joint pain with Rowasa?

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artgal
New Member


Date Joined Jun 2008
Total Posts : 10
   Posted 6/13/2008 7:18 AM (GMT -6)   
Hi, I am a long time UC patient. Have been flaring since Mar., after 5 years of remission.Currently, have much improved. I take Pentasa and have also been taking Rowasa enemas for 6 plus weeks. about 2 weeks ago,came down with terrible joint pain,starting in my knees, and then feet, wrists, and ankles. I feel like someone beat the bottoms of my feet with a lead pipe! I read that one possible side effect of Rowasa is joint pain. I called Dr. and he said ,yes, and I am tapering off them, every other day. Pain has not lessened yet and is very upseting to me. I've read on this forum, that joint pain can be a part of UC, but in my 30 years of having it, have never had joint pain except the last 2 weeks. Has anyone had this side effect from Rowasa? (I know the same medicine is in Pentasa and I have been on that 13 years with no problem)

quincy
Elite Member


Date Joined May 2003
Total Posts : 30393
   Posted 6/13/2008 9:25 AM (GMT -6)   
Hi...it could be the amount you're taking...has your UC improved from taking it nightly for the 6 weeks?

You could ask the doc to put you on the 2g dosage nightly and see if that improves your pain symptoms....at least if it does, knowing the limit will be helpful.

The other thing is that it might be the metabisulfite as a preservative....

I think firstly go for the 2g.....

We all reach our limit sometimes.

Curious...how old are you? Are you M or F?

Welcome to the forum!!
quincy
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


artgal
New Member


Date Joined Jun 2008
Total Posts : 10
   Posted 6/13/2008 9:52 AM (GMT -6)   
thanks, Quincy.
I am 51 and am female. I think I will take no more Rowasas, and wait a week. Dr. said to call him then.
I am on 1000 mg of Pentasa 4times a day. My maintainance dose is 500, 4 times a day. I never thought about any otheringredient in the enemas. I do think it weird that I was on it for 5 weeks, before I had joint pain.

PumpFast
Regular Member


Date Joined Jun 2006
Total Posts : 140
   Posted 6/13/2008 11:02 AM (GMT -6)   
artgal said...
Hi, I am a long time UC patient. Have been flaring since Mar., after 5 years of remission.Currently, have much improved. I take Pentasa and have also been taking Rowasa enemas for 6 plus weeks. about 2 weeks ago,came down with terrible joint pain,starting in my knees, and then feet, wrists, and ankles. I feel like someone beat the bottoms of my feet with a lead pipe! I read that one possible side effect of Rowasa is joint pain. I called Dr. and he said ,yes, and I am tapering off them, every other day. Pain has not lessened yet and is very upseting to me. I've read on this forum, that joint pain can be a part of UC, but in my 30 years of having it, have never had joint pain except the last 2 weeks. Has anyone had this side effect from Rowasa? (I know the same medicine is in Pentasa and I have been on that 13 years with no problem)
I suffer from intermittent joint pain. Having used Rowasa on and of for the past 8 years, I can not correlate the med with the symptons. The pain is mostly in my hands/ knuckles. I am a 30/M and have UC for 9 years. The doctor has simple stated that it could be extraintestinal manifestation of UC.
 
PF
6MP, Asacol, Rowasa
VSL#3, Florastor (Saccharomyces boulardii), Mutaflor(E. Coli Nissle 1917)
Psyllium Seed Powder, Turmeric Extract, Fish Oil, SeaCure
Multivitamin, Folic Acid, Vitamin C, Alpha Lipoic Acid, L-Carnitine, L-Taurine
Ulcerin I and Ulcerin II (ayurveda herbal medication for UC)
Low Dose Naltrexone 4mg


artgal
New Member


Date Joined Jun 2008
Total Posts : 10
   Posted 6/13/2008 11:41 AM (GMT -6)   
Thanks, Pumpfast.
I guess that is possible,it's just that after having UC for 30, I've never had any joint pain, and it started after I was much better. Oh well, I'll just wait and see.

Alycacc
Regular Member


Date Joined Jun 2008
Total Posts : 46
   Posted 6/13/2008 11:59 AM (GMT -6)   
unfortunately, joint pain is a side effect of 5-ASA drugs....I had almost every side effect when I was on Asacol, Lialda and the Rowasa enemas and my dr. took me off b/c I was clearly allergic.  I hope you feel better:)

artgal
New Member


Date Joined Jun 2008
Total Posts : 10
   Posted 6/14/2008 8:43 AM (GMT -6)   
I'm sure it must be a side effect, but I've been on oral mesamaline for 13 years with no side effects, and then 5 weeks of enemas before the joint pain. My feet are so sore, it is hard to walk and I walk for exercise everyday, and am a very active person, play tennis, etc. I hope I don't have rhematoid arthritis.

SunnyFlorida
Regular Member


Date Joined Mar 2008
Total Posts : 53
   Posted 6/14/2008 6:44 PM (GMT -6)   
I also have increasing joint pain after my latest flare and bout with Prednisone.  ( I am off of it now and in remission. ) I am also on Asacol and mesalamine enemas, which I have used for ten years with no side affects.  How do you find out what source, if any, is causing the joint pain?  How do you know if it is rheumatoid arthritis?  I just read in the dictionary that there is a blood test for rheumatoid arthritis? 

~~~~~Teresa~~~~~
 
Diagnosed with UC in 1997
Asacol 400 3 x 3 daily
Mesalamine liquid 60 ml once daily
Prednisone 10 MG daily


artgal
New Member


Date Joined Jun 2008
Total Posts : 10
   Posted 6/15/2008 7:21 AM (GMT -6)   
So you have had joint pain after the flare, when you were doing better? Maybe it is just the disease progression and not any medicine. Do you still have joint pain? I am hoping this will go away. I know nothing about Rheumatoid arthritis, except it is bad and degenerative, I am hoping this is not it. I will wait until I'm off the rowasa for a week or so and then call my Dr. Are you still on the enemas even though you are in remission?

quincy
Elite Member


Date Joined May 2003
Total Posts : 30393
   Posted 6/15/2008 12:24 PM (GMT -6)   
Hi...I think if you abruptly drop the Rowasa so quickly, it'll slam you into a flare.

I went through a period of foot problems..had to give away all my fancy shoes..groan!...and start wearing orthotics.
I did have a hysterectomy the year before that....so could have been hormonal changes.

I think maybe you should experiment with the enemas rather than assume too quickly. Do get your feet checked out regardless....

Curious...what other supplements are you taking?

quincy
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


artgal
New Member


Date Joined Jun 2008
Total Posts : 10
   Posted 6/15/2008 12:45 PM (GMT -6)   
In previous flares, I took Cortenemas for maybe 2 weeks with success, and another time for 3 months before I was in remission. Then I've been 5 years with no problems. This flare, I did do 4 weeks of them with no relief, that is when the Dr. changed me to Rowasa enemas. It took about 2 weeks to bring improvement. Other than Pentasa (oral mesamaline) I am on no other meds or supplements. I guess I want to see if the joint problems improve without the Rowasa and if they do, then I know what it is. If not, it's back to the drawing board and find out what is causing the pain.

quincy
Elite Member


Date Joined May 2003
Total Posts : 30393
   Posted 6/15/2008 3:13 PM (GMT -6)   
I think maybe rather than waiting, you should switch to the cortenemas asap. You'll know soon enough. That way, you're not allowing the rectal inflammation get worse.

q
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

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