Crohns or UC ?

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Pooie1981
Regular Member


Date Joined Mar 2008
Total Posts : 274
   Posted 6/13/2008 7:08 AM (GMT -7)   
Hi all. Just a question. I finally got to see my GI this passed week so I asked her lots of questions since I hadn't seen her since my diagnoses of UC. I asked her specifically what parts of my Large Intestine were effected when she did the colonoscopy 4 years ago. She said the entire thing was effected so it is Pancolitis. But then she also said the cecum was effected and the illium and a little bit into the small intestine. I am having a CAT Scan on Tuesday and then she said from here she will schedule another scope to see what is going on now. Now that I am home and thinking... if my cecum and small part of small intestine are effect, couldn't it be Crohns then?? I will ask her when she calls about my Cat Scan results next week but thought I would get an opinion here too.
Jenn 26/female
Ulcerative PANCOLITIS diagnosed 2004
Asacol 3 pills once/day
Daily Vitamin for Women and Folic Acid
Currently in a flare since March 6 !!!!!!!!!!!!!!!!!!!!!!!


creamofrice
Regular Member


Date Joined Jun 2008
Total Posts : 32
   Posted 6/13/2008 7:14 AM (GMT -7)   
My small intestine gets effected every now and again and sometimes I get little ulcers in my mouth during a big flare. I always thought I might have chron's since chron's effects the entire GI track. My GI and the head of the GI department examined my recent colonoscopy for two hours and they say that it's still just UC. Which I'm very happy about. I'm not sure how they determine these things but it's possible that it's not chron's.
Female-22
Diagnosed with Severe Ulcerative Colitis in Dec 2005 at age 19
2nd flare up-Hospitalized for 41 days (april-may 2008)
prednisone 25mg (tapering)-taking sicne 2005 :(
asacol 400mg-9 pills a day
remicade (just started)
iron, calcium, vitamin c
Attempting Diet-Eat right for your blood type (Type O)


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 6/13/2008 11:38 AM (GMT -7)   
Sorry, but UC NEVER EVER affects the small intestines, it's limited to the colon/rectom, which crohns can also affect because the biggest difference between UC and CD is CD can affect the entire GI tract and UC is limited (as mentioned above)...

UC also only will affect the surfacable layer of the colon/rectom, with CD the inflammation can go through the many layers of the intestinal lining (which will often lead to a fistula).

Pan colitis is simply a term meaning that the entire colon is inflammed but it could still be from either CD or UC...

colitis simply means inflammation of the colon... col=colon, itis=inflammation.

Anyone who's told they have even the smallest amout of disease activity higher then the colon and is told they still only have UC should seek a second/third opinion.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


hana24
Regular Member


Date Joined Dec 2007
Total Posts : 354
   Posted 6/13/2008 11:48 AM (GMT -7)   
my doctor says I most likely have UC even though I think it might be crohns but he said it doesn't really matter because at this stage they are treated the same so we will just see what the next scope looks like. I am getting another opinion also from a specialist because I don't feel great about my doctor his nurse - I don't know I just want a second opinion. One time I go see him and he says I have IBS and thats my main problem then the next time he wants me to go on remicade and I don't think he remembers much about my situation from visit to visit. The nurse either.
Jessica 26/F 30mg pred
dicyclomine 10Mg as needed
Citalopram 20 MG
Culturelle once daily
omeprazole(for acid reflex)
Tried (Entorcort EC 9ml/day and Prednisone, Asacol ,colazal)


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2201
   Posted 6/13/2008 12:36 PM (GMT -7)   
I agree... on some level, I don't know that it really makes that much difference. You know you have inflammatory bowel disease regardless. Some of my symptoms are atypical for UC, but I quit stressing over what name tag to stick on myself and started concentrating on doing all I could to improve my health. The things I've found helpful - probiotics, Omega-3s, dietary changes, etc. - are equally effective for either UC or Crohn's.
Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal.
 
 


princesscolon
Veteran Member


Date Joined Apr 2006
Total Posts : 733
   Posted 6/13/2008 8:23 PM (GMT -7)   

It sounds like Crohn's to me, descriptions of UC state ulcers/inflammation is the large intestine and rectum only and Crohn's can be anywhere... Others may say it doesn't really matter, but to me it does.  For one, more meds are approved for Crohn's than UC.  Two, if surgery is needed, it is possible to get a resection instead of the whole colon out.  Third, with Crohn's there is more of a risk for fistulas so I would like to be prepared for that possiblity.... I still don't know which I have but my guess is Crohn's.  Are you considering getting a second opinion?  I don't know if I would trust your doctor anymore.  Sorry to hear you going through all that, I am here any time and I totally understand. 

Adrienne


Diagnosed with Left-sided UC in 1995 at age 15, Prednisone, Rowasa & Hydrocort. Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Aloe Juice, Canasa, Enotcort, Colazol, Anamantle, Remicade, etc... had 1 inch deep rectal ulcer 2004, put on Remicade, August 2007:Increased Remicade dosage-700mg every 6 weeks,diagnosed w/ Psoriatic Arthritis & Fibromyalgia Current meds: Clorazepate, Lomotil,  Tylenol pm, Lyrica started 1/17/08,  Humira started 4/4/08


Pooie1981
Regular Member


Date Joined Mar 2008
Total Posts : 274
   Posted 6/14/2008 12:24 AM (GMT -7)   
Thanks all for your opinions. They pretty much reflect the same suspicion I had. I am going to have another scope done after the Cat Scan anyways so I will see what the results from that are before I go lookin for a second opinion. Back when I had my first one done maybe it was just too early to tell anything for sure. I'll let yas know what the outcome is later in the month after the scope.

Thank you in the mean time. :O) Your opinions always play a big part.
Jenn 26/female
Ulcerative PANCOLITIS diagnosed 2004
Asacol 3 pills once/day
Daily Vitamin for Women and Folic Acid
Currently in a flare since March 6 !!!!!!!!!!!!!!!!!!!!!!!


tums
Regular Member


Date Joined Apr 2008
Total Posts : 128
   Posted 6/14/2008 5:27 AM (GMT -7)   
I have UC and my brother also did (he has had surgery) when he was flaring he used to get ulcers in his mouth (not sure about small intestine) and said the only way they could really rule out crohns was when he had his colon removed and they tested it and it turns out his was UC.
32 year old female
UC diagnosed 2001
Asacol 6 per day
Azathioprine 50mg started 4/08
Steroids 40mg per day

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