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creamofrice
Regular Member


Date Joined Jun 2008
Total Posts : 32
   Posted 6/13/2008 11:38 AM (GMT -6)   
i haven't started taking probiotics yet but i know i should. i know what probiotics are but i don't know what's on the market.
 
i don't know what to buy. i'm sure i could find them at any health food store but is one brand better than another? are there a lot of different types? any suggestion?
Female-22
Diagnosed with Severe Ulcerative Colitis in Dec 2005 at age 19
2nd flare up-Hospitalized for 41 days (april-may 2008)
prednisone 25mg (tapering)-taking sicne 2005 :(
asacol 400mg-9 pills a day
remicade (just started)
iron, calcium, vitamin c
Attempting Diet-Eat right for your blood type (Type O)


bellski
Regular Member


Date Joined Apr 2008
Total Posts : 499
   Posted 6/13/2008 11:43 AM (GMT -6)   
I just started to take them a few days ago. I went to GNC and kind of just read lables and checked prices. I ended up with Probiotics acidophilus. It wasn't too expensive, I think $24.00ish. It had 14 billion good bacteria and that sounded like a good big number to me....lol. Good luck with your choice, Bellski
Lori (Bellski)-age 43 from Illinois
Diagnosed February 2008 with Ulcerative Proctitis, possible dysplasia
Currently: symptoms have subsided, awaiting biopsy results for dysplasia
Medications:  Asacol 400mg X 6, Cymbalta 20 mg X 1, Canasa (sometimes) Vitamins:  Calcium 600 + D X 2, One a Day Women's X 1, Citrucel, Probiotics
High fiber diet
"I thank God that  I found this website!"
 


AngelTT
Regular Member


Date Joined Jun 2005
Total Posts : 213
   Posted 6/13/2008 12:08 PM (GMT -6)   
I started Sustenex a few weeks ago which is made by Digestive Advantage. I guess it's helping. I am in a flare so it's hard to tell.
34 year old female, Diagnosed 5 years ago
Current Meds: Remicade every 6 weeks, Prednisone 10mg (tapering), Prevacid, Sustenex, Lialda, Lexapro (anxiety), Synthroid, Iron, vitamins, Fish Oil
Expecting first child 12/08 via gestational surrogate!!!!


Alycacc
Regular Member


Date Joined Jun 2008
Total Posts : 46
   Posted 6/13/2008 1:07 PM (GMT -6)   
I started taking Fiber Smart probiotics and it really helped me for 4 months then I switched to a more potent one called Healthy Trinity by Natren.  Then I got a flare 1 month later so not sure what happened but I was doing GREAT for 5-6 months!

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 6/13/2008 1:27 PM (GMT -6)   
I take primadophilus reuteri probiotics everyday for my IBD and IBS, it even states on the bottle that it aids with lactose intolerance (which it does because mine was severe) high cholesterol (which it does because I no longer have to take meds for that) and vaginal health for women (which it does because I havn't had a single yeast infection since I started taking it 4ish yrs ago now and that's truly a record for me.

It's made by natures way and only one/day is needed and it's very affordable (in Canada I pay 29.00 for 90 caps) only thing is it must be kept cold (even when you purchase it, it must be in the store's fridge).

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


creamofrice
Regular Member


Date Joined Jun 2008
Total Posts : 32
   Posted 6/13/2008 2:39 PM (GMT -6)   
thanks everyone. i think i'll look for primadophilus reuteri. it seems to be a winner with quite a few people on here.
Female-22
Diagnosed with Severe Ulcerative Colitis in Dec 2005 at age 19
2nd flare up-Hospitalized for 41 days (april-may 2008)
prednisone 25mg (tapering)-taking sicne 2005 :(
asacol 400mg-9 pills a day
remicade (just started)
iron, calcium, vitamin c
Attempting Diet-Eat right for your blood type (Type O)


jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 6/13/2008 3:56 PM (GMT -6)   
Creamofrice, if you go to the Nature's Way website and look up Primadophilus Reuteri, they have a feature where you can search for a pharmacy in your area that carries it. If there isn't one, you can order it online.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from steroid therapy.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


creamofrice
Regular Member


Date Joined Jun 2008
Total Posts : 32
   Posted 6/14/2008 2:14 PM (GMT -6)   
that's very helpful, thank you judy
Female-22
Diagnosed with Severe Ulcerative Colitis in Dec 2005 at age 19
2nd flare up-Hospitalized for 41 days (april-may 2008)
prednisone 25mg (tapering)-taking sicne 2005 :(
asacol 400mg-9 pills a day
remicade (just started)
iron, calcium, vitamin c
Attempting Diet-Eat right for your blood type (Type O)


