)   
If they put you on antibotic to prevent infection for the stents then that might have really kicked up your UC. Hope you feel better soon.

Post Edited (bbc) : 6/14/2008 10:01:41 AM (GMT-6)


bellski
Regular Member


Date Joined Apr 2008
Total Posts : 499
   Posted 6/14/2008 9:04 AM (GMT -6)   
Angel, I've been thinking about you.  I hope you are starting to get better.  How are you feeling today?  Lori (Bellski)

Lori (Bellski)-age 43 from Illinois
Diagnosed February 2008 with Ulcerative Proctitis,
Currently: symptoms have subsided for the most part
Medications:  Asacol 400mg X 6, Cymbalta 20 mg X 1, Canasa (sometimes) Vitamins:  Calcium 600 + D X 2, One a Day Women's X 1, Citrucel, Probiotics
High fiber diet
"I thank God that  I found this website!"
 


elephantlover
Regular Member


Date Joined Mar 2008
Total Posts : 56
   Posted 6/14/2008 1:15 PM (GMT -6)   
Hi everyone, I am feeling better today. Have only been about 7 times. I had that really scary episode last night where I just poured blood, but it stopped. It is still bright yellow and watery. The cramps are not so severe and are farther apart today. I got about 6 hours sleep last night without getting up and that made me feel better. I ate a few peices of toast this morning, the first real thing I have had in days. Have lost about 13 pounds, that I can afford to lose, but not this way. My stomach is so sore I don't want to touch it or stretch it. I hope I continue to do better. I did not take my asprin this morning and I am feeling better. But I will take my Plavix this evening, I need that. Go back to cardio tuesday. Thank you all for caring and talking with me. Makes me feel better to know someone fully understands. Angel
 


bellski
Regular Member


Date Joined Apr 2008
Total Posts : 499
   Posted 6/14/2008 1:24 PM (GMT -6)   
I'll continue to pray for you. You might want to keep a journal of what's been going on to tell the doctor in case you forget things. When you are so sick, it's hard to focus sometimes. Keep us posted, Lori (Bellski)
Lori (Bellski)-age 43 from Illinois
Diagnosed February 2008 with Ulcerative Proctitis,
Currently: symptoms have subsided for the most part
Medications:  Asacol 400mg X 6, Cymbalta 20 mg X 1, Canasa (sometimes) Vitamins:  Calcium 600 + D X 2, One a Day Women's X 1, Citrucel, Probiotics
High fiber diet
"I thank God that  I found this website!"
 


elephantlover
Regular Member


Date Joined Mar 2008
Total Posts : 56
   Posted 6/14/2008 1:29 PM (GMT -6)   
Lori, I am keeping it all wrote down so I can take to Dr. I am also going to do the butter bowl container and catch it next time. If for nothing else myself. I want to know what is coming out of me. I know that sounds gross, but I am tired of looking and not knowing if it really is clotted blood or stool. Keep me in your Prayers and I will have you in mine. Angel
 


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 6/14/2008 8:51 PM (GMT -6)   
EL - are you on Colazal? I had very yellow stools while on it for a few months back in '03.

I hope you're continuing to feel better!
Pan-colitis and GERD diagnosed May 2003
Osteopenia diagnosed Feb 2006
Status:  Flaring
 
Asacol 12 per day,  Azathioprine 100mg, Aciphex, Forvia, and Pro-Bio
30mg Pred until I get set up for Remicade
 
Co-Mod for the UC forum:  Keep HealingWell running smoothly:  www.healingwell.com/donate


elephantlover
Regular Member


Date Joined Mar 2008
Total Posts : 56
   Posted 6/14/2008 9:13 PM (GMT -6)   
Hi Dakota, Yes I am on Colasal, 3 x 3 a day. I had soft yellow stool from it. What I have now is watery bright yellow stool. But it is starting to let up some now. Just have the bloody Stool in bottom of commode now. Stomach still hurts, but no where near what it was. I think alot now might be just from where I am so sore. And I am weak and hungry. I have lost a total of 16 pounds, it went fast. Kind of scary to watch yourself lose weight that fast. But I needed to lose it so I guess that was the good thing. Laid down and slept 3 hours today. Been a week today since it started. Thank you for caring and May God Bless You, Angel 

 


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 6/14/2008 10:46 PM (GMT -6)   
I understand the feelings - like your guts have been trampled and are RAW. Losing that much weight is tough on the body. I'm concerned that you're not getting enough nutrients. Are you able to get down Gatorade or Powerade? Chicken broth? Keep foods simple and REST when you can.

Let us know how you're doing.
Pan-colitis and GERD diagnosed May 2003
Osteopenia diagnosed Feb 2006
Status:  Flaring
 
Asacol 12 per day,  Azathioprine 100mg, Aciphex, Forvia, and Pro-Bio
30mg Pred until I get set up for Remicade
 
Co-Mod for the UC forum:  Keep HealingWell running smoothly:  www.healingwell.com/donate

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