It sounds like Crohn's to me, descriptions of UC state ulcers/inflammation is the large intestine and rectum only and Crohn's can be anywhere... Others may say it doesn't really matter, but to me it does. For one, more meds are approved for Crohn's than UC. Two, if surgery is needed, it is possible to get a resection instead of the whole colon out. Third, with Crohn's there is more of a risk for fistulas so I would like to be prepared for that possiblity.... I still don't know which I have but my guess is Crohn's. Are you considering getting a second opinion? I don't know if I would trust your doctor anymore. Sorry to hear you going through all that, I am here any time and I totally understand.
Diagnosed with Left-sided UC in 1995 at age 15,
Prednisone, Rowasa & Hydrocort. Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Aloe Juice, Canasa, Enotcort, Colazol, Anamantle, Remicade, etc... had 1 inch deep rectal ulcer 2004, put on Remicade, August 2007:Increased Remicade dosage-700mg every 6 weeks,diagnosed w/ Psoriatic Arthritis & Fibromyalgia Current meds: Clorazepate, Lomotil, Tylenol pm, Lyrica started 1/17/08, Humira started 4/4/08