FreeSpirit1
New Member


Date Joined Jun 2008
Total Posts : 3
   Posted 6/14/2008 11:40 PM (GMT -6)   
I started out taking just acidophilus and was not sure of the benifits...I have been taking probotics for about 7 months now but I have been in a flare up since January so I really can not tell they help. They are suppose to aid in puttting back the good bacteria in the stomach and intestines. I went to the GNC and the lady there is really good, I told her about the problems I am having and she has this book that tells what is good for certain things, and she told me that the Kyo-Dophilus is better for people with UC than just acidophilus because it may not cause the bowels to run off....there is a possibility of that with just plain acidophilus. Anyways, it can do no harm, if anything it will do good because it takes out all the bad stuff and resupplies it with the good that is needed. Hope this helps.

Buckeyeinfl
Regular Member


Date Joined Oct 2006
Total Posts : 114
   Posted 6/16/2008 8:41 AM (GMT -6)   
Thought I'd add my 2 cents in here...my daughter suffered from UC, but one vicious flare later, she's got a jpouch now and her surgeon prescribes VSL #3 DS. The DS formula is double strength formula and is often paid for by insurance companies with a doctor's prescription. I wish we'd have known about it before she had her colectomy. We tried probiotics and asked for her GI's help and he was entrenched in the idea that it was "alternative medicine" and he was a "science man" so we were on our own. I was nervous about giving her probiotics because I didn't know how much to give her etc etc...but there are clinical studies now of VSL #3 and it's been shown to put UC into remission. If you are able to get it, I'd build up slowly though because it did take her a while to work up to a full packet. It caused some abdominal discomfort, but once the war was won by the good bacteria, she has a happy gut :)
She's doing great now with her JPouch, and we attribute that to the probiotics maintaining a healthy flora balance.
Best of health to you!
20 yo daughter w/ Pancolitis
diagnosed 8/30/06
Step 1 colectomy/jpouch creation 11/27/06
Step 2 takedown 2/9/07
****************
VSL #3 DS
21 yo Daughter diagnosed with right shoulder,
bilateral elbow, bilateral knee, and bilateral ankle AVN
 


Got2Believe
Regular Member


Date Joined Feb 2007
Total Posts : 436
   Posted 6/16/2008 10:30 AM (GMT -6)   
I think one must create an ideal environment in the gut for the postitive bacteria to thrive. It may be impossible to do during a flare, but we have to try. You just cant be putting bacteria and think they'll live and procreate in a bad gut. They need to do a little dance make a little love and multiply. People should also eat more veggies and whatever those little bugs like to eat.
I recently increased the amount of probitotics and have seen a nice improvement. Less blood so I am excited. I have been taking probiotics for a long time, but now am thinking the more the better.
                                                                                         
28/M/TX single parent of gorgeous 2.5yo girl (revised 5/8/08)
Severe Colitis (pancolitis) since January 9, 2005
currently:  6th week flaring;improving; 2bm/day; very little blood
RX/day:  Currently 10mg of prednisone per day. Lost job and insurance 10/2007 and stopped taking asacol and Imuran cold turkey
OTC: seldom use VSL#3, vitamins & other natural treatments
Diet: SCD helps tremendously, but am not strictly on it.
Other: food combos, enzymes, good posture, chewing more, etc.


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 6/16/2008 1:36 PM (GMT -6)   
There is a school of thought that some folks don't respond well to probiotics until they've got the worst of the bleeding and inflammation under control. You have to experiment and see. In the book, Listen to Your Gut, Natren's non-dairy Bifido Factor powder is the gentlest one suggested to try first. And it should be started at a low dose and work up to a full dose.
Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal.
 
 

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